Cargando…

A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors

Background: Following traumatic injury, an informal carer is often required to support recovery. Understanding the impact of caregiving is important to inform intervention design. Aim: to explore the impact of caring on family and caregiver finances, employment, social life, and psychological wellbe...

Descripción completa

Detalles Bibliográficos
Autores principales: Hudson, Catherine, Radford, Kate, Kettlewell, Jade
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9737134/
https://www.ncbi.nlm.nih.gov/pubmed/36498277
http://dx.doi.org/10.3390/ijerph192316202
_version_ 1784847209828712448
author Hudson, Catherine
Radford, Kate
Kettlewell, Jade
author_facet Hudson, Catherine
Radford, Kate
Kettlewell, Jade
author_sort Hudson, Catherine
collection PubMed
description Background: Following traumatic injury, an informal carer is often required to support recovery. Understanding the impact of caregiving is important to inform intervention design. Aim: to explore the impact of caring on family and caregiver finances, employment, social life, and psychological wellbeing. Method: Semi-structured interviews conducted with carers of traumatic injury survivors. Interviews were audio recorded, transcribed and thematically analysed, informed by the Roy Adaptation Model (RAM) and International Classification of Functioning, Disability and Health (ICF). Results: Ten participants were interviewed. Key themes included (1) financial impact/employment issues, (2) relationships and support and (3) psychological impact. Most carers did not receive professional support with daily care post-discharge. Carers’ employers responded positively, supporting them even after extensive leave. Carers received inconsistent communication whilst visiting trauma survivors in hospital; carers with healthcare experience were favoured. Navigating and receiving benefits was complex. Some carers found it difficult to accept the trauma survivor’s injury, whilst others focused on achieving goals. Conclusions: Support from professional services is limited outside hospital settings for non-brain injuries. Future interventions and healthcare services should acknowledge the lack of psychological support for carers. Researchers should consider using the ICF/RAM when designing interventions to ensure the full impact on carers is addressed.
format Online
Article
Text
id pubmed-9737134
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher MDPI
record_format MEDLINE/PubMed
spelling pubmed-97371342022-12-11 A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors Hudson, Catherine Radford, Kate Kettlewell, Jade Int J Environ Res Public Health Article Background: Following traumatic injury, an informal carer is often required to support recovery. Understanding the impact of caregiving is important to inform intervention design. Aim: to explore the impact of caring on family and caregiver finances, employment, social life, and psychological wellbeing. Method: Semi-structured interviews conducted with carers of traumatic injury survivors. Interviews were audio recorded, transcribed and thematically analysed, informed by the Roy Adaptation Model (RAM) and International Classification of Functioning, Disability and Health (ICF). Results: Ten participants were interviewed. Key themes included (1) financial impact/employment issues, (2) relationships and support and (3) psychological impact. Most carers did not receive professional support with daily care post-discharge. Carers’ employers responded positively, supporting them even after extensive leave. Carers received inconsistent communication whilst visiting trauma survivors in hospital; carers with healthcare experience were favoured. Navigating and receiving benefits was complex. Some carers found it difficult to accept the trauma survivor’s injury, whilst others focused on achieving goals. Conclusions: Support from professional services is limited outside hospital settings for non-brain injuries. Future interventions and healthcare services should acknowledge the lack of psychological support for carers. Researchers should consider using the ICF/RAM when designing interventions to ensure the full impact on carers is addressed. MDPI 2022-12-03 /pmc/articles/PMC9737134/ /pubmed/36498277 http://dx.doi.org/10.3390/ijerph192316202 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Hudson, Catherine
Radford, Kate
Kettlewell, Jade
A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors
title A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors
title_full A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors
title_fullStr A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors
title_full_unstemmed A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors
title_short A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors
title_sort qualitative study to understand the impact of caring for traumatic injury survivors
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9737134/
https://www.ncbi.nlm.nih.gov/pubmed/36498277
http://dx.doi.org/10.3390/ijerph192316202
work_keys_str_mv AT hudsoncatherine aqualitativestudytounderstandtheimpactofcaringfortraumaticinjurysurvivors
AT radfordkate aqualitativestudytounderstandtheimpactofcaringfortraumaticinjurysurvivors
AT kettlewelljade aqualitativestudytounderstandtheimpactofcaringfortraumaticinjurysurvivors
AT hudsoncatherine qualitativestudytounderstandtheimpactofcaringfortraumaticinjurysurvivors
AT radfordkate qualitativestudytounderstandtheimpactofcaringfortraumaticinjurysurvivors
AT kettlewelljade qualitativestudytounderstandtheimpactofcaringfortraumaticinjurysurvivors