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Validity of the Parsley Symptom Index—an Electronic Patient-Reported Outcomes Measure Designed for Telehealth: Prospective Cohort Study

BACKGROUND: Electronic patient-reported outcomes measures (e-PROMs) are a valuable tool for the monitoring and management of chronic conditions over time. However, there are few validated tools available that capture symptoms across body systems in telehealth settings. The Parsley Symptom Index (PSI...

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Detalles Bibliográficos
Autores principales: Williams, Hants, Steinberg, Sarah, Leon, Kendall, O’Shea, Catherine, Berzin, Robin, Hagg, Heather
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9673004/
https://www.ncbi.nlm.nih.gov/pubmed/36326802
http://dx.doi.org/10.2196/40063
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author Williams, Hants
Steinberg, Sarah
Leon, Kendall
O’Shea, Catherine
Berzin, Robin
Hagg, Heather
author_facet Williams, Hants
Steinberg, Sarah
Leon, Kendall
O’Shea, Catherine
Berzin, Robin
Hagg, Heather
author_sort Williams, Hants
collection PubMed
description BACKGROUND: Electronic patient-reported outcomes measures (e-PROMs) are a valuable tool for the monitoring and management of chronic conditions over time. However, there are few validated tools available that capture symptoms across body systems in telehealth settings. The Parsley Symptom Index (PSI) is a recently developed symptom assessment for adults with chronic disease in telehealth settings. A previous study demonstrated the feasibility and acceptability of the PSI in a clinical telehealth setting. OBJECTIVE: The purpose of this study was to assess convergent validity between the PSI and the self-rated health (SRH) item. METHODS: This prospective cohort study took place from January 15, 2021, to December 15, 2021, among a sample of 10,519 adult patients at Parsley Health, a subscription-based holistic medical practice. The PSI and the SRH were completed by patients via an online portal. The association between the PSI and SRH was assessed via polyserial and polychoric correlations, while weighted κ scores provided information related to agreement between the PSI and SRH. RESULTS: From 22,748 responses, there were moderate levels of association (polyserial r=0.51; polychoric r=0.52) and agreement (weighted κ=0.46) between the PSI and SRH. In total, 74.13% (n=16,865) of responses between the PSI and SRH were relatively congruent while 36.17% (n=8229) were literally congruent. CONCLUSIONS: The PSI demonstrates convergent validity with the SRH for adults with chronic disease in a telehealth setting. This finding further supports the validation of the PSI in a real-world clinical setting. Although it is conceptually similar to the 1-question SRH, the PSI is a 45-item PROM designed to capture quality of life and specific symptoms by body system. Future studies will compare the PSI to multi-item PROMs.
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spelling pubmed-96730042022-11-19 Validity of the Parsley Symptom Index—an Electronic Patient-Reported Outcomes Measure Designed for Telehealth: Prospective Cohort Study Williams, Hants Steinberg, Sarah Leon, Kendall O’Shea, Catherine Berzin, Robin Hagg, Heather JMIR Form Res Original Paper BACKGROUND: Electronic patient-reported outcomes measures (e-PROMs) are a valuable tool for the monitoring and management of chronic conditions over time. However, there are few validated tools available that capture symptoms across body systems in telehealth settings. The Parsley Symptom Index (PSI) is a recently developed symptom assessment for adults with chronic disease in telehealth settings. A previous study demonstrated the feasibility and acceptability of the PSI in a clinical telehealth setting. OBJECTIVE: The purpose of this study was to assess convergent validity between the PSI and the self-rated health (SRH) item. METHODS: This prospective cohort study took place from January 15, 2021, to December 15, 2021, among a sample of 10,519 adult patients at Parsley Health, a subscription-based holistic medical practice. The PSI and the SRH were completed by patients via an online portal. The association between the PSI and SRH was assessed via polyserial and polychoric correlations, while weighted κ scores provided information related to agreement between the PSI and SRH. RESULTS: From 22,748 responses, there were moderate levels of association (polyserial r=0.51; polychoric r=0.52) and agreement (weighted κ=0.46) between the PSI and SRH. In total, 74.13% (n=16,865) of responses between the PSI and SRH were relatively congruent while 36.17% (n=8229) were literally congruent. CONCLUSIONS: The PSI demonstrates convergent validity with the SRH for adults with chronic disease in a telehealth setting. This finding further supports the validation of the PSI in a real-world clinical setting. Although it is conceptually similar to the 1-question SRH, the PSI is a 45-item PROM designed to capture quality of life and specific symptoms by body system. Future studies will compare the PSI to multi-item PROMs. JMIR Publications 2022-11-03 /pmc/articles/PMC9673004/ /pubmed/36326802 http://dx.doi.org/10.2196/40063 Text en ©Hants Williams, Sarah Steinberg, Kendall Leon, Catherine O’Shea, Robin Berzin, Heather Hagg. Originally published in JMIR Formative Research (https://formative.jmir.org), 03.11.2022. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on https://formative.jmir.org, as well as this copyright and license information must be included.
spellingShingle Original Paper
Williams, Hants
Steinberg, Sarah
Leon, Kendall
O’Shea, Catherine
Berzin, Robin
Hagg, Heather
Validity of the Parsley Symptom Index—an Electronic Patient-Reported Outcomes Measure Designed for Telehealth: Prospective Cohort Study
title Validity of the Parsley Symptom Index—an Electronic Patient-Reported Outcomes Measure Designed for Telehealth: Prospective Cohort Study
title_full Validity of the Parsley Symptom Index—an Electronic Patient-Reported Outcomes Measure Designed for Telehealth: Prospective Cohort Study
title_fullStr Validity of the Parsley Symptom Index—an Electronic Patient-Reported Outcomes Measure Designed for Telehealth: Prospective Cohort Study
title_full_unstemmed Validity of the Parsley Symptom Index—an Electronic Patient-Reported Outcomes Measure Designed for Telehealth: Prospective Cohort Study
title_short Validity of the Parsley Symptom Index—an Electronic Patient-Reported Outcomes Measure Designed for Telehealth: Prospective Cohort Study
title_sort validity of the parsley symptom index—an electronic patient-reported outcomes measure designed for telehealth: prospective cohort study
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9673004/
https://www.ncbi.nlm.nih.gov/pubmed/36326802
http://dx.doi.org/10.2196/40063
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