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The multidimensional legal nature of personal genomic sequence data: A South African perspective

This article provides a comprehensive analysis of the various dimensions in South African law applicable to personal genomic sequence data. This analysis includes property rights, personality rights, and intellectual property rights. Importantly, the under-investigated question of whether personal g...

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Autores principales: Thaldar, Donrich W., Townsend, Beverley A., Donnelly, Dusty-Lee, Botes, Marietjie, Gooden, Amy, van Harmelen, Joanne, Shozi, Bonginkosi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9681828/
https://www.ncbi.nlm.nih.gov/pubmed/36437942
http://dx.doi.org/10.3389/fgene.2022.997595
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author Thaldar, Donrich W.
Townsend, Beverley A.
Donnelly, Dusty-Lee
Botes, Marietjie
Gooden, Amy
van Harmelen, Joanne
Shozi, Bonginkosi
author_facet Thaldar, Donrich W.
Townsend, Beverley A.
Donnelly, Dusty-Lee
Botes, Marietjie
Gooden, Amy
van Harmelen, Joanne
Shozi, Bonginkosi
author_sort Thaldar, Donrich W.
collection PubMed
description This article provides a comprehensive analysis of the various dimensions in South African law applicable to personal genomic sequence data. This analysis includes property rights, personality rights, and intellectual property rights. Importantly, the under-investigated question of whether personal genomic sequence data are capable of being owned is investigated and answered affirmatively. In addition to being susceptible of ownership, personal genomic sequence data are also the object of data subjects’ personality rights, and can also be the object of intellectual property rights: whether on their own qua trade secret or as part of a patented invention or copyrighted dataset. It is shown that personality rights constrain ownership rights, while the exploitation of intellectual property rights is constrained by both personality rights and ownership rights. All of these rights applicable to personal genomic sequence data should be acknowledged and harmonized for such data to be used effectively.
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spelling pubmed-96818282022-11-24 The multidimensional legal nature of personal genomic sequence data: A South African perspective Thaldar, Donrich W. Townsend, Beverley A. Donnelly, Dusty-Lee Botes, Marietjie Gooden, Amy van Harmelen, Joanne Shozi, Bonginkosi Front Genet Genetics This article provides a comprehensive analysis of the various dimensions in South African law applicable to personal genomic sequence data. This analysis includes property rights, personality rights, and intellectual property rights. Importantly, the under-investigated question of whether personal genomic sequence data are capable of being owned is investigated and answered affirmatively. In addition to being susceptible of ownership, personal genomic sequence data are also the object of data subjects’ personality rights, and can also be the object of intellectual property rights: whether on their own qua trade secret or as part of a patented invention or copyrighted dataset. It is shown that personality rights constrain ownership rights, while the exploitation of intellectual property rights is constrained by both personality rights and ownership rights. All of these rights applicable to personal genomic sequence data should be acknowledged and harmonized for such data to be used effectively. Frontiers Media S.A. 2022-11-09 /pmc/articles/PMC9681828/ /pubmed/36437942 http://dx.doi.org/10.3389/fgene.2022.997595 Text en Copyright © 2022 Thaldar, Townsend, Donnelly, Botes, Gooden, van Harmelen and Shozi. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Genetics
Thaldar, Donrich W.
Townsend, Beverley A.
Donnelly, Dusty-Lee
Botes, Marietjie
Gooden, Amy
van Harmelen, Joanne
Shozi, Bonginkosi
The multidimensional legal nature of personal genomic sequence data: A South African perspective
title The multidimensional legal nature of personal genomic sequence data: A South African perspective
title_full The multidimensional legal nature of personal genomic sequence data: A South African perspective
title_fullStr The multidimensional legal nature of personal genomic sequence data: A South African perspective
title_full_unstemmed The multidimensional legal nature of personal genomic sequence data: A South African perspective
title_short The multidimensional legal nature of personal genomic sequence data: A South African perspective
title_sort multidimensional legal nature of personal genomic sequence data: a south african perspective
topic Genetics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9681828/
https://www.ncbi.nlm.nih.gov/pubmed/36437942
http://dx.doi.org/10.3389/fgene.2022.997595
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