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Quality of life among caregivers of epileptic children with degree of controlling seizures in Aseer region

Epilepsy affects nearly 50 million people worldwide. Epilepsy can affect the quality of life of both the child and the caregiver leaving them unable to function in other areas of life. This quality of life is highly dependent on treatment adherence and how individuals feel about taking their medicat...

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Autores principales: Asiri, Ashwag, Mohammad, Asiri, Otaif, Mansour, Amer, Khaled Abdulwahab, Aldosari, Abdulrahman Ali, Al-Maalwi, Razan Saeed, Al-Muhsin, Sereen Dhafer, Amer, Arwa Abdulwahab
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9730941/
https://www.ncbi.nlm.nih.gov/pubmed/36505613
http://dx.doi.org/10.4103/jfmpc.jfmpc_2255_21
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author Asiri, Ashwag
Mohammad, Asiri
Otaif, Mansour
Amer, Khaled Abdulwahab
Aldosari, Abdulrahman Ali
Al-Maalwi, Razan Saeed
Al-Muhsin, Sereen Dhafer
Amer, Arwa Abdulwahab
author_facet Asiri, Ashwag
Mohammad, Asiri
Otaif, Mansour
Amer, Khaled Abdulwahab
Aldosari, Abdulrahman Ali
Al-Maalwi, Razan Saeed
Al-Muhsin, Sereen Dhafer
Amer, Arwa Abdulwahab
author_sort Asiri, Ashwag
collection PubMed
description Epilepsy affects nearly 50 million people worldwide. Epilepsy can affect the quality of life of both the child and the caregiver leaving them unable to function in other areas of life. This quality of life is highly dependent on treatment adherence and how individuals feel about taking their medication. In our study, we aimed to investigate the frequency of medication adherence and the quality of life of caregivers of children with epilepsy. For this purpose, we conducted a cross-sectional survey at the Abha Maternity and Children’s Hospital. We enrolled 133 consecutive participants and asked them to complete a questionnaire. The results showed that 37.6% of the participants forgot to take their medications, 9.8% of the participants reported that they were sometimes careless about giving their children medications and sometimes stopped giving them when the children were feeling better, 15.8% of the participants indicated that they sometimes stopped giving the medication when they felt that their children were getting worse when they took the medication., and 26.3% of the participants agreed that they only administered the medication when the children were sick. It was also found that the quality of life of the caregivers decreased when they forgot to give their children the medication and the quality of life of the caregivers increased when they continued to take the medication. In conclusion, quality of life increases as adherence to treatment increases, indicating that more intervention programs are needed to improve the adherence of epilepsy patients.
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spelling pubmed-97309412022-12-09 Quality of life among caregivers of epileptic children with degree of controlling seizures in Aseer region Asiri, Ashwag Mohammad, Asiri Otaif, Mansour Amer, Khaled Abdulwahab Aldosari, Abdulrahman Ali Al-Maalwi, Razan Saeed Al-Muhsin, Sereen Dhafer Amer, Arwa Abdulwahab J Family Med Prim Care Original Article Epilepsy affects nearly 50 million people worldwide. Epilepsy can affect the quality of life of both the child and the caregiver leaving them unable to function in other areas of life. This quality of life is highly dependent on treatment adherence and how individuals feel about taking their medication. In our study, we aimed to investigate the frequency of medication adherence and the quality of life of caregivers of children with epilepsy. For this purpose, we conducted a cross-sectional survey at the Abha Maternity and Children’s Hospital. We enrolled 133 consecutive participants and asked them to complete a questionnaire. The results showed that 37.6% of the participants forgot to take their medications, 9.8% of the participants reported that they were sometimes careless about giving their children medications and sometimes stopped giving them when the children were feeling better, 15.8% of the participants indicated that they sometimes stopped giving the medication when they felt that their children were getting worse when they took the medication., and 26.3% of the participants agreed that they only administered the medication when the children were sick. It was also found that the quality of life of the caregivers decreased when they forgot to give their children the medication and the quality of life of the caregivers increased when they continued to take the medication. In conclusion, quality of life increases as adherence to treatment increases, indicating that more intervention programs are needed to improve the adherence of epilepsy patients. Wolters Kluwer - Medknow 2022-09 2022-10-14 /pmc/articles/PMC9730941/ /pubmed/36505613 http://dx.doi.org/10.4103/jfmpc.jfmpc_2255_21 Text en Copyright: © 2022 Journal of Family Medicine and Primary Care https://creativecommons.org/licenses/by-nc-sa/4.0/This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Original Article
Asiri, Ashwag
Mohammad, Asiri
Otaif, Mansour
Amer, Khaled Abdulwahab
Aldosari, Abdulrahman Ali
Al-Maalwi, Razan Saeed
Al-Muhsin, Sereen Dhafer
Amer, Arwa Abdulwahab
Quality of life among caregivers of epileptic children with degree of controlling seizures in Aseer region
title Quality of life among caregivers of epileptic children with degree of controlling seizures in Aseer region
title_full Quality of life among caregivers of epileptic children with degree of controlling seizures in Aseer region
title_fullStr Quality of life among caregivers of epileptic children with degree of controlling seizures in Aseer region
title_full_unstemmed Quality of life among caregivers of epileptic children with degree of controlling seizures in Aseer region
title_short Quality of life among caregivers of epileptic children with degree of controlling seizures in Aseer region
title_sort quality of life among caregivers of epileptic children with degree of controlling seizures in aseer region
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9730941/
https://www.ncbi.nlm.nih.gov/pubmed/36505613
http://dx.doi.org/10.4103/jfmpc.jfmpc_2255_21
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