Cargando…
STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol
INTRODUCTION: As mortality rates from COVID-19 disease fall, the high prevalence of long-term sequelae (Long COVID) is becoming increasingly widespread, challenging healthcare systems globally. Traditional pathways of care for Long Term Conditions (LTCs) have tended to be managed by disease-specific...
Autores principales: | , , , , , , , , , , , , , , , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9710789/ https://www.ncbi.nlm.nih.gov/pubmed/36449461 http://dx.doi.org/10.1371/journal.pone.0277936 |
_version_ | 1784841442564243456 |
---|---|
author | van der Feltz-Cornelis, Christina M. Sweetman, Jennifer Allsopp, Gail Attree, Emily Crooks, Michael G. Cuthbertson, Daniel J. Forshaw, Denise Gabbay, Mark Green, Angela Heightman, Melissa Hillman, Toby Hishmeh, Lyth Khunti, Kamlesh Lip, Gregory Y. H. Lorgelly, Paula Montgomery, Hugh Strain, W. David Wall, Emma Watkins, Caroline Williams, Nefyn Wootton, Dan G. Banerjee, Amitava |
author_facet | van der Feltz-Cornelis, Christina M. Sweetman, Jennifer Allsopp, Gail Attree, Emily Crooks, Michael G. Cuthbertson, Daniel J. Forshaw, Denise Gabbay, Mark Green, Angela Heightman, Melissa Hillman, Toby Hishmeh, Lyth Khunti, Kamlesh Lip, Gregory Y. H. Lorgelly, Paula Montgomery, Hugh Strain, W. David Wall, Emma Watkins, Caroline Williams, Nefyn Wootton, Dan G. Banerjee, Amitava |
author_sort | van der Feltz-Cornelis, Christina M. |
collection | PubMed |
description | INTRODUCTION: As mortality rates from COVID-19 disease fall, the high prevalence of long-term sequelae (Long COVID) is becoming increasingly widespread, challenging healthcare systems globally. Traditional pathways of care for Long Term Conditions (LTCs) have tended to be managed by disease-specific specialties, an approach that has been ineffective in delivering care for patients with multi-morbidity. The multi-system nature of Long COVID and its impact on physical and psychological health demands a more effective model of holistic, integrated care. The evolution of integrated care systems (ICSs) in the UK presents an important opportunity to explore areas of mutual benefit to LTC, multi-morbidity and Long COVID care. There may be benefits in comparing and contrasting ICPs for Long COVID with ICPs for other LTCs. METHODS AND ANALYSIS: This study aims to evaluate health services requirements for ICPs for Long COVID and their applicability to other LTCs including multi-morbidity and the overlap with medically not yet explained symptoms (MNYES). The study will follow a Delphi design and involve an expert panel of stakeholders including people with lived experience, as well as clinicians with expertise in Long COVID and other LTCs. Study processes will include expert panel and moderator panel meetings, surveys, and interviews. The Delphi process is part of the overall STIMULATE-ICP programme, aimed at improving integrated care for people with Long COVID. ETHICS AND DISSEMINATION: Ethical approval for this Delphi study has been obtained (Research Governance Board of the University of York) as have approvals for the other STIMULATE-ICP studies. Study outcomes are likely to inform policy for ICPs across LTCs. Results will be disseminated through scientific publication, conference presentation and communications with patients and stakeholders involved in care of other LTCs and Long COVID. REGISTRATION: Researchregistry: https://www.researchregistry.com/browse-the-registry#home/registrationdetails/6246bfeeeaaed6001f08dadc/. |
format | Online Article Text |
id | pubmed-9710789 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Public Library of Science |
record_format | MEDLINE/PubMed |
spelling | pubmed-97107892022-12-01 STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol van der Feltz-Cornelis, Christina M. Sweetman, Jennifer Allsopp, Gail Attree, Emily Crooks, Michael G. Cuthbertson, Daniel J. Forshaw, Denise Gabbay, Mark Green, Angela Heightman, Melissa Hillman, Toby Hishmeh, Lyth Khunti, Kamlesh Lip, Gregory Y. H. Lorgelly, Paula Montgomery, Hugh Strain, W. David Wall, Emma Watkins, Caroline Williams, Nefyn Wootton, Dan G. Banerjee, Amitava PLoS One Study Protocol INTRODUCTION: As mortality rates from COVID-19 disease fall, the high prevalence of long-term sequelae (Long COVID) is becoming increasingly widespread, challenging healthcare systems globally. Traditional pathways of care for Long Term Conditions (LTCs) have tended to be managed by disease-specific specialties, an approach that has been ineffective in delivering care for patients with multi-morbidity. The multi-system nature of Long COVID and its impact on physical and psychological health demands a more effective model of holistic, integrated care. The evolution of integrated