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A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA

African immigrants are a fast-growing segment of the U.S. Black population, but the dementia care needs and resources of this population are not fully understood. We will describe the process of developing culturally informed instruments to collect data on dementia care needs and resources among Afr...

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Autores principales: Nkimbeng, Manka, Rosebush, Christina, Akosah, Kwame, Yam, Hawking, Russel, Wynfred, Albers, Elizabeth, Shippee, Tetyana, Gaugler, Joseph
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766396/
http://dx.doi.org/10.1093/geroni/igac059.239
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author Nkimbeng, Manka
Rosebush, Christina
Akosah, Kwame
Yam, Hawking
Russel, Wynfred
Albers, Elizabeth
Shippee, Tetyana
Gaugler, Joseph
author_facet Nkimbeng, Manka
Rosebush, Christina
Akosah, Kwame
Yam, Hawking
Russel, Wynfred
Albers, Elizabeth
Shippee, Tetyana
Gaugler, Joseph
author_sort Nkimbeng, Manka
collection PubMed
description African immigrants are a fast-growing segment of the U.S. Black population, but the dementia care needs and resources of this population are not fully understood. We will describe the process of developing culturally informed instruments to collect data on dementia care needs and resources among African immigrants. Working together with a diverse project advisory board, a guide was developed and used to conduct community conversations about experiences with dementia/memory loss. Qualitative findings from these conversations were used to inform the development of a survey for quantitative data collection. Despite the challenges of conducting research during a global pandemic, having trusting relationships with a partnering community organization and project advisory board facilitated the successful development of instruments to conduct preliminary dementia care research in an underserved population. We anticipate that survey results will inform interventions that increase education, outreach, and access to dementia care and caregiving resources for this population.
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spelling pubmed-97663962022-12-20 A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA Nkimbeng, Manka Rosebush, Christina Akosah, Kwame Yam, Hawking Russel, Wynfred Albers, Elizabeth Shippee, Tetyana Gaugler, Joseph Innov Aging Abstracts African immigrants are a fast-growing segment of the U.S. Black population, but the dementia care needs and resources of this population are not fully understood. We will describe the process of developing culturally informed instruments to collect data on dementia care needs and resources among African immigrants. Working together with a diverse project advisory board, a guide was developed and used to conduct community conversations about experiences with dementia/memory loss. Qualitative findings from these conversations were used to inform the development of a survey for quantitative data collection. Despite the challenges of conducting research during a global pandemic, having trusting relationships with a partnering community organization and project advisory board facilitated the successful development of instruments to conduct preliminary dementia care research in an underserved population. We anticipate that survey results will inform interventions that increase education, outreach, and access to dementia care and caregiving resources for this population. Oxford University Press 2022-12-20 /pmc/articles/PMC9766396/ http://dx.doi.org/10.1093/geroni/igac059.239 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Nkimbeng, Manka
Rosebush, Christina
Akosah, Kwame
Yam, Hawking
Russel, Wynfred
Albers, Elizabeth
Shippee, Tetyana
Gaugler, Joseph
A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA
title A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA
title_full A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA
title_fullStr A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA
title_full_unstemmed A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA
title_short A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA
title_sort community-university partnership to assess african immigrant families' experiences with dementia
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766396/
http://dx.doi.org/10.1093/geroni/igac059.239
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