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The multidimensional legal nature of personal genomic sequence data: A South African perspective
This article provides a comprehensive analysis of the various dimensions in South African law applicable to personal genomic sequence data. This analysis includes property rights, personality rights, and intellectual property rights. Importantly, the under-investigated question of whether personal g...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9681828/ https://www.ncbi.nlm.nih.gov/pubmed/36437942 http://dx.doi.org/10.3389/fgene.2022.997595 |
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author | Thaldar, Donrich W. Townsend, Beverley A. Donnelly, Dusty-Lee Botes, Marietjie Gooden, Amy van Harmelen, Joanne Shozi, Bonginkosi |
author_facet | Thaldar, Donrich W. Townsend, Beverley A. Donnelly, Dusty-Lee Botes, Marietjie Gooden, Amy van Harmelen, Joanne Shozi, Bonginkosi |
author_sort | Thaldar, Donrich W. |
collection | PubMed |
description | This article provides a comprehensive analysis of the various dimensions in South African law applicable to personal genomic sequence data. This analysis includes property rights, personality rights, and intellectual property rights. Importantly, the under-investigated question of whether personal genomic sequence data are capable of being owned is investigated and answered affirmatively. In addition to being susceptible of ownership, personal genomic sequence data are also the object of data subjects’ personality rights, and can also be the object of intellectual property rights: whether on their own qua trade secret or as part of a patented invention or copyrighted dataset. It is shown that personality rights constrain ownership rights, while the exploitation of intellectual property rights is constrained by both personality rights and ownership rights. All of these rights applicable to personal genomic sequence data should be acknowledged and harmonized for such data to be used effectively. |
format | Online Article Text |
id | pubmed-9681828 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Frontiers Media S.A. |
record_format | MEDLINE/PubMed |
spelling | pubmed-96818282022-11-24 The multidimensional legal nature of personal genomic sequence data: A South African perspective Thaldar, Donrich W. Townsend, Beverley A. Donnelly, Dusty-Lee Botes, Marietjie Gooden, Amy van Harmelen, Joanne Shozi, Bonginkosi Front Genet Genetics This article provides a comprehensive analysis of the various dimensions in South African law applicable to personal genomic sequence data. This analysis includes property rights, personality rights, and intellectual property rights. Importantly, the under-investigated question of whether personal genomic sequence data are capable of being owned is investigated and answered affirmatively. In addition to being susceptible of ownership, personal genomic sequence data are also the object of data subjects’ personality rights, and can also be the object of intellectual property rights: whether on their own qua trade secret or as part of a patented invention or copyrighted dataset. It is shown that personality rights constrain ownership rights, while the exploitation of intellectual property rights is constrained by both personality rights and ownership rights. All of these rights applicable to personal genomic sequence data should be acknowledged and harmonized for such data to be used effectively. Frontiers Media S.A. 2022-11-09 /pmc/articles/PMC9681828/ /pubmed/36437942 http://dx.doi.org/10.3389/fgene.2022.997595 Text en Copyright © 2022 Thaldar, Townsend, Donnelly, Botes, Gooden, van Harmelen and Shozi. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
spellingShingle | Genetics Thaldar, Donrich W. Townsend, Beverley A. Donnelly, Dusty-Lee Botes, Marietjie Gooden, Amy van Harmelen, Joanne Shozi, Bonginkosi The multidimensional legal nature of personal genomic sequence data: A South African perspective |
title | The multidimensional legal nature of personal genomic sequence data: A South African perspective |
title_full | The multidimensional legal nature of personal genomic sequence data: A South African perspective |
title_fullStr | The multidimensional legal nature of personal genomic sequence data: A South African perspective |
title_full_unstemmed | The multidimensional legal nature of personal genomic sequence data: A South African perspective |
title_short | The multidimensional legal nature of personal genomic sequence data: A South African perspective |
title_sort | multidimensional legal nature of personal genomic sequence data: a south african perspective |
topic | Genetics |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9681828/ https://www.ncbi.nlm.nih.gov/pubmed/36437942 http://dx.doi.org/10.3389/fgene.2022.997595 |
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