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Tackling Health Care Disparities: How to Build a Sarcoidosis Center

Sarcoidosis is a multi-organ system inflammatory disease of unknown etiology that disproportionately affects women and black patients in the United States. In addition, woman and minority patients have worse outcomes. In 2015, sarcoidosis physicians in cardiology, pulmonary medicine and rheumatology...

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Autores principales: Kron, Jordana, Syed, Aamer, Iden, Thomas, Gwathmey, Kelly, Polly, Kelly, Randolph, Jessica, Brar, Vikram, Nana-Sinkam, Patrick, Ellenbogen, Kenneth, Syed, Huzaefah
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Mattioli 1885 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766846/
https://www.ncbi.nlm.nih.gov/pubmed/36791030
http://dx.doi.org/10.36141/svdld.v39i3.13423
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author Kron, Jordana
Syed, Aamer
Iden, Thomas
Gwathmey, Kelly
Polly, Kelly
Randolph, Jessica
Brar, Vikram
Nana-Sinkam, Patrick
Ellenbogen, Kenneth
Syed, Huzaefah
author_facet Kron, Jordana
Syed, Aamer
Iden, Thomas
Gwathmey, Kelly
Polly, Kelly
Randolph, Jessica
Brar, Vikram
Nana-Sinkam, Patrick
Ellenbogen, Kenneth
Syed, Huzaefah
author_sort Kron, Jordana
collection PubMed
description Sarcoidosis is a multi-organ system inflammatory disease of unknown etiology that disproportionately affects women and black patients in the United States. In addition, woman and minority patients have worse outcomes. In 2015, sarcoidosis physicians in cardiology, pulmonary medicine and rheumatology joined forces to create a multidisciplinary sarcoidosis at Virginia Commonwealth University. In 2019, the clinic was recognized as a World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) Center of Excellence. We identify four pillars of a patient-centered sarcoidosis clinic: clinical care, research, teaching, and community outreach. We detail how each of these facets plays a critical role in improving the health of individual patients, creating a strong infrastructure to improve the future of sarcoidosis treatment, and developing community-based resources that can empower patients. Most importantly, we highlight how a multidisciplinary clinic can help identify and combat healthcare disparities.
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spelling pubmed-97668462022-12-28 Tackling Health Care Disparities: How to Build a Sarcoidosis Center Kron, Jordana Syed, Aamer Iden, Thomas Gwathmey, Kelly Polly, Kelly Randolph, Jessica Brar, Vikram Nana-Sinkam, Patrick Ellenbogen, Kenneth Syed, Huzaefah Sarcoidosis Vasc Diffuse Lung Dis Review Sarcoidosis is a multi-organ system inflammatory disease of unknown etiology that disproportionately affects women and black patients in the United States. In addition, woman and minority patients have worse outcomes. In 2015, sarcoidosis physicians in cardiology, pulmonary medicine and rheumatology joined forces to create a multidisciplinary sarcoidosis at Virginia Commonwealth University. In 2019, the clinic was recognized as a World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) Center of Excellence. We identify four pillars of a patient-centered sarcoidosis clinic: clinical care, research, teaching, and community outreach. We detail how each of these facets plays a critical role in improving the health of individual patients, creating a strong infrastructure to improve the future of sarcoidosis treatment, and developing community-based resources that can empower patients. Most importantly, we highlight how a multidisciplinary clinic can help identify and combat healthcare disparities. Mattioli 1885 2022 2022-09-23 /pmc/articles/PMC9766846/ /pubmed/36791030 http://dx.doi.org/10.36141/svdld.v39i3.13423 Text en Copyright: © 2021 SARCOIDOSIS VASCULITIS AND DIFFUSE LUNG DISEASES https://creativecommons.org/licenses/by-nc-sa/4.0/This work is licensed under a Creative Commons Attribution 4.0 International License
spellingShingle Review
Kron, Jordana
Syed, Aamer
Iden, Thomas
Gwathmey, Kelly
Polly, Kelly
Randolph, Jessica
Brar, Vikram
Nana-Sinkam, Patrick
Ellenbogen, Kenneth
Syed, Huzaefah
Tackling Health Care Disparities: How to Build a Sarcoidosis Center
title Tackling Health Care Disparities: How to Build a Sarcoidosis Center
title_full Tackling Health Care Disparities: How to Build a Sarcoidosis Center
title_fullStr Tackling Health Care Disparities: How to Build a Sarcoidosis Center
title_full_unstemmed Tackling Health Care Disparities: How to Build a Sarcoidosis Center
title_short Tackling Health Care Disparities: How to Build a Sarcoidosis Center
title_sort tackling health care disparities: how to build a sarcoidosis center
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766846/
https://www.ncbi.nlm.nih.gov/pubmed/36791030
http://dx.doi.org/10.36141/svdld.v39i3.13423
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