Cargando…

Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines

BACKGROUND: People who use drugs with life-limiting illnesses experience substantial barriers to accessing palliative care. Demand for palliative care is expected to increase during communicable disease epidemics and pandemics. Understanding how epidemics and pandemics affect palliative care for peo...

Descripción completa

Detalles Bibliográficos
Autores principales: Buchman, Daniel Z, Lo, Samantha, Ding, Philip, Dosani, Naheed, Fazelzad, Rouhi, Furlan, Andrea D, Isenberg, Sarina R, Spithoff, Sheryl, Tedesco, Alissa, Zimmermann, Camilla, Lau, Jenny
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9760505/
https://www.ncbi.nlm.nih.gov/pubmed/36522840
http://dx.doi.org/10.1177/02692163221143153
_version_ 1784852490226761728
author Buchman, Daniel Z
Lo, Samantha
Ding, Philip
Dosani, Naheed
Fazelzad, Rouhi
Furlan, Andrea D
Isenberg, Sarina R
Spithoff, Sheryl
Tedesco, Alissa
Zimmermann, Camilla
Lau, Jenny
author_facet Buchman, Daniel Z
Lo, Samantha
Ding, Philip
Dosani, Naheed
Fazelzad, Rouhi
Furlan, Andrea D
Isenberg, Sarina R
Spithoff, Sheryl
Tedesco, Alissa
Zimmermann, Camilla
Lau, Jenny
author_sort Buchman, Daniel Z
collection PubMed
description BACKGROUND: People who use drugs with life-limiting illnesses experience substantial barriers to accessing palliative care. Demand for palliative care is expected to increase during communicable disease epidemics and pandemics. Understanding how epidemics and pandemics affect palliative care for people who use drugs is important from a service delivery perspective and for reducing population health inequities. AIM: To explore what is known about communicable disease epidemics and pandemics, palliative care, and people who use drugs. DESIGN: Scoping review. DATA SOURCES: We searched six bibliographic databases from inception to April 2021 as well as the grey literature. We included English and French records about palliative care access, programs, and policies and guidelines for people ⩾18 years old who use drugs during communicable disease epidemics and pandemics. RESULTS: Forty-four articles were included in our analysis. We identified limited knowledge about palliative care for people who use drugs during epidemics and pandemics other than HIV/AIDS. Through our thematic synthesis of the records, we generated the following themes: enablers and barriers to access, organizational barriers, structural inequity, access to opioids and other psychoactive substances, and stigma. CONCLUSIONS: Our findings underscore the need for further research about how best to provide palliative care for people who use drugs during epidemics and pandemics. We suggest four ways that health systems can be better prepared to help alleviate the structural barriers that limit access as well as support the provision of high-quality palliative care during future epidemics and pandemics.
format Online
Article
Text
id pubmed-9760505
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher SAGE Publications
record_format MEDLINE/PubMed
spelling pubmed-97605052022-12-19 Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines Buchman, Daniel Z Lo, Samantha Ding, Philip Dosani, Naheed Fazelzad, Rouhi Furlan, Andrea D Isenberg, Sarina R Spithoff, Sheryl Tedesco, Alissa Zimmermann, Camilla Lau, Jenny Palliat Med Review Articles BACKGROUND: People who use drugs with life-limiting illnesses experience substantial barriers to accessing palliative care. Demand for palliative care is expected to increase during communicable disease epidemics and pandemics. Understanding how epidemics and pandemics affect palliative care for people who use drugs is important from a service delivery perspective and for reducing population health inequities. AIM: To explore what is known about communicable disease epidemics and pandemics, palliative care, and people who use drugs. DESIGN: Scoping review. DATA SOURCES: We searched six bibliographic databases from inception to April 2021 as well as the grey literature. We included English and French records about palliative care access, programs, and policies and guidelines for people ⩾18 years old who use drugs during communicable disease epidemics and pandemics. RESULTS: Forty-four articles were included in our analysis. We identified limited knowledge about palliative care for people who use drugs during epidemics and pandemics other than HIV/AIDS. Through our thematic synthesis of the records, we generated the following themes: enablers and barriers to access, organizational barriers, structural inequity, access to opioids and other psychoactive substances, and stigma. CONCLUSIONS: Our findings underscore the need for further research about how best to provide palliative care for people who use drugs during epidemics and pandemics. We suggest four ways that health systems can be better prepared to help alleviate the structural barriers that limit access as well as support the provision of high-quality palliative care during future epidemics and pandemics. SAGE Publications 2022-12-15 2023-04 /pmc/articles/PMC9760505/ /pubmed/36522840 http://dx.doi.org/10.1177/02692163221143153 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Review Articles
Buchman, Daniel Z
Lo, Samantha
Ding, Philip
Dosani, Naheed
Fazelzad, Rouhi
Furlan, Andrea D
Isenberg, Sarina R
Spithoff, Sheryl
Tedesco, Alissa
Zimmermann, Camilla
Lau, Jenny
Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines
title Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines
title_full Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines
title_fullStr Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines
title_full_unstemmed Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines
title_short Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines
title_sort palliative care for people who use drugs during communicable disease epidemics and pandemics: a scoping review on access, policies, and programs and guidelines
topic Review Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9760505/
https://www.ncbi.nlm.nih.gov/pubmed/36522840
http://dx.doi.org/10.1177/02692163221143153
work_keys_str_mv AT buchmandanielz palliativecareforpeoplewhousedrugsduringcommunicablediseaseepidemicsandpandemicsascopingreviewonaccesspoliciesandprogramsandguidelines
AT losamantha palliativecareforpeoplewhousedrugsduringcommunicablediseaseepidemicsandpandemicsascopingreviewonaccesspoliciesandprogramsandguidelines
AT dingphilip palliativecareforpeoplewhousedrugsduringcommunicablediseaseepidemicsandpandemicsascopingreviewonaccesspoliciesandprogramsandguidelines
AT dosaninaheed palliativecareforpeoplewhousedrugsduringcommunicablediseaseepidemicsandpandemicsascopingreviewonaccesspoliciesandprogramsandguidelines
AT fazelzadrouhi palliativecareforpeoplewhousedrugsduringcommunicablediseaseepidemicsandpandemicsascopingreviewonaccesspoliciesandprogramsandguidelines
AT furlanandread palliativecareforpeoplewhousedrugsduringcommunicablediseaseepidemicsandpandemicsascopingreviewonaccesspoliciesandprogramsandguidelines
AT isenbergsarinar palliativecareforpeoplewhousedrugsduringcommunicablediseaseepidemicsandpandemicsascopingreviewonaccesspoliciesandprogramsandguidelines
AT spithoffsheryl palliativecareforpeoplewhousedrugsduringcommunicablediseaseepidemicsandpandemicsascopingreviewonaccesspoliciesandprogramsandguidelines
AT tedescoalissa palliativecareforpeoplewhousedrugsduringcommunicablediseaseepidemicsandpandemicsascopingreviewonaccesspoliciesandprogramsandguidelines
AT zimmermanncamilla palliativecareforpeoplewhousedrugsduringcommunicablediseaseepidemicsandpandemicsascopingreviewonaccesspoliciesandprogramsandguidelines
AT laujenny palliativecareforpeoplewhousedrugsduringcommunicablediseaseepidemicsandpandemicsascopingreviewonaccesspoliciesandprogramsandguidelines