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Connected Bradford:  a Whole System Data Linkage Accelerator

The richness of linked population data provides exciting opportunities to understand local health needs, identify and predict those in most need of support and evaluate health interventions. There has been extensive investment to unlock the potential of clinical data for health research in the UK. H...

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Autores principales: Sohal, Kuldeep, Mason, Dan, Birkinshaw, John, West, Jane, McEachan, Rosemary R.C., Elshehaly, Mai, Cooper, Duncan, Shore, Rob, McCooe, Michael, Lawton, Tom, Mon-Williams, Mark, Sheldon, Trevor, Bates, Chris, Wood, Megan, Wright, John
Formato: Online Artículo Texto
Lenguaje:English
Publicado: F1000 Research Limited 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9682213/
https://www.ncbi.nlm.nih.gov/pubmed/36466951
http://dx.doi.org/10.12688/wellcomeopenres.17526.2
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author Sohal, Kuldeep
Mason, Dan
Birkinshaw, John
West, Jane
McEachan, Rosemary R.C.
Elshehaly, Mai
Cooper, Duncan
Shore, Rob
McCooe, Michael
Lawton, Tom
Mon-Williams, Mark
Sheldon, Trevor
Bates, Chris
Wood, Megan
Wright, John
author_facet Sohal, Kuldeep
Mason, Dan
Birkinshaw, John
West, Jane
McEachan, Rosemary R.C.
Elshehaly, Mai
Cooper, Duncan
Shore, Rob
McCooe, Michael
Lawton, Tom
Mon-Williams, Mark
Sheldon, Trevor
Bates, Chris
Wood, Megan
Wright, John
author_sort Sohal, Kuldeep
collection PubMed
description The richness of linked population data provides exciting opportunities to understand local health needs, identify and predict those in most need of support and evaluate health interventions. There has been extensive investment to unlock the potential of clinical data for health research in the UK. However, most of the determinants of our health are social, economic, education, environmental, housing, food systems and are influenced by local authorities. The Connected Bradford Whole System Data Linkage Accelerator was set up to link health, education, social care, environmental and other local government data to drive learning health systems, prevention and population health management. Data spanning a period of over forty years has been linked for 800,000 individuals using the pseudonymised NHS number and other data variables. This prospective data collection captures near real time activity. This paper describes the dataset and our Connected Bradford Whole System Data Accelerator Framework that covers public engagement; practitioner and policy integration; legal and ethical approvals; information governance; technicalities of data linkage; data curation and guardianship; data validity and visualisation.
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spelling pubmed-96822132022-12-01 Connected Bradford:  a Whole System Data Linkage Accelerator Sohal, Kuldeep Mason, Dan Birkinshaw, John West, Jane McEachan, Rosemary R.C. Elshehaly, Mai Cooper, Duncan Shore, Rob McCooe, Michael Lawton, Tom Mon-Williams, Mark Sheldon, Trevor Bates, Chris Wood, Megan Wright, John Wellcome Open Res Open Letter The richness of linked population data provides exciting opportunities to understand local health needs, identify and predict those in most need of support and evaluate health interventions. There has been extensive investment to unlock the potential of clinical data for health research in the UK. However, most of the determinants of our health are social, economic, education, environmental, housing, food systems and are influenced by local authorities. The Connected Bradford Whole System Data Linkage Accelerator was set up to link health, education, social care, environmental and other local government data to drive learning health systems, prevention and population health management. Data spanning a period of over forty years has been linked for 800,000 individuals using the pseudonymised NHS number and other data variables. This prospective data collection captures near real time activity. This paper describes the dataset and our Connected Bradford Whole System Data Accelerator Framework that covers public engagement; practitioner and policy integration; legal and ethical approvals; information governance; technicalities of data linkage; data curation and guardianship; data validity and visualisation. F1000 Research Limited 2022-11-07 /pmc/articles/PMC9682213/ /pubmed/36466951 http://dx.doi.org/10.12688/wellcomeopenres.17526.2 Text en Copyright: © 2022 Sohal K et al. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Open Letter
Sohal, Kuldeep
Mason, Dan
Birkinshaw, John
West, Jane
McEachan, Rosemary R.C.
Elshehaly, Mai
Cooper, Duncan
Shore, Rob
McCooe, Michael
Lawton, Tom
Mon-Williams, Mark
Sheldon, Trevor
Bates, Chris
Wood, Megan
Wright, John
Connected Bradford:  a Whole System Data Linkage Accelerator
title Connected Bradford:  a Whole System Data Linkage Accelerator
title_full Connected Bradford:  a Whole System Data Linkage Accelerator
title_fullStr Connected Bradford:  a Whole System Data Linkage Accelerator
title_full_unstemmed Connected Bradford:  a Whole System Data Linkage Accelerator
title_short Connected Bradford:  a Whole System Data Linkage Accelerator
title_sort connected bradford:  a whole system data linkage accelerator
topic Open Letter
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9682213/
https://www.ncbi.nlm.nih.gov/pubmed/36466951
http://dx.doi.org/10.12688/wellcomeopenres.17526.2
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