Experiences of Social Isolation Among People with Disabilities During the COVID-19 Pandemic

RESEARCH OBJECTIVES: The COVID-19 pandemic has worsened existing disparities in social participation among people with disabilities. However, there is little evidence to describe the causes of these disparities and their impact on participation. Thus, there is little to guide intervention development and delivery in rehabilitation and community settings. The purpose of this study was to describe experiences with community participation throughout the COVID-19 pandemic among people with disabilities. DESIGN: Focus groups and community asset mapping were conducted. Focus groups explored experiences with social isolation and social participation, and ongoing challenges related to the pandemic. Community asset mapping identified community resources and supports that have promoted better community participation. Two investigators independently coded results, which were shared with participants and other members of the disability community for member checking at a Town Hall event. SETTING: N/A. PARTICIPANTS: Seventeen participants with diverse disabilities were enrolled. INTERVENTIONS: N/A. MAIN OUTCOME MEASURES: N/A. RESULTS: Results suggest that people with disabilities have experienced significant social isolation throughout the pandemic, which is perceived to have worsened their physical and emotional health. Lack of equitable health care, attitudes of professionals and family members, lack of employment and volunteer opportunities, and lack of access to pre-pandemic social activities, services, and supports were identified as contributing to social isolation. Social supports, telework and telehealth options, virtual events, and online and social media platforms were identified as critical supports for community participation. CONCLUSIONS: The results of this study can inform design of an intervention to improve community participation. Interventions should focus on accessing available community resources and supports, use of virtual and remote services and opportunities, and strengthening social support networks. AUTHOR(S) DISCLOSURES: The authors have no conflicts of interest to disclose.