Cargando…
Escape, expand, embrace: the transformational lived experience of rediscovering the self and the other while dancing with Parkinson’s or Multiple Sclerosis
PURPOSE: The purpose of this study was to explore the lived experience of dancing with Parkinson’s and Multiple Sclerosis in an inclusive dance group called ReDiscoverMe (RDM). METHODS: Participatory research approaches and interpretative phenomenological analysis were used to make sense of the live...
Autores principales: | , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Taylor & Francis
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9721429/ https://www.ncbi.nlm.nih.gov/pubmed/36458742 http://dx.doi.org/10.1080/17482631.2022.2143611 |
_version_ | 1784843773060055040 |
---|---|
author | Carapellotti, Anna M. Meijerink, Hannie (J.E.M.) Gravemaker-Scott, Christine Thielman, Lucia Kool, Renée Lewin, Natalie Abma, Tineke A. |
author_facet | Carapellotti, Anna M. Meijerink, Hannie (J.E.M.) Gravemaker-Scott, Christine Thielman, Lucia Kool, Renée Lewin, Natalie Abma, Tineke A. |
author_sort | Carapellotti, Anna M. |
collection | PubMed |
description | PURPOSE: The purpose of this study was to explore the lived experience of dancing with Parkinson’s and Multiple Sclerosis in an inclusive dance group called ReDiscoverMe (RDM). METHODS: Participatory research approaches and interpretative phenomenological analysis were used to make sense of the lived experience captured in interviews and observations. Arthur Frank’s conceptual framework on embodied storytelling from his book The Wounded Storyteller was the study’s theoretical lens. Themes are both described and represented in images made by an RDM participant. FINDINGS: Dancing in a nonjudgmental environment was described by participants as a way to rediscover themselves while continually adapting to living with chronic illness. We interpreted this experience of rediscovery as an active, recursive process involving three “movements”: escaping, expanding, and embracing. Through these movements, participants could rise above the self and illness. CONCLUSIONS: The lived experience of dancing in this group was characterized by transformations of the body, self, and life. Through escaping, expanding, and embracing, participants could more easily embrace the body’s contingency, integrate the self and body by becoming dancers, connect with others living with illness, and produce desire through passion. Participants could therefore experience illness as a journey and gain something from the experience. |
format | Online Article Text |
id | pubmed-9721429 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Taylor & Francis |
record_format | MEDLINE/PubMed |
spelling | pubmed-97214292022-12-06 Escape, expand, embrace: the transformational lived experience of rediscovering the self and the other while dancing with Parkinson’s or Multiple Sclerosis Carapellotti, Anna M. Meijerink, Hannie (J.E.M.) Gravemaker-Scott, Christine Thielman, Lucia Kool, Renée Lewin, Natalie Abma, Tineke A. Int J Qual Stud Health Well-being Empirical Studies PURPOSE: The purpose of this study was to explore the lived experience of dancing with Parkinson’s and Multiple Sclerosis in an inclusive dance group called ReDiscoverMe (RDM). METHODS: Participatory research approaches and interpretative phenomenological analysis were used to make sense of the lived experience captured in interviews and observations. Arthur Frank’s conceptual framework on embodied storytelling from his book The Wounded Storyteller was the study’s theoretical lens. Themes are both described and represented in images made by an RDM participant. FINDINGS: Dancing in a nonjudgmental environment was described by participants as a way to rediscover themselves while continually adapting to living with chronic illness. We interpreted this experience of rediscovery as an active, recursive process involving three “movements”: escaping, expanding, and embracing. Through these movements, participants could rise above the self and illness. CONCLUSIONS: The lived experience of dancing in this group was characterized by transformations of the body, self, and life. Through escaping, expanding, and embracing, participants could more easily embrace the body’s contingency, integrate the self and body by becoming dancers, connect with others living with illness, and produce desire through passion. Participants could therefore experience illness as a journey and gain something from the experience. Taylor & Francis 2022-12-02 /pmc/articles/PMC9721429/ /pubmed/36458742 http://dx.doi.org/10.1080/17482631.2022.2143611 Text en © 2022 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. https://creativecommons.org/licenses/by-nc/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) ), which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Empirical Studies Carapellotti, Anna M. Meijerink, Hannie (J.E.M.) Gravemaker-Scott, Christine Thielman, Lucia Kool, Renée Lewin, Natalie Abma, Tineke A. Escape, expand, embrace: the transformational lived experience of rediscovering the self and the other while dancing with Parkinson’s or Multiple Sclerosis |
title | Escape, expand, embrace: the transformational lived experience of rediscovering the self and the other while dancing with Parkinson’s or Multiple Sclerosis |
title_full | Escape, expand, embrace: the transformational lived experience of rediscovering the self and the other while dancing with Parkinson’s or Multiple Sclerosis |
title_fullStr | Escape, expand, embrace: the transformational lived experience of rediscovering the self and the other while dancing with Parkinson’s or Multiple Sclerosis |
title_full_unstemmed | Escape, expand, embrace: the transformational lived experience of rediscovering the self and the other while dancing with Parkinson’s or Multiple Sclerosis |
title_short | Escape, expand, embrace: the transformational lived experience of rediscovering the self and the other while dancing with Parkinson’s or Multiple Sclerosis |
title_sort | escape, expand, embrace: the transformational lived experience of rediscovering the self and the other while dancing with parkinson’s or multiple sclerosis |
topic | Empirical Studies |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9721429/ https://www.ncbi.nlm.nih.gov/pubmed/36458742 http://dx.doi.org/10.1080/17482631.2022.2143611 |
work_keys_str_mv | AT carapellottiannam escapeexpandembracethetransformationallivedexperienceofrediscoveringtheselfandtheotherwhiledancingwithparkinsonsormultiplesclerosis AT meijerinkhanniejem escapeexpandembracethetransformationallivedexperienceofrediscoveringtheselfandtheotherwhiledancingwithparkinsonsormultiplesclerosis AT gravemakerscottchristine escapeexpandembracethetransformationallivedexperienceofrediscoveringtheselfandtheotherwhiledancingwithparkinsonsormultiplesclerosis AT thielmanlucia escapeexpandembracethetransformationallivedexperienceofrediscoveringtheselfandtheotherwhiledancingwithparkinsonsormultiplesclerosis AT koolrenee escapeexpandembracethetransformationallivedexperienceofrediscoveringtheselfandtheotherwhiledancingwithparkinsonsormultiplesclerosis AT lewinnatalie escapeexpandembracethetransformationallivedexperienceofrediscoveringtheselfandtheotherwhiledancingwithparkinsonsormultiplesclerosis AT abmatinekea escapeexpandembracethetransformationallivedexperienceofrediscoveringtheselfandtheotherwhiledancingwithparkinsonsormultiplesclerosis |