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Rediscovering life after being diagnosed with HIV: A qualitative analysis of lived experiences of youth living with HIV in rural Rwanda

INTRODUCTION: In sub-Saharan Africa, youth living with HIV, especially those who have lost one or both parents, face economic, socially and psychological challenges that hinder adherence to ART, ultimately leading to poor health outcomes. Partners In Health/Inshuti Mu Buzima implemented an Adolescen...

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Autores principales: Uwamariya, Josée, Nshunguyabahizi, Marcel, Nshimyumuremyi, Jean Népomuscène, Mukesharurema, Gerardine, Ndayishimiye, Emmanuel, Kamali, Innocent, Ndahimana, Jean d’Amour, Hedt-Gauthier, Bethany, Cubaka, Vincent K., Barnhart, Dale A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9671950/
https://www.ncbi.nlm.nih.gov/pubmed/36406888
http://dx.doi.org/10.3389/frph.2022.993916
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author Uwamariya, Josée
Nshunguyabahizi, Marcel
Nshimyumuremyi, Jean Népomuscène
Mukesharurema, Gerardine
Ndayishimiye, Emmanuel
Kamali, Innocent
Ndahimana, Jean d’Amour
Hedt-Gauthier, Bethany
Cubaka, Vincent K.
Barnhart, Dale A.
author_facet Uwamariya, Josée
Nshunguyabahizi, Marcel
Nshimyumuremyi, Jean Népomuscène
Mukesharurema, Gerardine
Ndayishimiye, Emmanuel
Kamali, Innocent
Ndahimana, Jean d’Amour
Hedt-Gauthier, Bethany
Cubaka, Vincent K.
Barnhart, Dale A.
author_sort Uwamariya, Josée
collection PubMed
description INTRODUCTION: In sub-Saharan Africa, youth living with HIV, especially those who have lost one or both parents, face economic, socially and psychological challenges that hinder adherence to ART, ultimately leading to poor health outcomes. Partners In Health/Inshuti Mu Buzima implemented an Adolescent Support Group (ASG) to support HIV-positive youth aged 15–25 years. During the evaluation of the ASG program, we sought to better understand youths' lived experiences to improve our delivery of HIV care. METHODS: We conducted qualitative in-depth, semi-structured individual interviews with youth enrolled in the ASG program. All interviews were conducted in-person or by telephone. Thematic analysis applying the framework approach with parallel inductive coding in Kinyarwanda and English was used. RESULTS: We interviewed 35 youth who ranged in age from 16 to 29 years. The main themes related to the lived experiences of youth were (a) Experiences living with HIV, including disclosure, stigma, interactions with the health care system, and medication adherence; (b) external challenges, defined as challenges that were not related to the implementation of the ASG program; and (c) personal vision. Almost all youth reported acquiring HIV from their mothers and disclosure of HIV status occurred around the age of 10. Disclosure was often unintentional and followed by internalized and enacted stigma. Many reported poor past medication adherence which improved following enhanced counselling. External challenges were overwhelmingly economic in nature, and orphanhood was a root cause of other challenges such as difficulty accessing education, lack of transport to health facility, and lack of insurance fees. Despite these challenges, youth have an optimistic view of the future with dreams of health, economic attainment, marriage, and children. CONCLUSION: Healthcare providers should empower caregivers to support HIV disclosure. Supporting youth as they face many economic challenges could help address socio-economic barriers to good health and promote holistic well-being.
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spelling pubmed-96719502022-11-19 Rediscovering life after being diagnosed with HIV: A qualitative analysis of lived experiences of youth living with HIV in rural Rwanda Uwamariya, Josée Nshunguyabahizi, Marcel Nshimyumuremyi, Jean Népomuscène Mukesharurema, Gerardine Ndayishimiye, Emmanuel Kamali, Innocent Ndahimana, Jean d’Amour Hedt-Gauthier, Bethany Cubaka, Vincent K. Barnhart, Dale A. Front Reprod Health Reproductive Health INTRODUCTION: In sub-Saharan Africa, youth living with HIV, especially those who have lost one or both parents, face economic, socially and psychological challenges that hinder adherence to ART, ultimately leading to poor health outcomes. Partners In Health/Inshuti Mu Buzima implemented an Adolescent Support Group (ASG) to support HIV-positive youth aged 15–25 years. During the evaluation of the ASG program, we sought to better understand youths' lived experiences to improve our delivery of HIV care. METHODS: We conducted qualitative in-depth, semi-structured individual interviews with youth enrolled in the ASG program. All interviews were conducted in-person or by telephone. Thematic analysis applying the framework approach with parallel inductive coding in Kinyarwanda and English was used. RESULTS: We interviewed 35 youth who ranged in age from 16 to 29 years. The main themes related to the lived experiences of youth were (a) Experiences living with HIV, including disclosure, stigma, interactions with the health care system, and medication adherence; (b) external challenges, defined as challenges that were not related to the implementation of the ASG program; and (c) personal vision. Almost all youth reported acquiring HIV from their mothers and disclosure of HIV status occurred around the age of 10. Disclosure was often unintentional and followed by internalized and enacted stigma. Many reported poor past medication adherence which improved following enhanced counselling. External challenges were overwhelmingly economic in nature, and orphanhood was a root cause of other challenges such as difficulty accessing education, lack of transport to health facility, and lack of insurance fees. Despite these challenges, youth have an optimistic view of the future with dreams of health, economic attainment, marriage, and children. CONCLUSION: Healthcare providers should empower caregivers to support HIV disclosure. Supporting youth as they face many economic challenges could help address socio-economic barriers to good health and promote holistic well-being. Frontiers Media S.A. 2022-11-04 /pmc/articles/PMC9671950/ /pubmed/36406888 http://dx.doi.org/10.3389/frph.2022.993916 Text en © 2022 Uwamariya, Nshunguyabahizi, Nshimyumuremyi, Mukesharurema, Ndayishimiye, Kamali, Ndahimana, Hedt-Gauthier, Cubaka and Barnhart. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY) (https://creativecommons.org/licenses/by/4.0/) . The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Reproductive Health
Uwamariya, Josée
Nshunguyabahizi, Marcel
Nshimyumuremyi, Jean Népomuscène
Mukesharurema, Gerardine
Ndayishimiye, Emmanuel
Kamali, Innocent
Ndahimana, Jean d’Amour
Hedt-Gauthier, Bethany
Cubaka, Vincent K.
Barnhart, Dale A.
Rediscovering life after being diagnosed with HIV: A qualitative analysis of lived experiences of youth living with HIV in rural Rwanda
title Rediscovering life after being diagnosed with HIV: A qualitative analysis of lived experiences of youth living with HIV in rural Rwanda
title_full Rediscovering life after being diagnosed with HIV: A qualitative analysis of lived experiences of youth living with HIV in rural Rwanda
title_fullStr Rediscovering life after being diagnosed with HIV: A qualitative analysis of lived experiences of youth living with HIV in rural Rwanda
title_full_unstemmed Rediscovering life after being diagnosed with HIV: A qualitative analysis of lived experiences of youth living with HIV in rural Rwanda
title_short Rediscovering life after being diagnosed with HIV: A qualitative analysis of lived experiences of youth living with HIV in rural Rwanda
title_sort rediscovering life after being diagnosed with hiv: a qualitative analysis of lived experiences of youth living with hiv in rural rwanda
topic Reproductive Health
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9671950/
https://www.ncbi.nlm.nih.gov/pubmed/36406888
http://dx.doi.org/10.3389/frph.2022.993916
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