Cargando…
Adolescents’ understanding of chemotherapy-related adverse events: a concept elicitation study
OBJECTIVE: to document adolescents’ understanding of chemotherapy-related core adverse events from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events and thus begin the validation process of this tool’s items with Brazilian adolescents. METHOD: this...
Autores principales: | , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9647878/ https://www.ncbi.nlm.nih.gov/pubmed/36351085 http://dx.doi.org/10.1590/1518-8345.6245.3717 |
_version_ | 1784827463649460224 |
---|---|
author | Silva-Rodrigues, Fernanda Machado Hinds, Pamela S. Nascimento, Lucila Castanheira |
author_facet | Silva-Rodrigues, Fernanda Machado Hinds, Pamela S. Nascimento, Lucila Castanheira |
author_sort | Silva-Rodrigues, Fernanda Machado |
collection | PubMed |
description | OBJECTIVE: to document adolescents’ understanding of chemotherapy-related core adverse events from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events and thus begin the validation process of this tool’s items with Brazilian adolescents. METHOD: this is a prospective, qualitative study of concept elicitation. The participants were 17 adolescents aged 13-18 years and undergoing chemotherapy in three hospitals in São Paulo - SP, Brazil. Cognitive interviews were conducted with questions based on chemotherapy-related adverse events. Data were analyzed for responsiveness and missingness. RESULTS: adolescents could and were willing to provide descriptive information about their chemotherapy adverse events, including physical and emotional events. Some participants suggested alternative terms to name the adverse events and some used more complex terms, but most were satisfied with the primary terms used by the researchers. CONCLUSION: this study represents the first steps towards understanding how adolescent cancer patients identify, name, and describe these events by cognitive interviewing to help design future assessment instruments focused on this age group. |
format | Online Article Text |
id | pubmed-9647878 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo |
record_format | MEDLINE/PubMed |
spelling | pubmed-96478782022-11-21 Adolescents’ understanding of chemotherapy-related adverse events: a concept elicitation study Silva-Rodrigues, Fernanda Machado Hinds, Pamela S. Nascimento, Lucila Castanheira Rev Lat Am Enfermagem Original Article OBJECTIVE: to document adolescents’ understanding of chemotherapy-related core adverse events from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events and thus begin the validation process of this tool’s items with Brazilian adolescents. METHOD: this is a prospective, qualitative study of concept elicitation. The participants were 17 adolescents aged 13-18 years and undergoing chemotherapy in three hospitals in São Paulo - SP, Brazil. Cognitive interviews were conducted with questions based on chemotherapy-related adverse events. Data were analyzed for responsiveness and missingness. RESULTS: adolescents could and were willing to provide descriptive information about their chemotherapy adverse events, including physical and emotional events. Some participants suggested alternative terms to name the adverse events and some used more complex terms, but most were satisfied with the primary terms used by the researchers. CONCLUSION: this study represents the first steps towards understanding how adolescent cancer patients identify, name, and describe these events by cognitive interviewing to help design future assessment instruments focused on this age group. Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo 2022-11-07 /pmc/articles/PMC9647878/ /pubmed/36351085 http://dx.doi.org/10.1590/1518-8345.6245.3717 Text en 2022 Revista Latino-Americana de Enfermagem https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License |
spellingShingle | Original Article Silva-Rodrigues, Fernanda Machado Hinds, Pamela S. Nascimento, Lucila Castanheira Adolescents’ understanding of chemotherapy-related adverse events: a concept elicitation study |
title | Adolescents’ understanding of chemotherapy-related adverse events: a concept elicitation study
|
title_full | Adolescents’ understanding of chemotherapy-related adverse events: a concept elicitation study
|
title_fullStr | Adolescents’ understanding of chemotherapy-related adverse events: a concept elicitation study
|
title_full_unstemmed | Adolescents’ understanding of chemotherapy-related adverse events: a concept elicitation study
|
title_short | Adolescents’ understanding of chemotherapy-related adverse events: a concept elicitation study
|
title_sort | adolescents’ understanding of chemotherapy-related adverse events: a concept elicitation study |
topic | Original Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9647878/ https://www.ncbi.nlm.nih.gov/pubmed/36351085 http://dx.doi.org/10.1590/1518-8345.6245.3717 |
work_keys_str_mv | AT silvarodriguesfernandamachado adolescentsunderstandingofchemotherapyrelatedadverseeventsaconceptelicitationstudy AT hindspamelas adolescentsunderstandingofchemotherapyrelatedadverseeventsaconceptelicitationstudy AT nascimentolucilacastanheira adolescentsunderstandingofchemotherapyrelatedadverseeventsaconceptelicitationstudy |