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Prophylaxis and hemophilia care in LATAM: Baring it all—Highlights from the CLAHT 2021 symposium

A large group of countries constitute Latin American (LATAM) countries, where hemophilia care is as varied as the landscape of this region. To better understand the care provided to persons with bleeding disorders, especially hemophilia, a symposium was organized as part of the CLAHT Congress 2021 i...

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Autores principales: DiMinno, Giovanni G., Araujo Cabrera, Lida Milena, Loayza Urcia, Nancy, Bordone, Raul, Murillo, Carlos Martinez, Beltran, Juan Carlos, Mathew, Prasad
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9713210/
https://www.ncbi.nlm.nih.gov/pubmed/36467839
http://dx.doi.org/10.1002/jha2.503
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author DiMinno, Giovanni G.
Araujo Cabrera, Lida Milena
Loayza Urcia, Nancy
Bordone, Raul
Murillo, Carlos Martinez
Beltran, Juan Carlos
Mathew, Prasad
author_facet DiMinno, Giovanni G.
Araujo Cabrera, Lida Milena
Loayza Urcia, Nancy
Bordone, Raul
Murillo, Carlos Martinez
Beltran, Juan Carlos
Mathew, Prasad
author_sort DiMinno, Giovanni G.
collection PubMed
description A large group of countries constitute Latin American (LATAM) countries, where hemophilia care is as varied as the landscape of this region. To better understand the care provided to persons with bleeding disorders, especially hemophilia, a symposium was organized as part of the CLAHT Congress 2021 in Colombia to highlight the issues of hemophilia care and challenges faced by persons with hemophilia in four LATAM countries, Colombia, Peru, Argentina, and Mexico. A summary of the symposium is provided. Four clinicians highlighted the issues in their own country, the status, and the path forward to bring the standard of care to the international level in each of these countries. The geography of the country, the health infrastructure, and the resources available are obstacles in these countries to provide state‐of‐the‐art care to the bleeding disorder community. However, depending on the country, its infrastructure and the resources available, progress is being made to upend the care provided. Indeed, the care of persons with hemophilia has been greatly improved, including personalized prophylaxis. The information summarized here first emphasizes how the geography of a country and the different healthcare infrastructures play a major role in how care is offered. It also provides a path for other countries to evaluate these issues in their own realities. In parallel, these data provide hope to many developing countries; despite obstacles, strides can be made in the care of the bleeding disorder community.
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spelling pubmed-97132102022-12-02 Prophylaxis and hemophilia care in LATAM: Baring it all—Highlights from the CLAHT 2021 symposium DiMinno, Giovanni G. Araujo Cabrera, Lida Milena Loayza Urcia, Nancy Bordone, Raul Murillo, Carlos Martinez Beltran, Juan Carlos Mathew, Prasad EJHaem Short Reports A large group of countries constitute Latin American (LATAM) countries, where hemophilia care is as varied as the landscape of this region. To better understand the care provided to persons with bleeding disorders, especially hemophilia, a symposium was organized as part of the CLAHT Congress 2021 in Colombia to highlight the issues of hemophilia care and challenges faced by persons with hemophilia in four LATAM countries, Colombia, Peru, Argentina, and Mexico. A summary of the symposium is provided. Four clinicians highlighted the issues in their own country, the status, and the path forward to bring the standard of care to the international level in each of these countries. The geography of the country, the health infrastructure, and the resources available are obstacles in these countries to provide state‐of‐the‐art care to the bleeding disorder community. However, depending on the country, its infrastructure and the resources available, progress is being made to upend the care provided. Indeed, the care of persons with hemophilia has been greatly improved, including personalized prophylaxis. The information summarized here first emphasizes how the geography of a country and the different healthcare infrastructures play a major role in how care is offered. It also provides a path for other countries to evaluate these issues in their own realities. In parallel, these data provide hope to many developing countries; despite obstacles, strides can be made in the care of the bleeding disorder community. John Wiley and Sons Inc. 2022-08-10 /pmc/articles/PMC9713210/ /pubmed/36467839 http://dx.doi.org/10.1002/jha2.503 Text en © 2022 The Authors. eJHaem published by British Society for Haematology and John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Short Reports
DiMinno, Giovanni G.
Araujo Cabrera, Lida Milena
Loayza Urcia, Nancy
Bordone, Raul
Murillo, Carlos Martinez
Beltran, Juan Carlos
Mathew, Prasad
Prophylaxis and hemophilia care in LATAM: Baring it all—Highlights from the CLAHT 2021 symposium
title Prophylaxis and hemophilia care in LATAM: Baring it all—Highlights from the CLAHT 2021 symposium
title_full Prophylaxis and hemophilia care in LATAM: Baring it all—Highlights from the CLAHT 2021 symposium
title_fullStr Prophylaxis and hemophilia care in LATAM: Baring it all—Highlights from the CLAHT 2021 symposium
title_full_unstemmed Prophylaxis and hemophilia care in LATAM: Baring it all—Highlights from the CLAHT 2021 symposium
title_short Prophylaxis and hemophilia care in LATAM: Baring it all—Highlights from the CLAHT 2021 symposium
title_sort prophylaxis and hemophilia care in latam: baring it all—highlights from the claht 2021 symposium
topic Short Reports
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9713210/
https://www.ncbi.nlm.nih.gov/pubmed/36467839
http://dx.doi.org/10.1002/jha2.503
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