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Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations

Awareness of Human Immunodeficiency Virus (HIV) status improves health outcomes in children living with HIV, yet caregivers often delay disclosure. This qualitative investigation explored, through observation, how 30 caregivers responded to a HIV Disclosure study conducted between 2017 and 2020 at C...

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Autores principales: Joyce, Celeste, Ramsammy, Candice, Galvin, Lisa, Leshabane, Given, Liberty, Afaaf, Otwombe, Kennedy, Buckley, Janice, Milovanovic, Minja, Violari, Avy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9707749/
https://www.ncbi.nlm.nih.gov/pubmed/36445899
http://dx.doi.org/10.1371/journal.pone.0277202
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author Joyce, Celeste
Ramsammy, Candice
Galvin, Lisa
Leshabane, Given
Liberty, Afaaf
Otwombe, Kennedy
Buckley, Janice
Milovanovic, Minja
Violari, Avy
author_facet Joyce, Celeste
Ramsammy, Candice
Galvin, Lisa
Leshabane, Given
Liberty, Afaaf
Otwombe, Kennedy
Buckley, Janice
Milovanovic, Minja
Violari, Avy
author_sort Joyce, Celeste
collection PubMed
description Awareness of Human Immunodeficiency Virus (HIV) status improves health outcomes in children living with HIV, yet caregivers often delay disclosure. This qualitative investigation explored, through observation, how 30 caregivers responded to a HIV Disclosure study conducted between 2017 and 2020 at Chris Hani Baragwanath Academic Hospital, Soweto, South Africa. Caregivers were assisted in disclosing to their children, aged 7–13 years; followed by a sub-sample of caregivers providing in-depth interviews to elaborate on findings.1) Barriers to disclosure included: caregivers being ill equipped, the fear of negative consequences and children considered lacking emotional or cognitive readiness. 2) Deflecting diagnosis from their children and the need for medication, motivated caregivers to disclosure. 3) Apprehension was evident during disclosure; however, overall disclosure was a positive experience with the support of the healthcare providers. These results highlight the significant role healthcare providers’ play in supporting caregivers through the disclosure process.
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spelling pubmed-97077492022-11-30 Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations Joyce, Celeste Ramsammy, Candice Galvin, Lisa Leshabane, Given Liberty, Afaaf Otwombe, Kennedy Buckley, Janice Milovanovic, Minja Violari, Avy PLoS One Research Article Awareness of Human Immunodeficiency Virus (HIV) status improves health outcomes in children living with HIV, yet caregivers often delay disclosure. This qualitative investigation explored, through observation, how 30 caregivers responded to a HIV Disclosure study conducted between 2017 and 2020 at Chris Hani Baragwanath Academic Hospital, Soweto, South Africa. Caregivers were assisted in disclosing to their children, aged 7–13 years; followed by a sub-sample of caregivers providing in-depth interviews to elaborate on findings.1) Barriers to disclosure included: caregivers being ill equipped, the fear of negative consequences and children considered lacking emotional or cognitive readiness. 2) Deflecting diagnosis from their children and the need for medication, motivated caregivers to disclosure. 3) Apprehension was evident during disclosure; however, overall disclosure was a positive experience with the support of the healthcare providers. These results highlight the significant role healthcare providers’ play in supporting caregivers through the disclosure process. Public Library of Science 2022-11-29 /pmc/articles/PMC9707749/ /pubmed/36445899 http://dx.doi.org/10.1371/journal.pone.0277202 Text en © 2022 Joyce et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Research Article
Joyce, Celeste
Ramsammy, Candice
Galvin, Lisa
Leshabane, Given
Liberty, Afaaf
Otwombe, Kennedy
Buckley, Janice
Milovanovic, Minja
Violari, Avy
Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations
title Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations
title_full Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations
title_fullStr Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations
title_full_unstemmed Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations
title_short Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations
title_sort experiences of south african caregivers disclosing to their children living with hiv: qualitative investigations
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9707749/
https://www.ncbi.nlm.nih.gov/pubmed/36445899
http://dx.doi.org/10.1371/journal.pone.0277202
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