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While quarantined: An online parent education and training model for families of children with autism in China

PURPOSE: In the wake of the COVID-19 outbreak, already limited services and resources for families of children with autism spectrum disorder (ASD) in China became even more scarce. This qualitative case study highlights one online parent education and training (PET) program developed during the pand...

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Autor principal: McDevitt, Seung Eun
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier Ltd. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9761934/
https://www.ncbi.nlm.nih.gov/pubmed/33465589
http://dx.doi.org/10.1016/j.ridd.2020.103851
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author McDevitt, Seung Eun
author_facet McDevitt, Seung Eun
author_sort McDevitt, Seung Eun
collection PubMed
description PURPOSE: In the wake of the COVID-19 outbreak, already limited services and resources for families of children with autism spectrum disorder (ASD) in China became even more scarce. This qualitative case study highlights one online parent education and training (PET) program developed during the pandemic to offer home-intervention strategies to parents of children with ASD in mainland China. This exploratory study sought to examine the emic perspectives of the trainers and parents who participated in the 12-week intensive training program while considering the cultural context in China and the transnational, remote nature of the program. METHODS: The primary data focused on the experiences of the trainers and parents within PET program’s structure and strategies, which were adapted from the Training of Trainers model, and were collected from semi-structured, in-depth individual and focus group interviews conducted virtually with trainers (n = 4). Supplemental data sources included training session materials and feedback forms collected from parents (n = 294) at the midpoint and end of the program. After the collected data were sorted and condensed, a thematic analysis was performed using the data analysis spiral to further organize and code the data, and the codes were finally collapsed into themes. FINDINGS: Three overarching themes were identified: (1) training as modeling with resources, (2) dilemmas in cultural contexts and expectations, and (3) cultivating parent support networks. CONCLUSION: The online PET program became a hub of support networks and learning spaces for parents of children with ASD in different regions in China during the pandemic. Through the interactive virtual training sessions, parents were supported by continuous feedback on their home intervention and coached to cultivate support networks among themselves despite tensions arising from cultural differences and to implement effective intervention strategies that were individualized and authenticated to their specific familial needs.
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spelling pubmed-97619342022-12-19 While quarantined: An online parent education and training model for families of children with autism in China McDevitt, Seung Eun Res Dev Disabil Article PURPOSE: In the wake of the COVID-19 outbreak, already limited services and resources for families of children with autism spectrum disorder (ASD) in China became even more scarce. This qualitative case study highlights one online parent education and training (PET) program developed during the pandemic to offer home-intervention strategies to parents of children with ASD in mainland China. This exploratory study sought to examine the emic perspectives of the trainers and parents who participated in the 12-week intensive training program while considering the cultural context in China and the transnational, remote nature of the program. METHODS: The primary data focused on the experiences of the trainers and parents within PET program’s structure and strategies, which were adapted from the Training of Trainers model, and were collected from semi-structured, in-depth individual and focus group interviews conducted virtually with trainers (n = 4). Supplemental data sources included training session materials and feedback forms collected from parents (n = 294) at the midpoint and end of the program. After the collected data were sorted and condensed, a thematic analysis was performed using the data analysis spiral to further organize and code the data, and the codes were finally collapsed into themes. FINDINGS: Three overarching themes were identified: (1) training as modeling with resources, (2) dilemmas in cultural contexts and expectations, and (3) cultivating parent support networks. CONCLUSION: The online PET program became a hub of support networks and learning spaces for parents of children with ASD in different regions in China during the pandemic. Through the interactive virtual training sessions, parents were supported by continuous feedback on their home intervention and coached to cultivate support networks among themselves despite tensions arising from cultural differences and to implement effective intervention strategies that were individualized and authenticated to their specific familial needs. Elsevier Ltd. 2021-02 2021-01-16 /pmc/articles/PMC9761934/ /pubmed/33465589 http://dx.doi.org/10.1016/j.ridd.2020.103851 Text en © 2021 Elsevier Ltd. All rights reserved. Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active.
spellingShingle Article
McDevitt, Seung Eun
While quarantined: An online parent education and training model for families of children with autism in China
title While quarantined: An online parent education and training model for families of children with autism in China
title_full While quarantined: An online parent education and training model for families of children with autism in China
title_fullStr While quarantined: An online parent education and training model for families of children with autism in China
title_full_unstemmed While quarantined: An online parent education and training model for families of children with autism in China
title_short While quarantined: An online parent education and training model for families of children with autism in China
title_sort while quarantined: an online parent education and training model for families of children with autism in china
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9761934/
https://www.ncbi.nlm.nih.gov/pubmed/33465589
http://dx.doi.org/10.1016/j.ridd.2020.103851
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