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Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation
OBJECTIVE: To explore and compare the contents and scores of the Assessment of Life Habits (Life-H) with the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in adolescents with cerebral palsy. DESIGN: Youth versions of both instruments were used for (1) content comp...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9761302/ https://www.ncbi.nlm.nih.gov/pubmed/36545524 http://dx.doi.org/10.1016/j.arrct.2022.100240 |
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author | van Alphen, Gerjanne J. Ketelaar, Marjolijn Voorman, Jeanine M. Scholten, Eline W.M. Post, Marcel W.M. |
author_facet | van Alphen, Gerjanne J. Ketelaar, Marjolijn Voorman, Jeanine M. Scholten, Eline W.M. Post, Marcel W.M. |
author_sort | van Alphen, Gerjanne J. |
collection | PubMed |
description | OBJECTIVE: To explore and compare the contents and scores of the Assessment of Life Habits (Life-H) with the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in adolescents with cerebral palsy. DESIGN: Youth versions of both instruments were used for (1) content comparison and (2) analyses of relations between both instruments, based on cross-sectional data. SETTING: Clinic. PARTICIPANTS: Participants were adolescents with cerebral palsy, aged 12-18 years; Gross Motor Function Classification System I-V; N=45. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Assessment of Life Habits (Life-H) with USER-Participation. RESULTS: Both instruments measure independence in participation, called accomplishment (Life-H) and restrictions (USER-Participation), and satisfaction with participation. Life-H provides a profile of 6 domain scores and the USER-Participation a total score per dimension. Compared with the USER-Participation, the Life-H contains more specific items, more items not-applicable to many participants and more ceiling effects. Total scores on the accomplishment/restrictions and satisfaction scales between both instruments showed strong correlation coefficients (0.87 and 0.67, respectively). Correlations between domain scores were stronger within the accomplishment/restrictions scales (range 0.37-0.88) compared with the satisfaction scales (range 0.22-0.68). CONCLUSIONS: Compared with the USER-Participation, the Life-H takes more effort to complete but provides a more comprehensive assessment of participation. Participation accomplishment/restrictions scores were more similar between the instruments compared with satisfaction scores. Researchers and clinicians should carefully compare participation instruments in selecting one that matches their purpose. |
format | Online Article Text |
id | pubmed-9761302 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Elsevier |
record_format | MEDLINE/PubMed |
spelling | pubmed-97613022022-12-20 Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation van Alphen, Gerjanne J. Ketelaar, Marjolijn Voorman, Jeanine M. Scholten, Eline W.M. Post, Marcel W.M. Arch Rehabil Res Clin Transl Original Research OBJECTIVE: To explore and compare the contents and scores of the Assessment of Life Habits (Life-H) with the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in adolescents with cerebral palsy. DESIGN: Youth versions of both instruments were used for (1) content comparison and (2) analyses of relations between both instruments, based on cross-sectional data. SETTING: Clinic. PARTICIPANTS: Participants were adolescents with cerebral palsy, aged 12-18 years; Gross Motor Function Classification System I-V; N=45. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Assessment of Life Habits (Life-H) with USER-Participation. RESULTS: Both instruments measure independence in participation, called accomplishment (Life-H) and restrictions (USER-Participation), and satisfaction with participation. Life-H provides a profile of 6 domain scores and the USER-Participation a total score per dimension. Compared with the USER-Participation, the Life-H contains more specific items, more items not-applicable to many participants and more ceiling effects. Total scores on the accomplishment/restrictions and satisfaction scales between both instruments showed strong correlation coefficients (0.87 and 0.67, respectively). Correlations between domain scores were stronger within the accomplishment/restrictions scales (range 0.37-0.88) compared with the satisfaction scales (range 0.22-0.68). CONCLUSIONS: Compared with the USER-Participation, the Life-H takes more effort to complete but provides a more comprehensive assessment of participation. Participation accomplishment/restrictions scores were more similar between the instruments compared with satisfaction scores. Researchers and clinicians should carefully compare participation instruments in selecting one that matches their purpose. Elsevier 2022-10-25 /pmc/articles/PMC9761302/ /pubmed/36545524 http://dx.doi.org/10.1016/j.arrct.2022.100240 Text en © 2022 The Authors https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). |
spellingShingle | Original Research van Alphen, Gerjanne J. Ketelaar, Marjolijn Voorman, Jeanine M. Scholten, Eline W.M. Post, Marcel W.M. Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation |
title | Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation |
title_full | Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation |
title_fullStr | Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation |
title_full_unstemmed | Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation |
title_short | Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation |
title_sort | assessing participation in adolescents with cerebral palsy: comparison of life-habits and user-participation |
topic | Original Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9761302/ https://www.ncbi.nlm.nih.gov/pubmed/36545524 http://dx.doi.org/10.1016/j.arrct.2022.100240 |
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