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Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes

Family caregivers of patients with cancer provide substantial physical, emotional, and functional care throughout the cancer trajectory. While caregiving can create employment and financial challenges, there is insufficient evidence to inform the development of caregiver-reported outcomes (CROs) tha...

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Autores principales: Howard, A. Fuchsia, Lynch, Kelsey, Thorne, Sally, Porcino, Antony, Lambert, Leah, De Vera, Mary A., Wolff, Angela C., Hedges, Penelope, Beck, Scott M., Torrejón, María-José, Kelly, Mary T., McKenzie, Michael
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9689650/
https://www.ncbi.nlm.nih.gov/pubmed/36354706
http://dx.doi.org/10.3390/curroncol29110646
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author Howard, A. Fuchsia
Lynch, Kelsey
Thorne, Sally
Porcino, Antony
Lambert, Leah
De Vera, Mary A.
Wolff, Angela C.
Hedges, Penelope
Beck, Scott M.
Torrejón, María-José
Kelly, Mary T.
McKenzie, Michael
author_facet Howard, A. Fuchsia
Lynch, Kelsey
Thorne, Sally
Porcino, Antony
Lambert, Leah
De Vera, Mary A.
Wolff, Angela C.
Hedges, Penelope
Beck, Scott M.
Torrejón, María-José
Kelly, Mary T.
McKenzie, Michael
author_sort Howard, A. Fuchsia
collection PubMed
description Family caregivers of patients with cancer provide substantial physical, emotional, and functional care throughout the cancer trajectory. While caregiving can create employment and financial challenges, there is insufficient evidence to inform the development of caregiver-reported outcomes (CROs) that assess these experiences. The study purpose was to describe the occupational and financial consequences that were important to family caregivers of a patient with colorectal cancer (CRC) in the context of public health care, which represent potential considerations for CROs. In this qualitative Interpretive Description study, we analyzed interview data from 78 participants (25 caregivers, 37 patients, and 16 healthcare providers). Our findings point to temporary and long-term occupational and financial setbacks in the context of CRC. Caregiving for a person with CRC involved managing occupational implications, including (1) revamping employment arrangements, and (2) juggling work, family, and household demands. Caregiver financial struggles included (1) responding to financial demands at various stages of life, and (2) facing the spectre of lifelong expenses. Study findings offer novel insight into the cancer-related occupational and financial challenges facing caregivers, despite government-funded universal health care. Further research is warranted to develop CRO measures that assess the multifaceted nature of these challenges.
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spelling pubmed-96896502022-11-25 Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes Howard, A. Fuchsia Lynch, Kelsey Thorne, Sally Porcino, Antony Lambert, Leah De Vera, Mary A. Wolff, Angela C. Hedges, Penelope Beck, Scott M. Torrejón, María-José Kelly, Mary T. McKenzie, Michael Curr Oncol Article Family caregivers of patients with cancer provide substantial physical, emotional, and functional care throughout the cancer trajectory. While caregiving can create employment and financial challenges, there is insufficient evidence to inform the development of caregiver-reported outcomes (CROs) that assess these experiences. The study purpose was to describe the occupational and financial consequences that were important to family caregivers of a patient with colorectal cancer (CRC) in the context of public health care, which represent potential considerations for CROs. In this qualitative Interpretive Description study, we analyzed interview data from 78 participants (25 caregivers, 37 patients, and 16 healthcare providers). Our findings point to temporary and long-term occupational and financial setbacks in the context of CRC. Caregiving for a person with CRC involved managing occupational implications, including (1) revamping employment arrangements, and (2) juggling work, family, and household demands. Caregiver financial struggles included (1) responding to financial demands at various stages of life, and (2) facing the spectre of lifelong expenses. Study findings offer novel insight into the cancer-related occupational and financial challenges facing caregivers, despite government-funded universal health care. Further research is warranted to develop CRO measures that assess the multifaceted nature of these challenges. MDPI 2022-10-29 /pmc/articles/PMC9689650/ /pubmed/36354706 http://dx.doi.org/10.3390/curroncol29110646 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Howard, A. Fuchsia
Lynch, Kelsey
Thorne, Sally
Porcino, Antony
Lambert, Leah
De Vera, Mary A.
Wolff, Angela C.
Hedges, Penelope
Beck, Scott M.
Torrejón, María-José
Kelly, Mary T.
McKenzie, Michael
Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes
title Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes
title_full Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes
title_fullStr Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes
title_full_unstemmed Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes
title_short Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes
title_sort occupational and financial setbacks in caregivers of people with colorectal cancer: considerations for caregiver-reported outcomes
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9689650/
https://www.ncbi.nlm.nih.gov/pubmed/36354706
http://dx.doi.org/10.3390/curroncol29110646
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