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STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol

INTRODUCTION: As mortality rates from COVID-19 disease fall, the high prevalence of long-term sequelae (Long COVID) is becoming increasingly widespread, challenging healthcare systems globally. Traditional pathways of care for Long Term Conditions (LTCs) have tended to be managed by disease-specific...

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Autores principales: van der Feltz-Cornelis, Christina M., Sweetman, Jennifer, Allsopp, Gail, Attree, Emily, Crooks, Michael G., Cuthbertson, Daniel J., Forshaw, Denise, Gabbay, Mark, Green, Angela, Heightman, Melissa, Hillman, Toby, Hishmeh, Lyth, Khunti, Kamlesh, Lip, Gregory Y. H., Lorgelly, Paula, Montgomery, Hugh, Strain, W. David, Wall, Emma, Watkins, Caroline, Williams, Nefyn, Wootton, Dan G., Banerjee, Amitava
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9710789/
https://www.ncbi.nlm.nih.gov/pubmed/36449461
http://dx.doi.org/10.1371/journal.pone.0277936
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author van der Feltz-Cornelis, Christina M.
Sweetman, Jennifer
Allsopp, Gail
Attree, Emily
Crooks, Michael G.
Cuthbertson, Daniel J.
Forshaw, Denise
Gabbay, Mark
Green, Angela
Heightman, Melissa
Hillman, Toby
Hishmeh, Lyth
Khunti, Kamlesh
Lip, Gregory Y. H.
Lorgelly, Paula
Montgomery, Hugh
Strain, W. David
Wall, Emma
Watkins, Caroline
Williams, Nefyn
Wootton, Dan G.
Banerjee, Amitava
author_facet van der Feltz-Cornelis, Christina M.
Sweetman, Jennifer
Allsopp, Gail
Attree, Emily
Crooks, Michael G.
Cuthbertson, Daniel J.
Forshaw, Denise
Gabbay, Mark
Green, Angela
Heightman, Melissa
Hillman, Toby
Hishmeh, Lyth
Khunti, Kamlesh
Lip, Gregory Y. H.
Lorgelly, Paula
Montgomery, Hugh
Strain, W. David
Wall, Emma
Watkins, Caroline
Williams, Nefyn
Wootton, Dan G.
Banerjee, Amitava
author_sort van der Feltz-Cornelis, Christina M.
collection PubMed
description INTRODUCTION: As mortality rates from COVID-19 disease fall, the high prevalence of long-term sequelae (Long COVID) is becoming increasingly widespread, challenging healthcare systems globally. Traditional pathways of care for Long Term Conditions (LTCs) have tended to be managed by disease-specific specialties, an approach that has been ineffective in delivering care for patients with multi-morbidity. The multi-system nature of Long COVID and its impact on physical and psychological health demands a more effective model of holistic, integrated care. The evolution of integrated care systems (ICSs) in the UK presents an important opportunity to explore areas of mutual benefit to LTC, multi-morbidity and Long COVID care. There may be benefits in comparing and contrasting ICPs for Long COVID with ICPs for other LTCs. METHODS AND ANALYSIS: This study aims to evaluate health services requirements for ICPs for Long COVID and their applicability to other LTCs including multi-morbidity and the overlap with medically not yet explained symptoms (MNYES). The study will follow a Delphi design and involve an expert panel of stakeholders including people with lived experience, as well as clinicians with expertise in Long COVID and other LTCs. Study processes will include expert panel and moderator panel meetings, surveys, and interviews. The Delphi process is part of the overall STIMULATE-ICP programme, aimed at improving integrated care for people with Long COVID. ETHICS AND DISSEMINATION: Ethical approval for this Delphi study has been obtained (Research Governance Board of the University of York) as have approvals for the other STIMULATE-ICP studies. Study outcomes are likely to inform policy for ICPs across LTCs. Results will be disseminated through scientific publication, conference presentation and communications with patients and stakeholders involved in care of other LTCs and Long COVID. REGISTRATION: Researchregistry: https://www.researchregistry.com/browse-the-registry#home/registrationdetails/6246bfeeeaaed6001f08dadc/.
