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Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations
Awareness of Human Immunodeficiency Virus (HIV) status improves health outcomes in children living with HIV, yet caregivers often delay disclosure. This qualitative investigation explored, through observation, how 30 caregivers responded to a HIV Disclosure study conducted between 2017 and 2020 at C...
Autores principales: | , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9707749/ https://www.ncbi.nlm.nih.gov/pubmed/36445899 http://dx.doi.org/10.1371/journal.pone.0277202 |
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author | Joyce, Celeste Ramsammy, Candice Galvin, Lisa Leshabane, Given Liberty, Afaaf Otwombe, Kennedy Buckley, Janice Milovanovic, Minja Violari, Avy |
author_facet | Joyce, Celeste Ramsammy, Candice Galvin, Lisa Leshabane, Given Liberty, Afaaf Otwombe, Kennedy Buckley, Janice Milovanovic, Minja Violari, Avy |
author_sort | Joyce, Celeste |
collection | PubMed |
description | Awareness of Human Immunodeficiency Virus (HIV) status improves health outcomes in children living with HIV, yet caregivers often delay disclosure. This qualitative investigation explored, through observation, how 30 caregivers responded to a HIV Disclosure study conducted between 2017 and 2020 at Chris Hani Baragwanath Academic Hospital, Soweto, South Africa. Caregivers were assisted in disclosing to their children, aged 7–13 years; followed by a sub-sample of caregivers providing in-depth interviews to elaborate on findings.1) Barriers to disclosure included: caregivers being ill equipped, the fear of negative consequences and children considered lacking emotional or cognitive readiness. 2) Deflecting diagnosis from their children and the need for medication, motivated caregivers to disclosure. 3) Apprehension was evident during disclosure; however, overall disclosure was a positive experience with the support of the healthcare providers. These results highlight the significant role healthcare providers’ play in supporting caregivers through the disclosure process. |
format | Online Article Text |
id | pubmed-9707749 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Public Library of Science |
record_format | MEDLINE/PubMed |
spelling | pubmed-97077492022-11-30 Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations Joyce, Celeste Ramsammy, Candice Galvin, Lisa Leshabane, Given Liberty, Afaaf Otwombe, Kennedy Buckley, Janice Milovanovic, Minja Violari, Avy PLoS One Research Article Awareness of Human Immunodeficiency Virus (HIV) status improves health outcomes in children living with HIV, yet caregivers often delay disclosure. This qualitative investigation explored, through observation, how 30 caregivers responded to a HIV Disclosure study conducted between 2017 and 2020 at Chris Hani Baragwanath Academic Hospital, Soweto, South Africa. Caregivers were assisted in disclosing to their children, aged 7–13 years; followed by a sub-sample of caregivers providing in-depth interviews to elaborate on findings.1) Barriers to disclosure included: caregivers being ill equipped, the fear of negative consequences and children considered lacking emotional or cognitive readiness. 2) Deflecting diagnosis from their children and the need for medication, motivated caregivers to disclosure. 3) Apprehension was evident during disclosure; however, overall disclosure was a positive experience with the support of the healthcare providers. These results highlight the significant role healthcare providers’ play in supporting caregivers through the disclosure process. Public Library of Science 2022-11-29 /pmc/articles/PMC9707749/ /pubmed/36445899 http://dx.doi.org/10.1371/journal.pone.0277202 Text en © 2022 Joyce et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. |
spellingShingle | Research Article Joyce, Celeste Ramsammy, Candice Galvin, Lisa Leshabane, Given Liberty, Afaaf Otwombe, Kennedy Buckley, Janice Milovanovic, Minja Violari, Avy Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations |
title | Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations |
title_full | Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations |
title_fullStr | Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations |
title_full_unstemmed | Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations |
title_short | Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations |
title_sort | experiences of south african caregivers disclosing to their children living with hiv: qualitative investigations |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9707749/ https://www.ncbi.nlm.nih.gov/pubmed/36445899 http://dx.doi.org/10.1371/journal.pone.0277202 |
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