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SLEEP CHARACTERISTIC OF AN OLDER END OF LIFE (EOL) CAREGIVER: A SINGLE CASE STUDY

BACKGROUND: Extensive caregiving work, psychological distress, and caregiving burdens put end of life (EOL) caregivers at great risk of sleep disturbances. METHODS: A single case mixed method design was used to explore older EOL caregivers’ sleep characteristics. Multi-dimensional data was collected...

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Autores principales: Park, Hyeyoung, Lee, Sunghoon, Bailey, Amelia, Liu, Yunda, Jacelon, Cynthia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766915/
http://dx.doi.org/10.1093/geroni/igac059.3079
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author Park, Hyeyoung
Lee, Sunghoon
Bailey, Amelia
Liu, Yunda
Jacelon, Cynthia
author_facet Park, Hyeyoung
Lee, Sunghoon
Bailey, Amelia
Liu, Yunda
Jacelon, Cynthia
author_sort Park, Hyeyoung
collection PubMed
description BACKGROUND: Extensive caregiving work, psychological distress, and caregiving burdens put end of life (EOL) caregivers at great risk of sleep disturbances. METHODS: A single case mixed method design was used to explore older EOL caregivers’ sleep characteristics. Multi-dimensional data was collected through a series of methods including questionnaires (caregiver and care recipient demographics, care recipient symptom severity, caregiver caregiving strain, depressive symptoms, and sleep quality), 14 days of National Sleep Foundation (NSF) sleep diary, 28 days of daily sleep and activity measured by wearable personal sleep monitoring devices (Garmin vivofit 4), and a semi-structured interview. Data was analyzed using thematic content analysis. Findings: A 60 year old female taking care of her 85 years old mother with dementia, kidney cancer, and several other illnesses was recruited for this case study. She showed overall poor sleep quality measured by the Pittsburgh Sleep Quality Index (PSQI, total score: 8), and she slept 6.73 (±1.27) hours per day on average with 52.96% of deep sleep, 41.63% of light sleep, and 5.41% awake times. The caregiver reported that her daily sleep quality depended on her care recipient’s health condition each night. She also described others supporting for her caregiving work as a “double-edged sword,” because she needed to trade some privacy for the additional help. CONCLUSION: Further study is needed for EOL caregivers’ poor sleep quality considering external factors and sleep intervention for EOL caregivers should be developed considering these external caregiving contexts.
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spelling pubmed-97669152022-12-21 SLEEP CHARACTERISTIC OF AN OLDER END OF LIFE (EOL) CAREGIVER: A SINGLE CASE STUDY Park, Hyeyoung Lee, Sunghoon Bailey, Amelia Liu, Yunda Jacelon, Cynthia Innov Aging Late Breaking Abstracts BACKGROUND: Extensive caregiving work, psychological distress, and caregiving burdens put end of life (EOL) caregivers at great risk of sleep disturbances. METHODS: A single case mixed method design was used to explore older EOL caregivers’ sleep characteristics. Multi-dimensional data was collected through a series of methods including questionnaires (caregiver and care recipient demographics, care recipient symptom severity, caregiver caregiving strain, depressive symptoms, and sleep quality), 14 days of National Sleep Foundation (NSF) sleep diary, 28 days of daily sleep and activity measured by wearable personal sleep monitoring devices (Garmin vivofit 4), and a semi-structured interview. Data was analyzed using thematic content analysis. Findings: A 60 year old female taking care of her 85 years old mother with dementia, kidney cancer, and several other illnesses was recruited for this case study. She showed overall poor sleep quality measured by the Pittsburgh Sleep Quality Index (PSQI, total score: 8), and she slept 6.73 (±1.27) hours per day on average with 52.96% of deep sleep, 41.63% of light sleep, and 5.41% awake times. The caregiver reported that her daily sleep quality depended on her care recipient’s health condition each night. She also described others supporting for her caregiving work as a “double-edged sword,” because she needed to trade some privacy for the additional help. CONCLUSION: Further study is needed for EOL caregivers’ poor sleep quality considering external factors and sleep intervention for EOL caregivers should be developed considering these external caregiving contexts. Oxford University Press 2022-12-20 /pmc/articles/PMC9766915/ http://dx.doi.org/10.1093/geroni/igac059.3079 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Late Breaking Abstracts
Park, Hyeyoung
Lee, Sunghoon
Bailey, Amelia
Liu, Yunda
Jacelon, Cynthia
SLEEP CHARACTERISTIC OF AN OLDER END OF LIFE (EOL) CAREGIVER: A SINGLE CASE STUDY
title SLEEP CHARACTERISTIC OF AN OLDER END OF LIFE (EOL) CAREGIVER: A SINGLE CASE STUDY
title_full SLEEP CHARACTERISTIC OF AN OLDER END OF LIFE (EOL) CAREGIVER: A SINGLE CASE STUDY
title_fullStr SLEEP CHARACTERISTIC OF AN OLDER END OF LIFE (EOL) CAREGIVER: A SINGLE CASE STUDY
title_full_unstemmed SLEEP CHARACTERISTIC OF AN OLDER END OF LIFE (EOL) CAREGIVER: A SINGLE CASE STUDY
title_short SLEEP CHARACTERISTIC OF AN OLDER END OF LIFE (EOL) CAREGIVER: A SINGLE CASE STUDY
title_sort sleep characteristic of an older end of life (eol) caregiver: a single case study
topic Late Breaking Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766915/
http://dx.doi.org/10.1093/geroni/igac059.3079
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