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Development and applicability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis: A qualitative‐driven mixed methods study
AIMS: This study evaluated the acceptability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis by converging perceptions of living with idiopathic pulmonary fibrosis qualitative data and quantitative data. DESIGN: The qualitative‐driven mixed methods resear...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9748069/ https://www.ncbi.nlm.nih.gov/pubmed/35726124 http://dx.doi.org/10.1002/nop2.1274 |
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author | Igai, Yasuko Porter, Sarah E. |
author_facet | Igai, Yasuko Porter, Sarah E. |
author_sort | Igai, Yasuko |
collection | PubMed |
description | AIMS: This study evaluated the acceptability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis by converging perceptions of living with idiopathic pulmonary fibrosis qualitative data and quantitative data. DESIGN: The qualitative‐driven mixed methods research addressed the study aim by using a convergent design. This single arm, non‐randomized study used purposive sampling. METHODS: Interviews with 12 stable outpatients with IPF provided qualitative data. Their quantitative data were from six scales: self‐esteem, health‐related quality of life, anxiety, depression, dyspnoea, cough and programme satisfaction. Intervention was three educational modules: symptom management, enhancing daily activities and life reviews. RESULTS: Semi‐structured interviews yielded eight categories. Self‐esteem was not statistically significantly changed. Dyspnoea symptoms improved significantly. Participants (n = 9) holding positive attitudes for living with idiopathic pulmonary fibrosis, had improved lifestyle behaviour and improved or maintained self‐esteem. The meta‐inference regarding idiopathic pulmonary fibrosis perceptions were related to changes in self‐esteem. |
format | Online Article Text |
id | pubmed-9748069 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-97480692022-12-14 Development and applicability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis: A qualitative‐driven mixed methods study Igai, Yasuko Porter, Sarah E. Nurs Open Research Articles AIMS: This study evaluated the acceptability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis by converging perceptions of living with idiopathic pulmonary fibrosis qualitative data and quantitative data. DESIGN: The qualitative‐driven mixed methods research addressed the study aim by using a convergent design. This single arm, non‐randomized study used purposive sampling. METHODS: Interviews with 12 stable outpatients with IPF provided qualitative data. Their quantitative data were from six scales: self‐esteem, health‐related quality of life, anxiety, depression, dyspnoea, cough and programme satisfaction. Intervention was three educational modules: symptom management, enhancing daily activities and life reviews. RESULTS: Semi‐structured interviews yielded eight categories. Self‐esteem was not statistically significantly changed. Dyspnoea symptoms improved significantly. Participants (n = 9) holding positive attitudes for living with idiopathic pulmonary fibrosis, had improved lifestyle behaviour and improved or maintained self‐esteem. The meta‐inference regarding idiopathic pulmonary fibrosis perceptions were related to changes in self‐esteem. John Wiley and Sons Inc. 2022-06-20 /pmc/articles/PMC9748069/ /pubmed/35726124 http://dx.doi.org/10.1002/nop2.1274 Text en © 2022 The Authors. Nursing Open published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Research Articles Igai, Yasuko Porter, Sarah E. Development and applicability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis: A qualitative‐driven mixed methods study |
title | Development and applicability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis: A qualitative‐driven mixed methods study |
title_full | Development and applicability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis: A qualitative‐driven mixed methods study |
title_fullStr | Development and applicability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis: A qualitative‐driven mixed methods study |
title_full_unstemmed | Development and applicability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis: A qualitative‐driven mixed methods study |
title_short | Development and applicability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis: A qualitative‐driven mixed methods study |
title_sort | development and applicability of a dignity‐centred palliative care programme for people with idiopathic pulmonary fibrosis: a qualitative‐driven mixed methods study |
topic | Research Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9748069/ https://www.ncbi.nlm.nih.gov/pubmed/35726124 http://dx.doi.org/10.1002/nop2.1274 |
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