Cargando…

CULTURAL ADAPTATION OF THE ADULT DAY SERVICE PLUS PROGRAM FOR HISPANIC/LATINO DEMENTIA CAREGIVERS

Although Hispanic/Latinos are at disproportionate and increased risk for Alzheimer’s disease and related dementias, few evidence-based supportive care interventions have been specifically developed for or adapted for this population. Adapting a supportive care intervention requires more than Spanish...

Descripción completa

Detalles Bibliográficos
Autores principales: Parker, Lauren, Marx, Katherine, Knimbeng, Manka, Johnson, Elma, Koeuth, Sokha, Gaugler, Joseph, Gitlin, Laura
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9770116/
http://dx.doi.org/10.1093/geroni/igac059.817
_version_ 1784854519851515904
author Parker, Lauren
Marx, Katherine
Knimbeng, Manka
Johnson, Elma
Koeuth, Sokha
Gaugler, Joseph
Gitlin, Laura
author_facet Parker, Lauren
Marx, Katherine
Knimbeng, Manka
Johnson, Elma
Koeuth, Sokha
Gaugler, Joseph
Gitlin, Laura
author_sort Parker, Lauren
collection PubMed
description Although Hispanic/Latinos are at disproportionate and increased risk for Alzheimer’s disease and related dementias, few evidence-based supportive care interventions have been specifically developed for or adapted for this population. Adapting a supportive care intervention requires more than Spanish language translation and necessitates an understanding of cultural nuances and care preferences of Hispanic/Latino families and staff who implement the intervention. This paper reports on the cultural adaptation of the Adult Day Service Plus (ADS Plus) intervention for delivery by staff to Hispanic/Latino caregivers which was guided by the Cultural Adaptation Process Model. Also, using the Framework for Reporting Adaptations and Modifications-Enhanced (FRAME),we discuss: 1) when modifications were made, 2) who determined modifications needed, 3) what aspects of the intervention were modified, 4) the relationship to fidelity and how fidelity was maintained, and 5) reasons for modifications. Modifications to the delivery and content were changed to reflect values and norms of both the Hispanic/Latino staff and the caregivers they serve. As supportive interventions for dementia caregivers are developed and implemented into real world settings, inclusion of cultural elements may enhance research participation from Hispanic/Latino provider sites and caregivers. We suggest in this paper that cultural adaptation is an essential consideration in developing an intervention as well as adapting evidence-based previously tested interventions, and in implementation science. Cultural adaptation offers an important lens by which to identify contextual factors impacting intervention adoption interventions and needed adaptations to assure equity in the reach of evidence-based programs.
format Online
Article
Text
id pubmed-9770116
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher Oxford University Press
record_format MEDLINE/PubMed
spelling pubmed-97701162022-12-22 CULTURAL ADAPTATION OF THE ADULT DAY SERVICE PLUS PROGRAM FOR HISPANIC/LATINO DEMENTIA CAREGIVERS Parker, Lauren Marx, Katherine Knimbeng, Manka Johnson, Elma Koeuth, Sokha Gaugler, Joseph Gitlin, Laura Innov Aging Abstracts Although Hispanic/Latinos are at disproportionate and increased risk for Alzheimer’s disease and related dementias, few evidence-based supportive care interventions have been specifically developed for or adapted for this population. Adapting a supportive care intervention requires more than Spanish language translation and necessitates an understanding of cultural nuances and care preferences of Hispanic/Latino families and staff who implement the intervention. This paper reports on the cultural adaptation of the Adult Day Service Plus (ADS Plus) intervention for delivery by staff to Hispanic/Latino caregivers which was guided by the Cultural Adaptation Process Model. Also, using the Framework for Reporting Adaptations and Modifications-Enhanced (FRAME),we discuss: 1) when modifications were made, 2) who determined modifications needed, 3) what aspects of the intervention were modified, 4) the relationship to fidelity and how fidelity was maintained, and 5) reasons for modifications. Modifications to the delivery and content were changed to reflect values and norms of both the Hispanic/Latino staff and the caregivers they serve. As supportive interventions for dementia caregivers are developed and implemented into real world settings, inclusion of cultural elements may enhance research participation from Hispanic/Latino provider sites and caregivers. We suggest in this paper that cultural adaptation is an essential consideration in developing an intervention as well as adapting evidence-based previously tested interventions, and in implementation science. Cultural adaptation offers an important lens by which to identify contextual factors impacting intervention adoption interventions and needed adaptations to assure equity in the reach of evidence-based programs. Oxford University Press 2022-12-20 /pmc/articles/PMC9770116/ http://dx.doi.org/10.1093/geroni/igac059.817 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Parker, Lauren
Marx, Katherine
Knimbeng, Manka
Johnson, Elma
Koeuth, Sokha
Gaugler, Joseph
Gitlin, Laura
CULTURAL ADAPTATION OF THE ADULT DAY SERVICE PLUS PROGRAM FOR HISPANIC/LATINO DEMENTIA CAREGIVERS
title CULTURAL ADAPTATION OF THE ADULT DAY SERVICE PLUS PROGRAM FOR HISPANIC/LATINO DEMENTIA CAREGIVERS
title_full CULTURAL ADAPTATION OF THE ADULT DAY SERVICE PLUS PROGRAM FOR HISPANIC/LATINO DEMENTIA CAREGIVERS
title_fullStr CULTURAL ADAPTATION OF THE ADULT DAY SERVICE PLUS PROGRAM FOR HISPANIC/LATINO DEMENTIA CAREGIVERS
title_full_unstemmed CULTURAL ADAPTATION OF THE ADULT DAY SERVICE PLUS PROGRAM FOR HISPANIC/LATINO DEMENTIA CAREGIVERS
title_short CULTURAL ADAPTATION OF THE ADULT DAY SERVICE PLUS PROGRAM FOR HISPANIC/LATINO DEMENTIA CAREGIVERS
title_sort cultural adaptation of the adult day service plus program for hispanic/latino dementia caregivers
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9770116/
http://dx.doi.org/10.1093/geroni/igac059.817
work_keys_str_mv AT parkerlauren culturaladaptationoftheadultdayserviceplusprogramforhispaniclatinodementiacaregivers
AT marxkatherine culturaladaptationoftheadultdayserviceplusprogramforhispaniclatinodementiacaregivers
AT knimbengmanka culturaladaptationoftheadultdayserviceplusprogramforhispaniclatinodementiacaregivers
AT johnsonelma culturaladaptationoftheadultdayserviceplusprogramforhispaniclatinodementiacaregivers
AT koeuthsokha culturaladaptationoftheadultdayserviceplusprogramforhispaniclatinodementiacaregivers
AT gauglerjoseph culturaladaptationoftheadultdayserviceplusprogramforhispaniclatinodementiacaregivers
AT gitlinlaura culturaladaptationoftheadultdayserviceplusprogramforhispaniclatinodementiacaregivers