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VOICES OF OUR ELDERS: ATTITUDES, BELIEFS, AND PERSPECTIVES ABOUT RESEARCH IN MINORITY OLDER ADULTS

The U.S. Census Bureau projects that the numbers of adults 65 and older will double from 46 million in 2020 to 90 million by 2050, thus representing the fastest growing segment of the population. However, older adults, especially those from minority groups, remain underrepresented in clinical resear...

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Autores principales: Gaillard, Trudy, Shambley-Ebron, Donna, Garcia, Giovanni, Romero, Ryan, Neff, Donna, Swagger, Phildra, Gardier, Dawn, Webb, Fern
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9770364/
http://dx.doi.org/10.1093/geroni/igac059.1863
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author Gaillard, Trudy
Shambley-Ebron, Donna
Garcia, Giovanni
Romero, Ryan
Neff, Donna
Swagger, Phildra
Gardier, Dawn
Webb, Fern
author_facet Gaillard, Trudy
Shambley-Ebron, Donna
Garcia, Giovanni
Romero, Ryan
Neff, Donna
Swagger, Phildra
Gardier, Dawn
Webb, Fern
author_sort Gaillard, Trudy
collection PubMed
description The U.S. Census Bureau projects that the numbers of adults 65 and older will double from 46 million in 2020 to 90 million by 2050, thus representing the fastest growing segment of the population. However, older adults, especially those from minority groups, remain underrepresented in clinical research. It is imperative to understand what older adults believe about research and research participation to enhance recruitment efforts. The aim of this presentation is to present preliminary findings from our qualitative study which explored the attitudes, beliefs, and perspectives of older minority adults regarding research and research participation. We conducted 12 focus groups via Zoom, in South Florida with minority adults (African American, Caribbean, Hispanic) over the age of 65 (N=49). An interview guide was used to query the participants about their attitudes, beliefs, and perspectives of research and research participation. Focus groups were video-recorded and transcribed. NVivo software was used for data management and analysis. We found that participants: 1) thought research was necessary to expand understanding and knowledge of health conditions; 2) stated research should be conducted by trusted scientific institutions; 3) relied heavily on their adult children for advice regarding research participation; 4) expressed reluctancy regarding invasive procedures; and 5) were influenced by personal experiences when considering research participation. Our preliminary findings suggest that older minority adults believe in the value of research, however, may be hesitant about participating. We propose continued strategies aimed at increasing engagement of minority older adults into health research.
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spelling pubmed-97703642022-12-22 VOICES OF OUR ELDERS: ATTITUDES, BELIEFS, AND PERSPECTIVES ABOUT RESEARCH IN MINORITY OLDER ADULTS Gaillard, Trudy Shambley-Ebron, Donna Garcia, Giovanni Romero, Ryan Neff, Donna Swagger, Phildra Gardier, Dawn Webb, Fern Innov Aging Abstracts The U.S. Census Bureau projects that the numbers of adults 65 and older will double from 46 million in 2020 to 90 million by 2050, thus representing the fastest growing segment of the population. However, older adults, especially those from minority groups, remain underrepresented in clinical research. It is imperative to understand what older adults believe about research and research participation to enhance recruitment efforts. The aim of this presentation is to present preliminary findings from our qualitative study which explored the attitudes, beliefs, and perspectives of older minority adults regarding research and research participation. We conducted 12 focus groups via Zoom, in South Florida with minority adults (African American, Caribbean, Hispanic) over the age of 65 (N=49). An interview guide was used to query the participants about their attitudes, beliefs, and perspectives of research and research participation. Focus groups were video-recorded and transcribed. NVivo software was used for data management and analysis. We found that participants: 1) thought research was necessary to expand understanding and knowledge of health conditions; 2) stated research should be conducted by trusted scientific institutions; 3) relied heavily on their adult children for advice regarding research participation; 4) expressed reluctancy regarding invasive procedures; and 5) were influenced by personal experiences when considering research participation. Our preliminary findings suggest that older minority adults believe in the value of research, however, may be hesitant about participating. We propose continued strategies aimed at increasing engagement of minority older adults into health research. Oxford University Press 2022-12-20 /pmc/articles/PMC9770364/ http://dx.doi.org/10.1093/geroni/igac059.1863 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Gaillard, Trudy
Shambley-Ebron, Donna
Garcia, Giovanni
Romero, Ryan
Neff, Donna
Swagger, Phildra
Gardier, Dawn
Webb, Fern
VOICES OF OUR ELDERS: ATTITUDES, BELIEFS, AND PERSPECTIVES ABOUT RESEARCH IN MINORITY OLDER ADULTS
title VOICES OF OUR ELDERS: ATTITUDES, BELIEFS, AND PERSPECTIVES ABOUT RESEARCH IN MINORITY OLDER ADULTS
title_full VOICES OF OUR ELDERS: ATTITUDES, BELIEFS, AND PERSPECTIVES ABOUT RESEARCH IN MINORITY OLDER ADULTS
title_fullStr VOICES OF OUR ELDERS: ATTITUDES, BELIEFS, AND PERSPECTIVES ABOUT RESEARCH IN MINORITY OLDER ADULTS
title_full_unstemmed VOICES OF OUR ELDERS: ATTITUDES, BELIEFS, AND PERSPECTIVES ABOUT RESEARCH IN MINORITY OLDER ADULTS
title_short VOICES OF OUR ELDERS: ATTITUDES, BELIEFS, AND PERSPECTIVES ABOUT RESEARCH IN MINORITY OLDER ADULTS
title_sort voices of our elders: attitudes, beliefs, and perspectives about research in minority older adults
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9770364/
http://dx.doi.org/10.1093/geroni/igac059.1863
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