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ENGAGING A COMMUNITY ADVISORY BOARD TO VALIDATE A CULTURALLY TAILORED INTERVENTION MODEL
National dementia research priorities call for interventional studies addressing the needs of vulnerable populations experiencing disparities and for greater inclusion of dementia care recipients and their family caregivers in research. While studies document disparities, high needs and experiences...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766081/ http://dx.doi.org/10.1093/geroni/igac059.1036 |
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author | Cotton, Quinton Green-Harris, Gina Chang, Juliet Block, Laura Gilmore-Bykovskyi, Andrea |
author_facet | Cotton, Quinton Green-Harris, Gina Chang, Juliet Block, Laura Gilmore-Bykovskyi, Andrea |
author_sort | Cotton, Quinton |
collection | PubMed |
description | National dementia research priorities call for interventional studies addressing the needs of vulnerable populations experiencing disparities and for greater inclusion of dementia care recipients and their family caregivers in research. While studies document disparities, high needs and experiences of African American dementia caregivers, there is limited translation of this knowledge into the development, implementation, and dissemination of dementia-specific culturally tailored interventions. Research methods that facilitate engagement capable of strengthening data collection and culturally congruent interpretation of caregiving perspectives are needed to inform intervention development. Drawing on a qualitative study utilizing Grounded Dimensional Analysis, we employed a longitudinal engagement method with a Community Advisory Board (CAB) to validate a culturally tailored crisis intervention model for African American dementia caregivers. We identified lessons learned through a review of transcripts, memos and research team discussions. CAB members identified language, family structure, cultural history, knowledge, and respect as important features for cultural tailoring. |
format | Online Article Text |
id | pubmed-9766081 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-97660812022-12-20 ENGAGING A COMMUNITY ADVISORY BOARD TO VALIDATE A CULTURALLY TAILORED INTERVENTION MODEL Cotton, Quinton Green-Harris, Gina Chang, Juliet Block, Laura Gilmore-Bykovskyi, Andrea Innov Aging Abstracts National dementia research priorities call for interventional studies addressing the needs of vulnerable populations experiencing disparities and for greater inclusion of dementia care recipients and their family caregivers in research. While studies document disparities, high needs and experiences of African American dementia caregivers, there is limited translation of this knowledge into the development, implementation, and dissemination of dementia-specific culturally tailored interventions. Research methods that facilitate engagement capable of strengthening data collection and culturally congruent interpretation of caregiving perspectives are needed to inform intervention development. Drawing on a qualitative study utilizing Grounded Dimensional Analysis, we employed a longitudinal engagement method with a Community Advisory Board (CAB) to validate a culturally tailored crisis intervention model for African American dementia caregivers. We identified lessons learned through a review of transcripts, memos and research team discussions. CAB members identified language, family structure, cultural history, knowledge, and respect as important features for cultural tailoring. Oxford University Press 2022-12-20 /pmc/articles/PMC9766081/ http://dx.doi.org/10.1093/geroni/igac059.1036 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Abstracts Cotton, Quinton Green-Harris, Gina Chang, Juliet Block, Laura Gilmore-Bykovskyi, Andrea ENGAGING A COMMUNITY ADVISORY BOARD TO VALIDATE A CULTURALLY TAILORED INTERVENTION MODEL |
title | ENGAGING A COMMUNITY ADVISORY BOARD TO VALIDATE A CULTURALLY TAILORED INTERVENTION MODEL |
title_full | ENGAGING A COMMUNITY ADVISORY BOARD TO VALIDATE A CULTURALLY TAILORED INTERVENTION MODEL |
title_fullStr | ENGAGING A COMMUNITY ADVISORY BOARD TO VALIDATE A CULTURALLY TAILORED INTERVENTION MODEL |
title_full_unstemmed | ENGAGING A COMMUNITY ADVISORY BOARD TO VALIDATE A CULTURALLY TAILORED INTERVENTION MODEL |
title_short | ENGAGING A COMMUNITY ADVISORY BOARD TO VALIDATE A CULTURALLY TAILORED INTERVENTION MODEL |
title_sort | engaging a community advisory board to validate a culturally tailored intervention model |
topic | Abstracts |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766081/ http://dx.doi.org/10.1093/geroni/igac059.1036 |
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