HPR30 Too Ultra-Rare for Care? Orphan Drug Availability for People Living With Ultra-Rare Respiratory Diseases in the Pre, Present and Post Pandemic Worlds

Detalles Bibliográficos
Autores principales: Matthews, H, Lipunova, N, Beecroft, S, Jones, G
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Published by Elsevier Inc. 2022
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9747487/
http://dx.doi.org/10.1016/j.jval.2022.09.1162
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author Matthews, H
Lipunova, N
Beecroft, S
Jones, G
author_facet Matthews, H
Lipunova, N
Beecroft, S
Jones, G
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spelling pubmed-97474872022-12-14 HPR30 Too Ultra-Rare for Care? Orphan Drug Availability for People Living With Ultra-Rare Respiratory Diseases in the Pre, Present and Post Pandemic Worlds Matthews, H Lipunova, N Beecroft, S Jones, G Value Health Article Published by Elsevier Inc. 2022-12 2022-12-14 /pmc/articles/PMC9747487/ http://dx.doi.org/10.1016/j.jval.2022.09.1162 Text en Copyright © 2022 Published by Elsevier Inc. Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active.
spellingShingle Article
Matthews, H
Lipunova, N
Beecroft, S
Jones, G
HPR30 Too Ultra-Rare for Care? Orphan Drug Availability for People Living With Ultra-Rare Respiratory Diseases in the Pre, Present and Post Pandemic Worlds
title HPR30 Too Ultra-Rare for Care? Orphan Drug Availability for People Living With Ultra-Rare Respiratory Diseases in the Pre, Present and Post Pandemic Worlds
title_full HPR30 Too Ultra-Rare for Care? Orphan Drug Availability for People Living With Ultra-Rare Respiratory Diseases in the Pre, Present and Post Pandemic Worlds
title_fullStr HPR30 Too Ultra-Rare for Care? Orphan Drug Availability for People Living With Ultra-Rare Respiratory Diseases in the Pre, Present and Post Pandemic Worlds
title_full_unstemmed HPR30 Too Ultra-Rare for Care? Orphan Drug Availability for People Living With Ultra-Rare Respiratory Diseases in the Pre, Present and Post Pandemic Worlds
title_short HPR30 Too Ultra-Rare for Care? Orphan Drug Availability for People Living With Ultra-Rare Respiratory Diseases in the Pre, Present and Post Pandemic Worlds
title_sort hpr30 too ultra-rare for care? orphan drug availability for people living with ultra-rare respiratory diseases in the pre, present and post pandemic worlds
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9747487/
http://dx.doi.org/10.1016/j.jval.2022.09.1162
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