Cargando…
Diagnostic delay in rare diseases: data from the Spanish rare diseases patient registry
BACKGROUND: According to the International Rare Diseases Research Consortium (IRDiRC), a known rare disease (RD) should be diagnosable within a year. This study sought: firstly, to ascertain how long it takes to obtain the diagnosis of a RD in Spain, along with its associated time trend; and secondl...
| Autores principales: | , , , , |
|---|---|
| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2022
|
| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9670379/ https://www.ncbi.nlm.nih.gov/pubmed/36397119 http://dx.doi.org/10.1186/s13023-022-02530-3 |