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Individuals with Sickle Cell Disease Using SBAR as a Communication Tool: A Pilot Study

Background: Sickle cell disease (SCD) is a hemoglobinopathy that causes debilitating pain. Patients often report dissatisfaction during care seeking for pain or a sickle cell crisis (SCC). The Theory of Self-Care Management for SCD conceptualizes assertive communication as a self-care management res...

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Autores principales: Jean-Baptiste, Deborah M., Wassef, Maureen, Bolyai, Susan Sullivan, Jenerette, Coretta
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9655268/
https://www.ncbi.nlm.nih.gov/pubmed/36360702
http://dx.doi.org/10.3390/ijerph192113817
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author Jean-Baptiste, Deborah M.
Wassef, Maureen
Bolyai, Susan Sullivan
Jenerette, Coretta
author_facet Jean-Baptiste, Deborah M.
Wassef, Maureen
Bolyai, Susan Sullivan
Jenerette, Coretta
author_sort Jean-Baptiste, Deborah M.
collection PubMed
description Background: Sickle cell disease (SCD) is a hemoglobinopathy that causes debilitating pain. Patients often report dissatisfaction during care seeking for pain or a sickle cell crisis (SCC). The Theory of Self-Care Management for SCD conceptualizes assertive communication as a self-care management resource that improves healthcare outcomes. Objectives: This pilot study aimed to determine whether adults with SCD could learn to use the Situation, Background, Assessment, Recommendation (SBAR) communication method using a web-based trainer, and it aimed to determine their perceptions of the training. Methods: The participants included n = 18 adults with SCD. Inter-rater reliability (IRR) among three reviewers was used to evaluate the participants’ ability to respond as expected to prompts using SBAR communication within the web-based platform. Content analysis was used to describe the participants’ perspectives of the acceptability of using the SBAR patient–HCP communication simulation. Results: The SBAR IRR ranged from 64 to 94%, with 72% to 94% of the responses being evaluated as the using of the SBAR component as expected. The predominant themes identified were (1) Patient–Provider Communication and Interaction; (2) Patients want to be Heard and Believed; (3) Accuracy of the ED Experience and Incorporating the Uniqueness of each Patient; and (4) the Overall Usefulness of the Video Trainer emerging. Conclusions: This pilot study supported the usefulness and acceptability of a web-based intervention in training adults with SCD to use SBAR to enhance patient–HCP communication. Enhancing communication may mitigate the barriers that individuals with SCD encounter during care seeking and improve the outcomes. Additional studies with larger samples need to be conducted.
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spelling pubmed-96552682022-11-15 Individuals with Sickle Cell Disease Using SBAR as a Communication Tool: A Pilot Study Jean-Baptiste, Deborah M. Wassef, Maureen Bolyai, Susan Sullivan Jenerette, Coretta Int J Environ Res Public Health Article Background: Sickle cell disease (SCD) is a hemoglobinopathy that causes debilitating pain. Patients often report dissatisfaction during care seeking for pain or a sickle cell crisis (SCC). The Theory of Self-Care Management for SCD conceptualizes assertive communication as a self-care management resource that improves healthcare outcomes. Objectives: This pilot study aimed to determine whether adults with SCD could learn to use the Situation, Background, Assessment, Recommendation (SBAR) communication method using a web-based trainer, and it aimed to determine their perceptions of the training. Methods: The participants included n = 18 adults with SCD. Inter-rater reliability (IRR) among three reviewers was used to evaluate the participants’ ability to respond as expected to prompts using SBAR communication within the web-based platform. Content analysis was used to describe the participants’ perspectives of the acceptability of using the SBAR patient–HCP communication simulation. Results: The SBAR IRR ranged from 64 to 94%, with 72% to 94% of the responses being evaluated as the using of the SBAR component as expected. The predominant themes identified were (1) Patient–Provider Communication and Interaction; (2) Patients want to be Heard and Believed; (3) Accuracy of the ED Experience and Incorporating the Uniqueness of each Patient; and (4) the Overall Usefulness of the Video Trainer emerging. Conclusions: This pilot study supported the usefulness and acceptability of a web-based intervention in training adults with SCD to use SBAR to enhance patient–HCP communication. Enhancing communication may mitigate the barriers that individuals with SCD encounter during care seeking and improve the outcomes. Additional studies with larger samples need to be conducted. MDPI 2022-10-24 /pmc/articles/PMC9655268/ /pubmed/36360702 http://dx.doi.org/10.3390/ijerph192113817 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Jean-Baptiste, Deborah M.
Wassef, Maureen
Bolyai, Susan Sullivan
Jenerette, Coretta
Individuals with Sickle Cell Disease Using SBAR as a Communication Tool: A Pilot Study
title Individuals with Sickle Cell Disease Using SBAR as a Communication Tool: A Pilot Study
title_full Individuals with Sickle Cell Disease Using SBAR as a Communication Tool: A Pilot Study
title_fullStr Individuals with Sickle Cell Disease Using SBAR as a Communication Tool: A Pilot Study
title_full_unstemmed Individuals with Sickle Cell Disease Using SBAR as a Communication Tool: A Pilot Study
title_short Individuals with Sickle Cell Disease Using SBAR as a Communication Tool: A Pilot Study
title_sort individuals with sickle cell disease using sbar as a communication tool: a pilot study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9655268/
https://www.ncbi.nlm.nih.gov/pubmed/36360702
http://dx.doi.org/10.3390/ijerph192113817
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