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PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA
Adults aging with mild cognitive impairment (MCI)/early dementia often experience physical disability, yet most research is focused on cognitive or physical disability rather than both. Understanding the experiences of this population and their care partners will help identify unmet needs and potent...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766186/ http://dx.doi.org/10.1093/geroni/igac059.1494 |
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author | Jenkins, Emerald Taylor, Janiece Evelyn-Gustave, Allyson Hornstein, Erika Wolff, Jennifer Rebok, George Szanton, Sarah |
author_facet | Jenkins, Emerald Taylor, Janiece Evelyn-Gustave, Allyson Hornstein, Erika Wolff, Jennifer Rebok, George Szanton, Sarah |
author_sort | Jenkins, Emerald |
collection | PubMed |
description | Adults aging with mild cognitive impairment (MCI)/early dementia often experience physical disability, yet most research is focused on cognitive or physical disability rather than both. Understanding the experiences of this population and their care partners will help identify unmet needs and potential solutions. The purpose of this study is to explore perceptions of daily experiences relevant to aging in place in this population. We used human-centered design, critical ethnography, photos, written narratives, and semi-structured interviews with community-dwelling care partners (mean age: 63 years (SD= 7.48)) and older adults with MCI/early dementia and physical disability (mean age: 84.5 years (SD =2.60)) (total n= 9). Example participant insights included: preferred nonpharmacological remedies for pain, environmental constraints resulting in further isolation, systems of reminders relevant to the older adults’ preferences, and the importance of shared dyadic activities. This study demonstrates participants’ lived experiences and challenges faced and informs tailoring of an evidenced-based intervention. |
format | Online Article Text |
id | pubmed-9766186 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-97661862022-12-20 PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA Jenkins, Emerald Taylor, Janiece Evelyn-Gustave, Allyson Hornstein, Erika Wolff, Jennifer Rebok, George Szanton, Sarah Innov Aging Abstracts Adults aging with mild cognitive impairment (MCI)/early dementia often experience physical disability, yet most research is focused on cognitive or physical disability rather than both. Understanding the experiences of this population and their care partners will help identify unmet needs and potential solutions. The purpose of this study is to explore perceptions of daily experiences relevant to aging in place in this population. We used human-centered design, critical ethnography, photos, written narratives, and semi-structured interviews with community-dwelling care partners (mean age: 63 years (SD= 7.48)) and older adults with MCI/early dementia and physical disability (mean age: 84.5 years (SD =2.60)) (total n= 9). Example participant insights included: preferred nonpharmacological remedies for pain, environmental constraints resulting in further isolation, systems of reminders relevant to the older adults’ preferences, and the importance of shared dyadic activities. This study demonstrates participants’ lived experiences and challenges faced and informs tailoring of an evidenced-based intervention. Oxford University Press 2022-12-20 /pmc/articles/PMC9766186/ http://dx.doi.org/10.1093/geroni/igac059.1494 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Abstracts Jenkins, Emerald Taylor, Janiece Evelyn-Gustave, Allyson Hornstein, Erika Wolff, Jennifer Rebok, George Szanton, Sarah PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA |
title | PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA |
title_full | PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA |
title_fullStr | PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA |
title_full_unstemmed | PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA |
title_short | PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA |
title_sort | photovoice study to explore the physical disability experience in older adults with mci/early dementia |
topic | Abstracts |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766186/ http://dx.doi.org/10.1093/geroni/igac059.1494 |
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