Rare disease education in Europe and beyond: time to act

People living with rare diseases (PLWRD) still face huge unmet needs, in part due to the fact that care systems are not sufficiently aligned with their needs and healthcare workforce (HWF) along their care pathways lacks competencies to efficiently tackle rare disease-specific challenges. Level of r...

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Detalles Bibliográficos
Autores principales: Tumiene, Birute, Peters, Harm, Melegh, Bela, Peterlin, Borut, Utkus, Algirdas, Fatkulina, Natalja, Pfliegler, György, Graessner, Holm, Hermanns, Sanja, Scarpa, Maurizio, Blay, Jean-Yves, Ashton, Sharon, McKay, Lucy, Baynam, Gareth
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Position Statement
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9761619/
https://www.ncbi.nlm.nih.gov/pubmed/36536417
http://dx.doi.org/10.1186/s13023-022-02527-y

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