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Integrating primary palliative care into hidradenitis suppurativa management

Hidradenitis suppurativa (HS) is a chronic, often debilitating skin condition that disproportionately impacts women in the United States and other Western nations. Dermatologists should consider incorporating palliative care principles into HS management to optimize care. Primary palliative care pri...

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Detalles Bibliográficos
Autores principales: Shih, Terri, Zell, Monica, Karlin, Daniel, De, Devea R., Smogorzewski, Jan, Shi, Vivian Y., Hsiao, Jennifer L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Lippincott Williams & Wilkins 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9760599/
https://www.ncbi.nlm.nih.gov/pubmed/36567965
http://dx.doi.org/10.1097/JW9.0000000000000063
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author Shih, Terri
Zell, Monica
Karlin, Daniel
De, Devea R.
Smogorzewski, Jan
Shi, Vivian Y.
Hsiao, Jennifer L.
author_facet Shih, Terri
Zell, Monica
Karlin, Daniel
De, Devea R.
Smogorzewski, Jan
Shi, Vivian Y.
Hsiao, Jennifer L.
author_sort Shih, Terri
collection PubMed
description Hidradenitis suppurativa (HS) is a chronic, often debilitating skin condition that disproportionately impacts women in the United States and other Western nations. Dermatologists should consider incorporating palliative care principles into HS management to optimize care. Primary palliative care principles include utilizing evidence-based frameworks in serious illness communication, acknowledging and addressing physical and psychosocial suffering, recognizing and validating the burden of disease in partners, families, and caregivers, and engaging in collaborative care coordination. Certain patients may also benefit from outpatient, or sometimes inpatient, palliative care specialist collaboration, such as those with refractory HS and superimposed challenging psychosocial dynamics and symptom burden. Through integration of these palliative care domains into HS care, dermatologists can optimize their ability to provide comprehensive and compassionate care for patients suffering with this disease.
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spelling pubmed-97605992022-12-22 Integrating primary palliative care into hidradenitis suppurativa management Shih, Terri Zell, Monica Karlin, Daniel De, Devea R. Smogorzewski, Jan Shi, Vivian Y. Hsiao, Jennifer L. Int J Womens Dermatol Art of Prevention Hidradenitis suppurativa (HS) is a chronic, often debilitating skin condition that disproportionately impacts women in the United States and other Western nations. Dermatologists should consider incorporating palliative care principles into HS management to optimize care. Primary palliative care principles include utilizing evidence-based frameworks in serious illness communication, acknowledging and addressing physical and psychosocial suffering, recognizing and validating the burden of disease in partners, families, and caregivers, and engaging in collaborative care coordination. Certain patients may also benefit from outpatient, or sometimes inpatient, palliative care specialist collaboration, such as those with refractory HS and superimposed challenging psychosocial dynamics and symptom burden. Through integration of these palliative care domains into HS care, dermatologists can optimize their ability to provide comprehensive and compassionate care for patients suffering with this disease. Lippincott Williams & Wilkins 2022-12-16 /pmc/articles/PMC9760599/ /pubmed/36567965 http://dx.doi.org/10.1097/JW9.0000000000000063 Text en Copyright © 2022 The Authors. Published by Wolters Kluwer Health, Inc. on behalf of Women’s Dermatologic Society. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CCBY-NC-ND) (https://creativecommons.org/licenses/by-nc-nd/4.0/) , where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal.
spellingShingle Art of Prevention
Shih, Terri
Zell, Monica
Karlin, Daniel
De, Devea R.
Smogorzewski, Jan
Shi, Vivian Y.
Hsiao, Jennifer L.
Integrating primary palliative care into hidradenitis suppurativa management
title Integrating primary palliative care into hidradenitis suppurativa management
title_full Integrating primary palliative care into hidradenitis suppurativa management
title_fullStr Integrating primary palliative care into hidradenitis suppurativa management
title_full_unstemmed Integrating primary palliative care into hidradenitis suppurativa management
title_short Integrating primary palliative care into hidradenitis suppurativa management
title_sort integrating primary palliative care into hidradenitis suppurativa management
topic Art of Prevention
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9760599/
https://www.ncbi.nlm.nih.gov/pubmed/36567965
http://dx.doi.org/10.1097/JW9.0000000000000063
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