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Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison
This article reports on the findings of an international workshop organised by the UK-France Genomics and Ethics Network (UK-FR GENE) in 2021. They focus specifically on how collection, storage and sharing of genomic data may pose challenges to established principles and values such as trust, confid...
Autores principales: | Horn, Ruth, Merchant, Jennifer |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer International Publishing
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9734861/ https://www.ncbi.nlm.nih.gov/pubmed/36471117 http://dx.doi.org/10.1038/s41431-022-01247-y |
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