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Provocations for Reimagining Informatics Approaches to Health Equity

As the informatics community commits to the goal of advancing health equity, it is essential that we openly critique our current approaches and reimagine the ways in which we design, implement, evaluate, and advocate for policies related to informatics interventions. In this paper, we present five p...

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Autores principales: Valdez, Rupa S., Ancker, Jessica S., Veinot, Tiffany C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Georg Thieme Verlag KG 2022
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9719775/
https://www.ncbi.nlm.nih.gov/pubmed/36463864
http://dx.doi.org/10.1055/s-0042-1742514
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author Valdez, Rupa S.
Ancker, Jessica S.
Veinot, Tiffany C.
author_facet Valdez, Rupa S.
Ancker, Jessica S.
Veinot, Tiffany C.
author_sort Valdez, Rupa S.
collection PubMed
description As the informatics community commits to the goal of advancing health equity, it is essential that we openly critique our current approaches and reimagine the ways in which we design, implement, evaluate, and advocate for policies related to informatics interventions. In this paper, we present five provocations as a starting point for building more conscientious informatics practice in service of this goal: 1) Health informatics interventions can create an “illusion of impactful action” without significant material benefits for marginalized patients, families, and communities; 2) Health informatics interventions target the wrong stakeholders, the wrong processes, and the wrong technologies to achieve equity; 3) Informaticians must conceptualize health literacy and other factors shaping patients' experiences as a system-level rather than individual-level characteristic; 4) Informatics interventions wrongly assume that interacting contextual factors can be meaningfully captured by over-simplified structured variables; and 5) Informatics interventions often specify the wrong system boundaries and solution space. We further assert that drastic shifts in our current practices will allow us to honor our claims of valuing patient-centered approaches, especially for marginalized communities.
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spelling pubmed-97197752022-12-05 Provocations for Reimagining Informatics Approaches to Health Equity Valdez, Rupa S. Ancker, Jessica S. Veinot, Tiffany C. Yearb Med Inform As the informatics community commits to the goal of advancing health equity, it is essential that we openly critique our current approaches and reimagine the ways in which we design, implement, evaluate, and advocate for policies related to informatics interventions. In this paper, we present five provocations as a starting point for building more conscientious informatics practice in service of this goal: 1) Health informatics interventions can create an “illusion of impactful action” without significant material benefits for marginalized patients, families, and communities; 2) Health informatics interventions target the wrong stakeholders, the wrong processes, and the wrong technologies to achieve equity; 3) Informaticians must conceptualize health literacy and other factors shaping patients' experiences as a system-level rather than individual-level characteristic; 4) Informatics interventions wrongly assume that interacting contextual factors can be meaningfully captured by over-simplified structured variables; and 5) Informatics interventions often specify the wrong system boundaries and solution space. We further assert that drastic shifts in our current practices will allow us to honor our claims of valuing patient-centered approaches, especially for marginalized communities. Georg Thieme Verlag KG 2022-12-04 /pmc/articles/PMC9719775/ /pubmed/36463864 http://dx.doi.org/10.1055/s-0042-1742514 Text en IMIA and Thieme. This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. ( https://creativecommons.org/licenses/by-nc-nd/4.0/ ) https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License, which permits unrestricted reproduction and distribution, for non-commercial purposes only; and use and reproduction, but not distribution, of adapted material for non-commercial purposes only, provided the original work is properly cited.
spellingShingle Valdez, Rupa S.
Ancker, Jessica S.
Veinot, Tiffany C.
Provocations for Reimagining Informatics Approaches to Health Equity
title Provocations for Reimagining Informatics Approaches to Health Equity
title_full Provocations for Reimagining Informatics Approaches to Health Equity
title_fullStr Provocations for Reimagining Informatics Approaches to Health Equity
title_full_unstemmed Provocations for Reimagining Informatics Approaches to Health Equity
title_short Provocations for Reimagining Informatics Approaches to Health Equity
title_sort provocations for reimagining informatics approaches to health equity
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9719775/
https://www.ncbi.nlm.nih.gov/pubmed/36463864
http://dx.doi.org/10.1055/s-0042-1742514
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