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Needs of informal caregivers of people with a rare disease: a rapid review of the literature

OBJECTIVES: Many people living with a rare disease (RD) are cared for by a family member. Due to a frequent lack of individual RD knowledge from healthcare professionals, the patient and their informal caregiver are frequently obliged to become ‘experts’ in their specific condition. This puts a huge...

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Detalles Bibliográficos
Autores principales:	Mcmullan, Julie, Lohfeld, Lynne, McKnight, Amy Jayne
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2022
Materias:	Public Health
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9748923/ https://www.ncbi.nlm.nih.gov/pubmed/36523233 http://dx.doi.org/10.1136/bmjopen-2022-063263

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