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CAREGIVER SUBGROUP ANALYSES FROM AN EMBEDDED DEMENTIA CARE EFFECTIVENESS TRIAL

Efficacious dementia care interventions for family/informal caregivers are increasingly being tested for effectiveness in “real world” service delivery settings. We conducted an effectiveness trial in which we embedded the Care of Persons with Dementia in their Environments (COPE) program into Conne...

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Autores principales: Fortinsky, Richard, Wakefield, Dorothy, Zhong, Lily, Grady, James, Piersol, Catherine, Robison, Julie, Gitlin, Laura
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766345/
http://dx.doi.org/10.1093/geroni/igac059.346
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author Fortinsky, Richard
Wakefield, Dorothy
Zhong, Lily
Grady, James
Piersol, Catherine
Robison, Julie
Gitlin, Laura
author_facet Fortinsky, Richard
Wakefield, Dorothy
Zhong, Lily
Grady, James
Piersol, Catherine
Robison, Julie
Gitlin, Laura
author_sort Fortinsky, Richard
collection PubMed
description Efficacious dementia care interventions for family/informal caregivers are increasingly being tested for effectiveness in “real world” service delivery settings. We conducted an effectiveness trial in which we embedded the Care of Persons with Dementia in their Environments (COPE) program into Connecticut’s publicly-funded Home and Community-Based Services program. COPE is designed to build dementia management skills in caregivers of people with dementia in the home setting. In published results from this trial with the full study cohort, caregivers who received COPE, compared to controls, experienced improved well-being due to the dementia management skills they learned (perceived well-being), but they did not experience reduced levels of distress due to dementia-related behavioral and psychological symptoms (distress). For this presentation, we determined COPE effects for selected caregiver subgroups on perceived well-being and distress. Regarding caregiver sex, we found that COPE effects were statistically significantly positive on both outcomes for females (both p<.05) but on neither outcome for males. Controlling for sex, we also found positive COPE effects on both outcomes for daughters (both p=.03) but on neither outcome for spouses or sons. For perceived well-being, we found positive COPE effects for White (p<.001) but not for Black caregivers. For distress, we found positive COPE effects for caregivers living apart (p=0.03) but not for those living together with people with dementia. Findings suggest that male, Black, and co-residing caregivers may need more support from COPE, and more broadly demonstrate the value of subgroup analyses in offering greater precision when embedding nonpharmacological interventions in effectiveness trials.
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spelling pubmed-97663452022-12-20 CAREGIVER SUBGROUP ANALYSES FROM AN EMBEDDED DEMENTIA CARE EFFECTIVENESS TRIAL Fortinsky, Richard Wakefield, Dorothy Zhong, Lily Grady, James Piersol, Catherine Robison, Julie Gitlin, Laura Innov Aging Abstracts Efficacious dementia care interventions for family/informal caregivers are increasingly being tested for effectiveness in “real world” service delivery settings. We conducted an effectiveness trial in which we embedded the Care of Persons with Dementia in their Environments (COPE) program into Connecticut’s publicly-funded Home and Community-Based Services program. COPE is designed to build dementia management skills in caregivers of people with dementia in the home setting. In published results from this trial with the full study cohort, caregivers who received COPE, compared to controls, experienced improved well-being due to the dementia management skills they learned (perceived well-being), but they did not experience reduced levels of distress due to dementia-related behavioral and psychological symptoms (distress). For this presentation, we determined COPE effects for selected caregiver subgroups on perceived well-being and distress. Regarding caregiver sex, we found that COPE effects were statistically significantly positive on both outcomes for females (both p<.05) but on neither outcome for males. Controlling for sex, we also found positive COPE effects on both outcomes for daughters (both p=.03) but on neither outcome for spouses or sons. For perceived well-being, we found positive COPE effects for White (p<.001) but not for Black caregivers. For distress, we found positive COPE effects for caregivers living apart (p=0.03) but not for those living together with people with dementia. Findings suggest that male, Black, and co-residing caregivers may need more support from COPE, and more broadly demonstrate the value of subgroup analyses in offering greater precision when embedding nonpharmacological interventions in effectiveness trials. Oxford University Press 2022-12-20 /pmc/articles/PMC9766345/ http://dx.doi.org/10.1093/geroni/igac059.346 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Fortinsky, Richard
Wakefield, Dorothy
Zhong, Lily
Grady, James
Piersol, Catherine
Robison, Julie
Gitlin, Laura
CAREGIVER SUBGROUP ANALYSES FROM AN EMBEDDED DEMENTIA CARE EFFECTIVENESS TRIAL
title CAREGIVER SUBGROUP ANALYSES FROM AN EMBEDDED DEMENTIA CARE EFFECTIVENESS TRIAL
title_full CAREGIVER SUBGROUP ANALYSES FROM AN EMBEDDED DEMENTIA CARE EFFECTIVENESS TRIAL
title_fullStr CAREGIVER SUBGROUP ANALYSES FROM AN EMBEDDED DEMENTIA CARE EFFECTIVENESS TRIAL
title_full_unstemmed CAREGIVER SUBGROUP ANALYSES FROM AN EMBEDDED DEMENTIA CARE EFFECTIVENESS TRIAL
title_short CAREGIVER SUBGROUP ANALYSES FROM AN EMBEDDED DEMENTIA CARE EFFECTIVENESS TRIAL
title_sort caregiver subgroup analyses from an embedded dementia care effectiveness trial
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766345/
http://dx.doi.org/10.1093/geroni/igac059.346
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