A multidisciplinary care pathway improves quality of life and reduces pain in patients with fibrous dysplasia/McCune-Albright syndrome: a multicenter prospective observational study

BACKGROUND: Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) may cause pain, impaired ambulation and decreased quality of life (QoL). International guidelines advocate management of FD/MAS in a tertiary multidisciplinary care pathway, but no longitudinal data are available to support this recomme...

Descripción completa

Detalles Bibliográficos
Autores principales: Meier, Maartje E., Hagelstein-Rotman, Marlous, van de Ven, Annenienke C., Van der Geest, Ingrid C. M., Donker, Olav, Pichardo, Sarina E. C., Hissink Muller, Petra C. E., van der Meeren, Stijn W., Dorleijn, Desirée M. J., Winter, Elizabeth M., van de Sande, Michiel A. J., Appelman-Dijkstra, Natasha M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9758844/
https://www.ncbi.nlm.nih.gov/pubmed/36528764
http://dx.doi.org/10.1186/s13023-022-02588-z

Ejemplares similares

Ejemplares similares