Cargando…

Juvenile Dermatomyositis: what comes next? Long-term outcomes in childhood myositis from a patient perspective

BACKGROUND: To describe long-term outcomes in JDM using patient questionnaires and link to longitudinal, prospectively collected data for each patient within the Juvenile Dermatomyositis Cohort and Biomarker Study, UK and Ireland (JDCBS) to determine outcome predictors. METHODS: JDCBS participants...

Descripción completa

Detalles Bibliográficos
Autores principales:	Boros, C., McCann, L., Simou, S., Cancemi, D., Ambrose, N., Pilkington, C. A., Cortina-Borja, M., Wedderburn, L. R
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2022
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9670456/ https://www.ncbi.nlm.nih.gov/pubmed/36384526 http://dx.doi.org/10.1186/s12969-022-00754-y

Ejemplares similares

Juvenile dermatomyositis (JDM) sine myositis
por: Schuetz, C, et al.
Publicado: (2011)

Proposal for the development of an international minimal data collection for juvenile dermatomyositis (JDM)
por: McCann, Liza J, et al.
Publicado: (2011)

Retrospective analysis of infliximab and adalimumab treatment in a large cohort of juvenile dermatomyositis patients
por: Campanilho-Marques, Raquel, et al.
Publicado: (2020)

Efficacy and Safety of Cyclophosphamide Treatment in Severe Juvenile Dermatomyositis Shown by Marginal Structural Modeling
por: Deakin, Claire T., et al.
Publicado: (2018)

The Vasculopathy of Juvenile Dermatomyositis
por: Papadopoulou, Charalampia, et al.
Publicado: (2018)

Juvenile idiopathic inflammatory myositis: an update on pathophysiology and clinical care
por: Papadopoulou, Charalampia, et al.
Publicado: (2023)

Comparison of Children With Onset of Juvenile Dermatomyositis Symptoms Before or After Their Fifth Birthday in a UK and Ireland Juvenile Dermatomyositis Cohort Study
por: Martin, N, et al.
Publicado: (2012)

Update in juvenile myositis
por: Nistala, Kiran, et al.
Publicado: (2013)

Mapping the current psychology provision for children and young people with juvenile dermatomyositis
por: Livermore, Polly, et al.
Publicado: (2021)

Development of an internationally agreed minimal dataset for juvenile dermatomyositis (JDM) for clinical and research use
por: McCann, Liza J., et al.
Publicado: (2015)

Developing a provisional, international Minimal Dataset for Juvenile Dermatomyositis: for use in clinical practice to inform research
por: McCann, Liza J, et al.
Publicado: (2014)

Muscle Biopsy Findings in Combination With Myositis‐Specific Autoantibodies Aid Prediction of Outcomes in Juvenile Dermatomyositis
por: Deakin, Claire T., et al.
Publicado: (2016)

Consensus-based recommendations for the management of juvenile dermatomyositis
por: Enders, Felicitas Bellutti, et al.
Publicado: (2017)

OA29 Blotting-based assays under-detected TIF1-gamma and NXP2 autoantibodies compared to immunoprecipitation in Juvenile Dermatomyositis cohorts
por: Nguyen, Huong D, et al.
Publicado: (2022)

Tubuloreticular inclusions in juvenile dermatomyositis: a diagnostically useful marker?
por: Yasin, Shireena A, et al.
Publicado: (2014)

Histological heterogeneity in a large clinical cohort of juvenile idiopathic inflammatory myopathy: analysis by myositis autoantibody and pathological features
por: Yasin, S. A., et al.
Publicado: (2019)

Identification and prediction of novel classes of long-term disease trajectories for patients with juvenile dermatomyositis using growth mixture models
por: Deakin, Claire T, et al.
Publicado: (2020)

What is the mortality of Juvenile Dermatomyositis (JDM) in the modern treatment era
por: Smith, S, et al.
Publicado: (2008)

