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“I want the doctors to know that I am as bright as a candle”:: Experiences with and Hopes for Doctor Interactions Among Malaysian Key Populations and People Living with HIV

Stigma in healthcare settings is a pernicious barrier to HIV prevention and treatment in contexts with strong HIV-related structural stigma. Previous work has documented substantial stigma towards key populations and people living with HIV (PLWH) among Malaysian doctors. The perspectives of Malaysia...

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Autores principales: Earnshaw, Valerie A., Cox, Jon, Wong, Pui Li, Saifi, Rumana, Walters, Suzan, Azwa, Iskandar, Omar, Sharifah Faridah Syed, Collier, Zachary K., Hassan, Asfarina Amir, Lim, Sin How, Wickersham, Jeffrey, Haddad, Marwan S., Kamarulzaman, Adeeba
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9734400/
https://www.ncbi.nlm.nih.gov/pubmed/36472685
http://dx.doi.org/10.1007/s10461-022-03942-9
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author Earnshaw, Valerie A.
Cox, Jon
Wong, Pui Li
Saifi, Rumana
Walters, Suzan
Azwa, Iskandar
Omar, Sharifah Faridah Syed
Collier, Zachary K.
Hassan, Asfarina Amir
Lim, Sin How
Wickersham, Jeffrey
Haddad, Marwan S.
Kamarulzaman, Adeeba
author_facet Earnshaw, Valerie A.
Cox, Jon
Wong, Pui Li
Saifi, Rumana
Walters, Suzan
Azwa, Iskandar
Omar, Sharifah Faridah Syed
Collier, Zachary K.
Hassan, Asfarina Amir
Lim, Sin How
Wickersham, Jeffrey
Haddad, Marwan S.
Kamarulzaman, Adeeba
author_sort Earnshaw, Valerie A.
collection PubMed
description Stigma in healthcare settings is a pernicious barrier to HIV prevention and treatment in contexts with strong HIV-related structural stigma. Previous work has documented substantial stigma towards key populations and people living with HIV (PLWH) among Malaysian doctors. The perspectives of Malaysian key populations and PLWH, however, remain understudied. In 2021, 34 Malaysian participants representing key populations and PLWH engaged in a photovoice study designed to qualitatively explore their experiences with and hopes for doctor interactions. Many participants reported stigma from their doctors, perceiving that doctors view them as not normal, sinful, misguided, and incapable. Several emphasized that they wear figurative masks to conceal aspects of themselves from doctors. Yet, many also remain hopeful for constructive relationships with doctors. They want their doctors to know that they are bright, capable, kind, and valuable. Interventions are needed to address stigma among doctors working in contexts with strong structural stigma.
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spelling pubmed-97344002022-12-12 “I want the doctors to know that I am as bright as a candle”:: Experiences with and Hopes for Doctor Interactions Among Malaysian Key Populations and People Living with HIV Earnshaw, Valerie A. Cox, Jon Wong, Pui Li Saifi, Rumana Walters, Suzan Azwa, Iskandar Omar, Sharifah Faridah Syed Collier, Zachary K. Hassan, Asfarina Amir Lim, Sin How Wickersham, Jeffrey Haddad, Marwan S. Kamarulzaman, Adeeba AIDS Behav Original Paper Stigma in healthcare settings is a pernicious barrier to HIV prevention and treatment in contexts with strong HIV-related structural stigma. Previous work has documented substantial stigma towards key populations and people living with HIV (PLWH) among Malaysian doctors. The perspectives of Malaysian key populations and PLWH, however, remain understudied. In 2021, 34 Malaysian participants representing key populations and PLWH engaged in a photovoice study designed to qualitatively explore their experiences with and hopes for doctor interactions. Many participants reported stigma from their doctors, perceiving that doctors view them as not normal, sinful, misguided, and incapable. Several emphasized that they wear figurative masks to conceal aspects of themselves from doctors. Yet, many also remain hopeful for constructive relationships with doctors. They want their doctors to know that they are bright, capable, kind, and valuable. Interventions are needed to address stigma among doctors working in contexts with strong structural stigma. Springer US 2022-12-06 2023 /pmc/articles/PMC9734400/ /pubmed/36472685 http://dx.doi.org/10.1007/s10461-022-03942-9 Text en © The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature 2022. Springer Nature or its licensor (e.g. a society or other partner) holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law. This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Original Paper
Earnshaw, Valerie A.
Cox, Jon
Wong, Pui Li
Saifi, Rumana
Walters, Suzan
Azwa, Iskandar
Omar, Sharifah Faridah Syed
Collier, Zachary K.
Hassan, Asfarina Amir
Lim, Sin How
Wickersham, Jeffrey
Haddad, Marwan S.
Kamarulzaman, Adeeba
“I want the doctors to know that I am as bright as a candle”:: Experiences with and Hopes for Doctor Interactions Among Malaysian Key Populations and People Living with HIV
title “I want the doctors to know that I am as bright as a candle”:: Experiences with and Hopes for Doctor Interactions Among Malaysian Key Populations and People Living with HIV
title_full “I want the doctors to know that I am as bright as a candle”:: Experiences with and Hopes for Doctor Interactions Among Malaysian Key Populations and People Living with HIV
title_fullStr “I want the doctors to know that I am as bright as a candle”:: Experiences with and Hopes for Doctor Interactions Among Malaysian Key Populations and People Living with HIV
title_full_unstemmed “I want the doctors to know that I am as bright as a candle”:: Experiences with and Hopes for Doctor Interactions Among Malaysian Key Populations and People Living with HIV
title_short “I want the doctors to know that I am as bright as a candle”:: Experiences with and Hopes for Doctor Interactions Among Malaysian Key Populations and People Living with HIV
title_sort “i want the doctors to know that i am as bright as a candle”:: experiences with and hopes for doctor interactions among malaysian key populations and people living with hiv
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9734400/
https://www.ncbi.nlm.nih.gov/pubmed/36472685
http://dx.doi.org/10.1007/s10461-022-03942-9
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