Cargando…

The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands

This qualitative study aimed to explore the experienced influence of HIV on the quality of life (QoL) of people with HIV (PHIV) and key populations without but are vulnerable to HIV in the Netherlands. We conducted and thematically analyzed interviews with 29 PHIV and 13 participants from key popula...

Descripción completa

Detalles Bibliográficos
Autores principales: Romijnders, Kim A. G. J., de Groot, Laura, Vervoort, Sigrid C. J. M., Basten, Maartje, van Welzen, Berend J., Kretzschmar, Mirjam E., Reiss, Peter, Davidovich, Udi, van der Loeff, Maarten F. Schim, Rozhnova, Ganna
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group UK 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9761623/
https://www.ncbi.nlm.nih.gov/pubmed/36536038
http://dx.doi.org/10.1038/s41598-022-25113-5
_version_ 1784852716872269824
author Romijnders, Kim A. G. J.
de Groot, Laura
Vervoort, Sigrid C. J. M.
Basten, Maartje
van Welzen, Berend J.
Kretzschmar, Mirjam E.
Reiss, Peter
Davidovich, Udi
van der Loeff, Maarten F. Schim
Rozhnova, Ganna
author_facet Romijnders, Kim A. G. J.
de Groot, Laura
Vervoort, Sigrid C. J. M.
Basten, Maartje
van Welzen, Berend J.
Kretzschmar, Mirjam E.
Reiss, Peter
Davidovich, Udi
van der Loeff, Maarten F. Schim
Rozhnova, Ganna
author_sort Romijnders, Kim A. G. J.
collection PubMed
description This qualitative study aimed to explore the experienced influence of HIV on the quality of life (QoL) of people with HIV (PHIV) and key populations without but are vulnerable to HIV in the Netherlands. We conducted and thematically analyzed interviews with 29 PHIV and 13 participants from key populations without HIV (i.e., men who have sex with men). PHIV and key populations shared positive meaningful experiences regarding HIV, i.e., feeling grateful for ART, life, and the availability of PrEP, being loved and supported in the light of HIV, and providing support to the community. Negative predominant experiences regarding HIV were described by both PHIV and key populations as the negative effects of ART, challenges with regards to disclosing HIV, social stigmatization, and self-stigma. It remains important to support HIV community organizations in their efforts to reduce social stigmatization and to continue improving biomedical interventions for HIV.
format Online
Article
Text
id pubmed-9761623
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher Nature Publishing Group UK
record_format MEDLINE/PubMed
spelling pubmed-97616232022-12-19 The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands Romijnders, Kim A. G. J. de Groot, Laura Vervoort, Sigrid C. J. M. Basten, Maartje van Welzen, Berend J. Kretzschmar, Mirjam E. Reiss, Peter Davidovich, Udi van der Loeff, Maarten F. Schim Rozhnova, Ganna Sci Rep Article This qualitative study aimed to explore the experienced influence of HIV on the quality of life (QoL) of people with HIV (PHIV) and key populations without but are vulnerable to HIV in the Netherlands. We conducted and thematically analyzed interviews with 29 PHIV and 13 participants from key populations without HIV (i.e., men who have sex with men). PHIV and key populations shared positive meaningful experiences regarding HIV, i.e., feeling grateful for ART, life, and the availability of PrEP, being loved and supported in the light of HIV, and providing support to the community. Negative predominant experiences regarding HIV were described by both PHIV and key populations as the negative effects of ART, challenges with regards to disclosing HIV, social stigmatization, and self-stigma. It remains important to support HIV community organizations in their efforts to reduce social stigmatization and to continue improving biomedical interventions for HIV. Nature Publishing Group UK 2022-12-19 /pmc/articles/PMC9761623/ /pubmed/36536038 http://dx.doi.org/10.1038/s41598-022-25113-5 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Article
Romijnders, Kim A. G. J.
de Groot, Laura
Vervoort, Sigrid C. J. M.
Basten, Maartje
van Welzen, Berend J.
Kretzschmar, Mirjam E.
Reiss, Peter
Davidovich, Udi
van der Loeff, Maarten F. Schim
Rozhnova, Ganna
The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands
title The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands
title_full The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands
title_fullStr The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands
title_full_unstemmed The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands
title_short The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands
title_sort experienced positive and negative influence of hiv on quality of life of people with hiv and vulnerable to hiv in the netherlands
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9761623/
https://www.ncbi.nlm.nih.gov/pubmed/36536038
http://dx.doi.org/10.1038/s41598-022-25113-5
work_keys_str_mv AT romijnderskimagj theexperiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT degrootlaura theexperiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT vervoortsigridcjm theexperiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT bastenmaartje theexperiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT vanwelzenberendj theexperiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT kretzschmarmirjame theexperiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT reisspeter theexperiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT davidovichudi theexperiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT vanderloeffmaartenfschim theexperiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT rozhnovaganna theexperiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT romijnderskimagj experiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT degrootlaura experiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT vervoortsigridcjm experiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT bastenmaartje experiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT vanwelzenberendj experiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT kretzschmarmirjame experiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT reisspeter experiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT davidovichudi experiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT vanderloeffmaartenfschim experiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands
AT rozhnovaganna experiencedpositiveandnegativeinfluenceofhivonqualityoflifeofpeoplewithhivandvulnerabletohivinthenetherlands