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Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol

INTRODUCTION: This study aims to investigate self-perceived quality of life, daily functioning, and the use of compensatory strategies in emerging adults with autism. METHODS AND ANALYSIS: Participants will be recruited from the Lillehammer Neurodevelopmental 10-year follow-up study (LINEUP), with t...

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Autores principales: Øverland, Elisabeth, Hauge, Åshild Lappegard, Orm, Stian, Pellicano, Elizabeth, Øie, Merete Glenne, Skogli, Erik Winther, Andersen, Per Normann
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9732257/
https://www.ncbi.nlm.nih.gov/pubmed/36506426
http://dx.doi.org/10.3389/fpsyt.2022.1058601
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author Øverland, Elisabeth
Hauge, Åshild Lappegard
Orm, Stian
Pellicano, Elizabeth
Øie, Merete Glenne
Skogli, Erik Winther
Andersen, Per Normann
author_facet Øverland, Elisabeth
Hauge, Åshild Lappegard
Orm, Stian
Pellicano, Elizabeth
Øie, Merete Glenne
Skogli, Erik Winther
Andersen, Per Normann
author_sort Øverland, Elisabeth
collection PubMed
description INTRODUCTION: This study aims to investigate self-perceived quality of life, daily functioning, and the use of compensatory strategies in emerging adults with autism. METHODS AND ANALYSIS: Participants will be recruited from the Lillehammer Neurodevelopmental 10-year follow-up study (LINEUP), with the aim of 15 individual in-depth interviews. Subsequently, two focus groups with clinicians will be invited to reflect on the themes found in the individual interviews. All interviews will be recorded and analyzed using reflexive thematic analysis. ETHICS AND DISSEMINATION: The study is approved by the Regional Committee for Medical Research Ethics in South-East Norway. The findings will be disseminated to academic and clinical audiences through journal articles and conference presentations. To reach the broader autistic and autism communities, the findings will be shared with the Autism Society at national and local meetings, in their membership magazine, and on their social media channel.
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spelling pubmed-97322572022-12-10 Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol Øverland, Elisabeth Hauge, Åshild Lappegard Orm, Stian Pellicano, Elizabeth Øie, Merete Glenne Skogli, Erik Winther Andersen, Per Normann Front Psychiatry Psychiatry INTRODUCTION: This study aims to investigate self-perceived quality of life, daily functioning, and the use of compensatory strategies in emerging adults with autism. METHODS AND ANALYSIS: Participants will be recruited from the Lillehammer Neurodevelopmental 10-year follow-up study (LINEUP), with the aim of 15 individual in-depth interviews. Subsequently, two focus groups with clinicians will be invited to reflect on the themes found in the individual interviews. All interviews will be recorded and analyzed using reflexive thematic analysis. ETHICS AND DISSEMINATION: The study is approved by the Regional Committee for Medical Research Ethics in South-East Norway. The findings will be disseminated to academic and clinical audiences through journal articles and conference presentations. To reach the broader autistic and autism communities, the findings will be shared with the Autism Society at national and local meetings, in their membership magazine, and on their social media channel. Frontiers Media S.A. 2022-11-25 /pmc/articles/PMC9732257/ /pubmed/36506426 http://dx.doi.org/10.3389/fpsyt.2022.1058601 Text en Copyright © 2022 Øverland, Hauge, Orm, Pellicano, Øie, Skogli and Andersen. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Psychiatry
Øverland, Elisabeth
Hauge, Åshild Lappegard
Orm, Stian
Pellicano, Elizabeth
Øie, Merete Glenne
Skogli, Erik Winther
Andersen, Per Normann
Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol
title Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol
title_full Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol
title_fullStr Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol
title_full_unstemmed Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol
title_short Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol
title_sort exploring life with autism: quality of life, daily functioning and compensatory strategies from childhood to emerging adulthood: a qualitative study protocol
topic Psychiatry
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9732257/
https://www.ncbi.nlm.nih.gov/pubmed/36506426
http://dx.doi.org/10.3389/fpsyt.2022.1058601
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