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Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation

OBJECTIVE: To explore and compare the contents and scores of the Assessment of Life Habits (Life-H) with the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in adolescents with cerebral palsy. DESIGN: Youth versions of both instruments were used for (1) content comp...

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Autores principales: van Alphen, Gerjanne J., Ketelaar, Marjolijn, Voorman, Jeanine M., Scholten, Eline W.M., Post, Marcel W.M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9761302/
https://www.ncbi.nlm.nih.gov/pubmed/36545524
http://dx.doi.org/10.1016/j.arrct.2022.100240
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author van Alphen, Gerjanne J.
Ketelaar, Marjolijn
Voorman, Jeanine M.
Scholten, Eline W.M.
Post, Marcel W.M.
author_facet van Alphen, Gerjanne J.
Ketelaar, Marjolijn
Voorman, Jeanine M.
Scholten, Eline W.M.
Post, Marcel W.M.
author_sort van Alphen, Gerjanne J.
collection PubMed
description OBJECTIVE: To explore and compare the contents and scores of the Assessment of Life Habits (Life-H) with the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in adolescents with cerebral palsy. DESIGN: Youth versions of both instruments were used for (1) content comparison and (2) analyses of relations between both instruments, based on cross-sectional data. SETTING: Clinic. PARTICIPANTS: Participants were adolescents with cerebral palsy, aged 12-18 years; Gross Motor Function Classification System I-V; N=45. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Assessment of Life Habits (Life-H) with USER-Participation. RESULTS: Both instruments measure independence in participation, called accomplishment (Life-H) and restrictions (USER-Participation), and satisfaction with participation. Life-H provides a profile of 6 domain scores and the USER-Participation a total score per dimension. Compared with the USER-Participation, the Life-H contains more specific items, more items not-applicable to many participants and more ceiling effects. Total scores on the accomplishment/restrictions and satisfaction scales between both instruments showed strong correlation coefficients (0.87 and 0.67, respectively). Correlations between domain scores were stronger within the accomplishment/restrictions scales (range 0.37-0.88) compared with the satisfaction scales (range 0.22-0.68). CONCLUSIONS: Compared with the USER-Participation, the Life-H takes more effort to complete but provides a more comprehensive assessment of participation. Participation accomplishment/restrictions scores were more similar between the instruments compared with satisfaction scores. Researchers and clinicians should carefully compare participation instruments in selecting one that matches their purpose.
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spelling pubmed-97613022022-12-20 Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation van Alphen, Gerjanne J. Ketelaar, Marjolijn Voorman, Jeanine M. Scholten, Eline W.M. Post, Marcel W.M. Arch Rehabil Res Clin Transl Original Research OBJECTIVE: To explore and compare the contents and scores of the Assessment of Life Habits (Life-H) with the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in adolescents with cerebral palsy. DESIGN: Youth versions of both instruments were used for (1) content comparison and (2) analyses of relations between both instruments, based on cross-sectional data. SETTING: Clinic. PARTICIPANTS: Participants were adolescents with cerebral palsy, aged 12-18 years; Gross Motor Function Classification System I-V; N=45. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Assessment of Life Habits (Life-H) with USER-Participation. RESULTS: Both instruments measure independence in participation, called accomplishment (Life-H) and restrictions (USER-Participation), and satisfaction with participation. Life-H provides a profile of 6 domain scores and the USER-Participation a total score per dimension. Compared with the USER-Participation, the Life-H contains more specific items, more items not-applicable to many participants and more ceiling effects. Total scores on the accomplishment/restrictions and satisfaction scales between both instruments showed strong correlation coefficients (0.87 and 0.67, respectively). Correlations between domain scores were stronger within the accomplishment/restrictions scales (range 0.37-0.88) compared with the satisfaction scales (range 0.22-0.68). CONCLUSIONS: Compared with the USER-Participation, the Life-H takes more effort to complete but provides a more comprehensive assessment of participation. Participation accomplishment/restrictions scores were more similar between the instruments compared with satisfaction scores. Researchers and clinicians should carefully compare participation instruments in selecting one that matches their purpose. Elsevier 2022-10-25 /pmc/articles/PMC9761302/ /pubmed/36545524 http://dx.doi.org/10.1016/j.arrct.2022.100240 Text en © 2022 The Authors https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
spellingShingle Original Research
van Alphen, Gerjanne J.
Ketelaar, Marjolijn
Voorman, Jeanine M.
Scholten, Eline W.M.
Post, Marcel W.M.
Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation
title Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation
title_full Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation
title_fullStr Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation
title_full_unstemmed Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation
title_short Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation
title_sort assessing participation in adolescents with cerebral palsy: comparison of life-habits and user-participation
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9761302/
https://www.ncbi.nlm.nih.gov/pubmed/36545524
http://dx.doi.org/10.1016/j.arrct.2022.100240
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