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spelling pubmed-97107892022-12-01 STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol van der Feltz-Cornelis, Christina M. Sweetman, Jennifer Allsopp, Gail Attree, Emily Crooks, Michael G. Cuthbertson, Daniel J. Forshaw, Denise Gabbay, Mark Green, Angela Heightman, Melissa Hillman, Toby Hishmeh, Lyth Khunti, Kamlesh Lip, Gregory Y. H. Lorgelly, Paula Montgomery, Hugh Strain, W. David Wall, Emma Watkins, Caroline Williams, Nefyn Wootton, Dan G. Banerjee, Amitava PLoS One Study Protocol INTRODUCTION: As mortality rates from COVID-19 disease fall, the high prevalence of long-term sequelae (Long COVID) is becoming increasingly widespread, challenging healthcare systems globally. Traditional pathways of care for Long Term Conditions (LTCs) have tended to be managed by disease-specific specialties, an approach that has been ineffective in delivering care for patients with multi-morbidity. The multi-system nature of Long COVID and its impact on physical and psychological health demands a more effective model of holistic, integrated care. The evolution of integrated care systems (ICSs) in the UK presents an important opportunity to explore areas of mutual benefit to LTC, multi-morbidity and Long COVID care. There may be benefits in comparing and contrasting ICPs for Long COVID with ICPs for other LTCs. METHODS AND ANALYSIS: This study aims to evaluate health services requirements for ICPs for Long COVID and their applicability to other LTCs including multi-morbidity and the overlap with medically not yet explained symptoms (MNYES). The study will follow a Delphi design and involve an expert panel of stakeholders including people with lived experience, as well as clinicians with expertise in Long COVID and other LTCs. Study processes will include expert panel and moderator panel meetings, surveys, and interviews. The Delphi process is part of the overall STIMULATE-ICP programme, aimed at improving integrated care for people with Long COVID. ETHICS AND DISSEMINATION: Ethical approval for this Delphi study has been obtained (Research Governance Board of the University of York) as have approvals for the other STIMULATE-ICP studies. Study outcomes are likely to inform policy for ICPs across LTCs. Results will be disseminated through scientific publication, conference presentation and communications with patients and stakeholders involved in care of other LTCs and Long COVID. REGISTRATION: Researchregistry: https://www.researchregistry.com/browse-the-registry#home/registrationdetails/6246bfeeeaaed6001f08dadc/. Public Library of Science 2022-11-30 /pmc/articles/PMC9710789/ /pubmed/36449461 http://dx.doi.org/10.1371/journal.pone.0277936 Text en © 2022 van der Feltz-Cornelis et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Study Protocol
van der Feltz-Cornelis, Christina M.
Sweetman, Jennifer
Allsopp, Gail
Attree, Emily
Crooks, Michael G.
Cuthbertson, Daniel J.
Forshaw, Denise
Gabbay, Mark
Green, Angela
Heightman, Melissa
Hillman, Toby
Hishmeh, Lyth
Khunti, Kamlesh
Lip, Gregory Y. H.
Lorgelly, Paula
Montgomery, Hugh
Strain, W. David
Wall, Emma
Watkins, Caroline
Williams, Nefyn
Wootton, Dan G.
Banerjee, Amitava
STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol
title STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol
title_full STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol
title_fullStr STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol
title_full_unstemmed STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol
title_short STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol
title_sort stimulate-icp-delphi (symptoms, trajectory, inequalities and management: understanding long-covid to address and transform existing integrated care pathways delphi): study protocol
topic Study Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9710789/
https://www.ncbi.nlm.nih.gov/pubmed/36449461
http://dx.doi.org/10.1371/journal.pone.0277936
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