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Exploring access to genomic risk information and the contours of the HIPAA public health exception
Considerable resources have been invested in research to identify pathogenic and likely pathogenic variants that cause morbidity and mortality and also in returning these results to patients. The public health impact and cost-effectiveness of these efforts are maximized when probands’ relatives are...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9740515/ https://www.ncbi.nlm.nih.gov/pubmed/36518815 http://dx.doi.org/10.1093/jlb/lsac034 |