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PRIMARY CARE PROVIDER PERSPECTIVES ON LANGUAGE AND COMMUNICATION BARRIERS IN DEMENTIA DIAGNOSIS AND CARE
Dementia diagnosis and care relies on extensive communication between a doctor, patient, and oftentimes a family caregiver. Communication is important for recognizing when there is a cognitive concern, gaining an understanding of the patient’s history of cognitive decline, engaging in cognitive test...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766993/ http://dx.doi.org/10.1093/geroni/igac059.2794 |
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author | de Jesus, Alma Hernandez Ma, Melissa Dohan, Daniel Alagappan, Cecilia Rankin, Katherine Sideman, Alissa |
author_facet | de Jesus, Alma Hernandez Ma, Melissa Dohan, Daniel Alagappan, Cecilia Rankin, Katherine Sideman, Alissa |
author_sort | de Jesus, Alma Hernandez |
collection | PubMed |
description | Dementia diagnosis and care relies on extensive communication between a doctor, patient, and oftentimes a family caregiver. Communication is important for recognizing when there is a cognitive concern, gaining an understanding of the patient’s history of cognitive decline, engaging in cognitive testing, and providing quality care post-diagnosis. We conducted a qualitative study of 35 primary care clinicians and primary care nurse practitioners working in safety net settings in California to understand facilitators and barriers to dementia diagnosis and care. Using thematic analysis, we identified similar themes to those that have been explored extensively related to language and communication in doctor-patient relationship. Topics ranging from challenges that emerge when there is language discordance, difficulties finding and using interpreters, and challenges related to communicating medical topics in a patient’s native language. Specifically related to dementia, we found that language challenges emerge due to inadequate translation or availability of cognitive testing and post-diagnostic resources in multiple languages. However, we also identified unique challenges related to communication, including hearing loss, communicating about trauma during the diagnostic history interview, navigating the logistics of care, including communicating with specialists, building trust and rapport when there is language discordance, and cultural miscommunication even when the spoken language is the same. These issues affect historically marginalized individuals and communities, especially when dementia and cognitive impairment are present. We suggest new approaches and policies to enhance communication and better ways of working with patients who are hard of hearing. |
format | Online Article Text |
id | pubmed-9766993 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-97669932022-12-21 PRIMARY CARE PROVIDER PERSPECTIVES ON LANGUAGE AND COMMUNICATION BARRIERS IN DEMENTIA DIAGNOSIS AND CARE de Jesus, Alma Hernandez Ma, Melissa Dohan, Daniel Alagappan, Cecilia Rankin, Katherine Sideman, Alissa Innov Aging Late Breaking Abstracts Dementia diagnosis and care relies on extensive communication between a doctor, patient, and oftentimes a family caregiver. Communication is important for recognizing when there is a cognitive concern, gaining an understanding of the patient’s history of cognitive decline, engaging in cognitive testing, and providing quality care post-diagnosis. We conducted a qualitative study of 35 primary care clinicians and primary care nurse practitioners working in safety net settings in California to understand facilitators and barriers to dementia diagnosis and care. Using thematic analysis, we identified similar themes to those that have been explored extensively related to language and communication in doctor-patient relationship. Topics ranging from challenges that emerge when there is language discordance, difficulties finding and using interpreters, and challenges related to communicating medical topics in a patient’s native language. Specifically related to dementia, we found that language challenges emerge due to inadequate translation or availability of cognitive testing and post-diagnostic resources in multiple languages. However, we also identified unique challenges related to communication, including hearing loss, communicating about trauma during the diagnostic history interview, navigating the logistics of care, including communicating with specialists, building trust and rapport when there is language discordance, and cultural miscommunication even when the spoken language is the same. These issues affect historically marginalized individuals and communities, especially when dementia and cognitive impairment are present. We suggest new approaches and policies to enhance communication and better ways of working with patients who are hard of hearing. Oxford University Press 2022-12-20 /pmc/articles/PMC9766993/ http://dx.doi.org/10.1093/geroni/igac059.2794 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Late Breaking Abstracts de Jesus, Alma Hernandez Ma, Melissa Dohan, Daniel Alagappan, Cecilia Rankin, Katherine Sideman, Alissa PRIMARY CARE PROVIDER PERSPECTIVES ON LANGUAGE AND COMMUNICATION BARRIERS IN DEMENTIA DIAGNOSIS AND CARE |
title | PRIMARY CARE PROVIDER PERSPECTIVES ON LANGUAGE AND COMMUNICATION BARRIERS IN DEMENTIA DIAGNOSIS AND CARE |
title_full | PRIMARY CARE PROVIDER PERSPECTIVES ON LANGUAGE AND COMMUNICATION BARRIERS IN DEMENTIA DIAGNOSIS AND CARE |
title_fullStr | PRIMARY CARE PROVIDER PERSPECTIVES ON LANGUAGE AND COMMUNICATION BARRIERS IN DEMENTIA DIAGNOSIS AND CARE |
title_full_unstemmed | PRIMARY CARE PROVIDER PERSPECTIVES ON LANGUAGE AND COMMUNICATION BARRIERS IN DEMENTIA DIAGNOSIS AND CARE |
title_short | PRIMARY CARE PROVIDER PERSPECTIVES ON LANGUAGE AND COMMUNICATION BARRIERS IN DEMENTIA DIAGNOSIS AND CARE |
title_sort | primary care provider perspectives on language and communication barriers in dementia diagnosis and care |
topic | Late Breaking Abstracts |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9766993/ http://dx.doi.org/10.1093/geroni/igac059.2794 |
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