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Can genomic research make a useful contribution to social policy?
As genetic research into outcomes beyond health gathers pace, largely through the use of genome-wide association studies, interest from policy-makers has grown. In the last year, two UK reports have explored the policy implications of genomic research, one from the UK Government Office for Science a...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
The Royal Society
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9682296/ https://www.ncbi.nlm.nih.gov/pubmed/36425516 http://dx.doi.org/10.1098/rsos.220873 |
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author | Asbury, Kathryn McBride, Tom Bawn, Rosie |
author_facet | Asbury, Kathryn McBride, Tom Bawn, Rosie |
author_sort | Asbury, Kathryn |
collection | PubMed |
description | As genetic research into outcomes beyond health gathers pace, largely through the use of genome-wide association studies, interest from policy-makers has grown. In the last year, two UK reports have explored the policy implications of genomic research, one from the UK Government Office for Science and one from the Early Intervention Foundation. In this article, we explore areas of consensus between these two reports and use them to propose priorities for policy-makers as we prepare for what some have termed a ‘genetic revolution’. Both reports agree on two clear recommendations for science and policy communities. One of these relates to public education and engagement, and the other to ensuring that genomic databases are ancestrally diverse. Both reports agree that—even if it is found to be a viable and ethical idea in the medium-term future—DNA data should not be incorporated into social policy before these two issues have been comprehensively addressed. In the article, we argue that scientists are taking the lead on tackling the diversity deficit but that there is a clear role for policy-makers to play in addressing low genetic literacy in society, and that this is a matter of urgency. |
format | Online Article Text |
id | pubmed-9682296 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | The Royal Society |
record_format | MEDLINE/PubMed |
spelling | pubmed-96822962022-11-23 Can genomic research make a useful contribution to social policy? Asbury, Kathryn McBride, Tom Bawn, Rosie R Soc Open Sci Science, Society and Policy As genetic research into outcomes beyond health gathers pace, largely through the use of genome-wide association studies, interest from policy-makers has grown. In the last year, two UK reports have explored the policy implications of genomic research, one from the UK Government Office for Science and one from the Early Intervention Foundation. In this article, we explore areas of consensus between these two reports and use them to propose priorities for policy-makers as we prepare for what some have termed a ‘genetic revolution’. Both reports agree on two clear recommendations for science and policy communities. One of these relates to public education and engagement, and the other to ensuring that genomic databases are ancestrally diverse. Both reports agree that—even if it is found to be a viable and ethical idea in the medium-term future—DNA data should not be incorporated into social policy before these two issues have been comprehensively addressed. In the article, we argue that scientists are taking the lead on tackling the diversity deficit but that there is a clear role for policy-makers to play in addressing low genetic literacy in society, and that this is a matter of urgency. The Royal Society 2022-11-23 /pmc/articles/PMC9682296/ /pubmed/36425516 http://dx.doi.org/10.1098/rsos.220873 Text en © 2022 The Authors. https://creativecommons.org/licenses/by/4.0/Published by the Royal Society under the terms of the Creative Commons Attribution License http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, provided the original author and source are credited. |
spellingShingle | Science, Society and Policy Asbury, Kathryn McBride, Tom Bawn, Rosie Can genomic research make a useful contribution to social policy? |
title | Can genomic research make a useful contribution to social policy? |
title_full | Can genomic research make a useful contribution to social policy? |
title_fullStr | Can genomic research make a useful contribution to social policy? |
title_full_unstemmed | Can genomic research make a useful contribution to social policy? |
title_short | Can genomic research make a useful contribution to social policy? |
title_sort | can genomic research make a useful contribution to social policy? |
topic | Science, Society and Policy |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9682296/ https://www.ncbi.nlm.nih.gov/pubmed/36425516 http://dx.doi.org/10.1098/rsos.220873 |
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