care systems (ICSs) in the UK presents an important opportunity to explore areas of mutual benefit to LTC, multi-morbidity and Long COVID care. There may be benefits in comparing and contrasting ICPs for Long COVID with ICPs for other LTCs. METHODS AND ANALYSIS: This study aims to evaluate health services requirements for ICPs for Long COVID and their applicability to other LTCs including multi-morbidity and the overlap with medically not yet explained symptoms (MNYES). The study will follow a Delphi design and involve an expert panel of stakeholders including people with lived experience, as well as clinicians with expertise in Long COVID and other LTCs. Study processes will include expert panel and moderator panel meetings, surveys, and interviews. The Delphi process is part of the overall STIMULATE-ICP programme, aimed at improving integrated care for people with Long COVID. ETHICS AND DISSEMINATION: Ethical approval for this Delphi study has been obtained (Research Governance Board of the University of York) as have approvals for the other STIMULATE-ICP studies. Study outcomes are likely to inform policy for ICPs across LTCs. Results will be disseminated through scientific publication, conference presentation and communications with patients and stakeholders involved in care of other LTCs and Long COVID. REGISTRATION: Researchregistry: https://www.researchregistry.com/browse-the-registry#home/registrationdetails/6246bfeeeaaed6001f08dadc/. Public Library of Science 2022-11-30 /pmc/articles/PMC9710789/ /pubmed/36449461 http://dx.doi.org/10.1371/journal.pone.0277936 Text en © 2022 van der Feltz-Cornelis et al https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. |
spellingShingle | Study Protocol van der Feltz-Cornelis, Christina M. Sweetman, Jennifer Allsopp, Gail Attree, Emily Crooks, Michael G. Cuthbertson, Daniel J. Forshaw, Denise Gabbay, Mark Green, Angela Heightman, Melissa Hillman, Toby Hishmeh, Lyth Khunti, Kamlesh Lip, Gregory Y. H. Lorgelly, Paula Montgomery, Hugh Strain, W. David Wall, Emma Watkins, Caroline Williams, Nefyn Wootton, Dan G. Banerjee, Amitava STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol |
title | STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol |
title_full | STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol |
title_fullStr | STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol |
title_full_unstemmed | STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol |
title_short | STIMULATE-ICP-Delphi (Symptoms, Trajectory, Inequalities and Management: Understanding Long-COVID to Address and Transform Existing Integrated Care Pathways Delphi): Study protocol |
title_sort | stimulate-icp-delphi (symptoms, trajectory, inequalities and management: understanding long-covid to address and transform existing integrated care pathways delphi): study protocol |
topic | Study Protocol |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9710789/ https://www.ncbi.nlm.nih.gov/pubmed/36449461 http://dx.doi.org/10.1371/journal.pone.0277936 |
work_keys_str_mv | AT vanderfeltzcornelischristinam stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT sweetmanjennifer stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT allsoppgail stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT attreeemily stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT crooksmichaelg stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT cuthbertsondanielj stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT forshawdenise stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT gabbaymark stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT greenangela stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT heightmanmelissa stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT hillmantoby stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT hishmehlyth stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT khuntikamlesh stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT lipgregoryyh stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT lorgellypaula stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT montgomeryhugh stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT strainwdavid stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT wallemma stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT watkinscaroline stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT williamsnefyn stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT woottondang stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT banerjeeamitava stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol AT stimulateicpdelphisymptomstrajectoryinequalitiesandmanagementunderstandinglongcovidtoaddressandtransformexistingintegratedcarepathwaysdelphistudyprotocol |