Clinically inactive disease in juvenile dermatomyositis – a proposed revision to the printo criteria
por: Almeida, Beverley, et al.
Publicado: (2014)

Association with HLA-DRβ1 position 37 distinguishes juvenile dermatomyositis from adult-onset myositis
por: Deakin, Claire T, et al.
Publicado: (2022)

Sub-phenotyping of juvenile dermatomyositis: can it assist clinical decisions?
por: Yasin, Shireena A, et al.
Publicado: (2014)

SHARE – workpackage 5: evidence based recommendations for diagnosis and treatment of juvenile dermatomyositis
por: Enders, Felicitas Bellutti, et al.
Publicado: (2014)

Autoantibodies in juvenile-onset myositis: Their diagnostic value and associated clinical phenotype in a large UK cohort
por: Tansley, Sarah L., et al.
Publicado: (2017)

A national registry for juvenile dermatomyositis and other paediatric idiopathic inflammatory myopathies: 10 years' experience; the Juvenile Dermatomyositis National (UK and Ireland) Cohort Biomarker Study and Repository for Idiopathic Inflammatory Myopathies
por: Martin, Neil, et al.
Publicado: (2011)

Dermatomyositis Sine Myositis with Membranoproliferative Glomerulonephritis
por: Owlia, Mohammad Bagher, et al.
Publicado: (2012)

Dermatomyositis sine myositis – Case presentation
por: Kaltsonoudis, Evripidis, et al.
Publicado: (2017)

Dermatomyositis with superimposed COVID-19 myositis
por: Balaini, Neeraj, et al.
Publicado: (2021)

Comparison of the utility and validity of three scoring tools to detect skin disease in patients with juvenile dermatomyositis
por: Campanilho-Marques, Raquel, et al.
Publicado: (2014)

Clinical Features and Cutaneous Manifestations of Juvenile and Adult Patients of Dermatomyositis Associated with Myositis-Specific Autoantibodies
por: Okiyama, Naoko
Publicado: (2021)

PReS-FINAL-2130-A: Effectiveness of intravenous cyclophosphamide in severe or refractory juvenile dermatomyositis - a national cohort study UK and Ireland
por: Moraitis, E, et al.
Publicado: (2013)

COVID-19 and myositis; true dermatomyositis or prolonged post viral myositis?
por: Movahedi, Nasim, et al.
Publicado: (2021)

Clinical Significance of Myositis-Specific and Myositis-Associated Antibody Profiles in Dermatomyositis
por: Babu, Anuradha K., et al.
Publicado: (2022)

Being on the juvenile dermatomyositis rollercoaster: a qualitative study
por: Livermore, Polly, et al.
Publicado: (2019)

Effectiveness of anti-TNF-α agents in the treatment of refractory juvenile dermatomyositis
por: Boulter, EL, et al.
Publicado: (2011)

A dermatopathic Juvenile Dermatomyositis; An Unexpected Case in Childhood
por: HASSAS YEGANEH, Mehrnoush, et al.
Publicado: (2020)

Effective induction therapy for anti-SRP associated myositis in childhood: A small case series and review of the literature
por: Binns, E. L., et al.
Publicado: (2017)

Development of a consensus core dataset in juvenile dermatomyositis for clinical use to inform research
por: McCann, Liza J, et al.
Publicado: (2018)

The Role of Myositis-Specific Autoantibodies in the Dermatomyositis Spectrum
por: Marasandra Ramesh, Harshita, et al.
Publicado: (2022)

PReS-FINAL-2012: Introducing a new approach to clinical care of juvenile dermatomyositis: the juvenile dermatomyositis multidimensional assessment report
por: Varnier, GC, et al.
Publicado: (2013)

Maternal microchimerism in muscle biopsies from children with juvenile dermatomyositis
por: Ye, Yi, et al.
Publicado: (2012)

Cannot write session to /tmp/vufind_sessions/sess_9t92p5107h43eqg846vltqkcdg