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A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA
African immigrants are a fast-growing segment of the U.S. Black population, but the dementia care needs and resources of this population are not fully understood. We will describe the process of developing culturally informed instruments to collect data on dementia care needs and resources among Afr...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766396/ http://dx.doi.org/10.1093/geroni/igac059.239 |
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author | Nkimbeng, Manka Rosebush, Christina Akosah, Kwame Yam, Hawking Russel, Wynfred Albers, Elizabeth Shippee, Tetyana Gaugler, Joseph |
author_facet | Nkimbeng, Manka Rosebush, Christina Akosah, Kwame Yam, Hawking Russel, Wynfred Albers, Elizabeth Shippee, Tetyana Gaugler, Joseph |
author_sort | Nkimbeng, Manka |
collection | PubMed |
description | African immigrants are a fast-growing segment of the U.S. Black population, but the dementia care needs and resources of this population are not fully understood. We will describe the process of developing culturally informed instruments to collect data on dementia care needs and resources among African immigrants. Working together with a diverse project advisory board, a guide was developed and used to conduct community conversations about experiences with dementia/memory loss. Qualitative findings from these conversations were used to inform the development of a survey for quantitative data collection. Despite the challenges of conducting research during a global pandemic, having trusting relationships with a partnering community organization and project advisory board facilitated the successful development of instruments to conduct preliminary dementia care research in an underserved population. We anticipate that survey results will inform interventions that increase education, outreach, and access to dementia care and caregiving resources for this population. |
format | Online Article Text |
id | pubmed-9766396 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-97663962022-12-20 A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA Nkimbeng, Manka Rosebush, Christina Akosah, Kwame Yam, Hawking Russel, Wynfred Albers, Elizabeth Shippee, Tetyana Gaugler, Joseph Innov Aging Abstracts African immigrants are a fast-growing segment of the U.S. Black population, but the dementia care needs and resources of this population are not fully understood. We will describe the process of developing culturally informed instruments to collect data on dementia care needs and resources among African immigrants. Working together with a diverse project advisory board, a guide was developed and used to conduct community conversations about experiences with dementia/memory loss. Qualitative findings from these conversations were used to inform the development of a survey for quantitative data collection. Despite the challenges of conducting research during a global pandemic, having trusting relationships with a partnering community organization and project advisory board facilitated the successful development of instruments to conduct preliminary dementia care research in an underserved population. We anticipate that survey results will inform interventions that increase education, outreach, and access to dementia care and caregiving resources for this population. Oxford University Press 2022-12-20 /pmc/articles/PMC9766396/ http://dx.doi.org/10.1093/geroni/igac059.239 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Abstracts Nkimbeng, Manka Rosebush, Christina Akosah, Kwame Yam, Hawking Russel, Wynfred Albers, Elizabeth Shippee, Tetyana Gaugler, Joseph A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA |
title | A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA |
title_full | A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA |
title_fullStr | A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA |
title_full_unstemmed | A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA |
title_short | A COMMUNITY-UNIVERSITY PARTNERSHIP TO ASSESS AFRICAN IMMIGRANT FAMILIES' EXPERIENCES WITH DEMENTIA |
title_sort | community-university partnership to assess african immigrant families' experiences with dementia |
topic | Abstracts |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766396/ http://dx.doi.org/10.1093/geroni/igac059.239 |
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