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PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA

Adults aging with mild cognitive impairment (MCI)/early dementia often experience physical disability, yet most research is focused on cognitive or physical disability rather than both. Understanding the experiences of this population and their care partners will help identify unmet needs and potent...

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Autores principales: Jenkins, Emerald, Taylor, Janiece, Evelyn-Gustave, Allyson, Hornstein, Erika, Wolff, Jennifer, Rebok, George, Szanton, Sarah
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766186/
http://dx.doi.org/10.1093/geroni/igac059.1494
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author Jenkins, Emerald
Taylor, Janiece
Evelyn-Gustave, Allyson
Hornstein, Erika
Wolff, Jennifer
Rebok, George
Szanton, Sarah
author_facet Jenkins, Emerald
Taylor, Janiece
Evelyn-Gustave, Allyson
Hornstein, Erika
Wolff, Jennifer
Rebok, George
Szanton, Sarah
author_sort Jenkins, Emerald
collection PubMed
description Adults aging with mild cognitive impairment (MCI)/early dementia often experience physical disability, yet most research is focused on cognitive or physical disability rather than both. Understanding the experiences of this population and their care partners will help identify unmet needs and potential solutions. The purpose of this study is to explore perceptions of daily experiences relevant to aging in place in this population. We used human-centered design, critical ethnography, photos, written narratives, and semi-structured interviews with community-dwelling care partners (mean age: 63 years (SD= 7.48)) and older adults with MCI/early dementia and physical disability (mean age: 84.5 years (SD =2.60)) (total n= 9). Example participant insights included: preferred nonpharmacological remedies for pain, environmental constraints resulting in further isolation, systems of reminders relevant to the older adults’ preferences, and the importance of shared dyadic activities. This study demonstrates participants’ lived experiences and challenges faced and informs tailoring of an evidenced-based intervention.
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spelling pubmed-97661862022-12-20 PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA Jenkins, Emerald Taylor, Janiece Evelyn-Gustave, Allyson Hornstein, Erika Wolff, Jennifer Rebok, George Szanton, Sarah Innov Aging Abstracts Adults aging with mild cognitive impairment (MCI)/early dementia often experience physical disability, yet most research is focused on cognitive or physical disability rather than both. Understanding the experiences of this population and their care partners will help identify unmet needs and potential solutions. The purpose of this study is to explore perceptions of daily experiences relevant to aging in place in this population. We used human-centered design, critical ethnography, photos, written narratives, and semi-structured interviews with community-dwelling care partners (mean age: 63 years (SD= 7.48)) and older adults with MCI/early dementia and physical disability (mean age: 84.5 years (SD =2.60)) (total n= 9). Example participant insights included: preferred nonpharmacological remedies for pain, environmental constraints resulting in further isolation, systems of reminders relevant to the older adults’ preferences, and the importance of shared dyadic activities. This study demonstrates participants’ lived experiences and challenges faced and informs tailoring of an evidenced-based intervention. Oxford University Press 2022-12-20 /pmc/articles/PMC9766186/ http://dx.doi.org/10.1093/geroni/igac059.1494 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Jenkins, Emerald
Taylor, Janiece
Evelyn-Gustave, Allyson
Hornstein, Erika
Wolff, Jennifer
Rebok, George
Szanton, Sarah
PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA
title PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA
title_full PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA
title_fullStr PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA
title_full_unstemmed PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA
title_short PHOTOVOICE STUDY TO EXPLORE THE PHYSICAL DISABILITY EXPERIENCE IN OLDER ADULTS WITH MCI/EARLY DEMENTIA
title_sort photovoice study to explore the physical disability experience in older adults with mci/early dementia
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766186/
http://dx.doi.org/10.1093/geroni/igac059.1494
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