Cargando…

EXPLORING EXPERIENCES OF PAIN MANAGEMENT AMONG FAMILY CAREGIVERS OF COMMUNITY-DWELLING OLDER ADULTS WITH DEMENTIA

Pain is often under reported and under-treated in older adults with dementia. Formal caregivers receive training and resources to develop their pain management skills; yet family caregivers (FCGs), who bear the brunt of responsibility for pain management among community-dwelling older adults with de...

Descripción completa

Detalles Bibliográficos
Autores principales: Zhao, Hui, Kulbok, Pamela, Williams, Ishan, Manning, Carol, Romo, Rafael
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9770719/
http://dx.doi.org/10.1093/geroni/igac059.016
_version_ 1784854666421469184
author Zhao, Hui
Kulbok, Pamela
Williams, Ishan
Manning, Carol
Romo, Rafael
author_facet Zhao, Hui
Kulbok, Pamela
Williams, Ishan
Manning, Carol
Romo, Rafael
author_sort Zhao, Hui
collection PubMed
description Pain is often under reported and under-treated in older adults with dementia. Formal caregivers receive training and resources to develop their pain management skills; yet family caregivers (FCGs), who bear the brunt of responsibility for pain management among community-dwelling older adults with dementia have largely been omitted from research. We conducted a qualitative descriptive study to gain a deep understanding of FCGs’ experience in pain management. 25 adult FCGs of community-based older adults with dementia were living in central Virginia were interviewed. Participants were 29 to 95 years old, predominantly white, married, female, and high school graduates. Four themes emerged around exploring FCGs’ pain management experience and each theme included sub themes: 1) Values: family caregivers make values-based decisions that rely on a diverse range of beliefs towards opioids and non-pharmacological approaches. 2) Barriers: pain management was hampered by patient-related factors (comorbidity, complexity of care) and FCG-related factors (lack of training and resources). 3) Support: FCGs perceived greater competence when well supported by professional caregivers (doctors, social workers) and family members. 4) Adaptation: FCGs employed many strategies to support themselves and build a sense of self-efficacy that can either inhibit or facilitate effective pain management for their loved-ones. Adaptation and support from professional or formal caregivers greatly improved FCGs’ perception of competence in pain management, suggesting research and development of interventions targeting FCGs is warranted.
format Online
Article
Text
id pubmed-9770719
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher Oxford University Press
record_format MEDLINE/PubMed
spelling pubmed-97707192022-12-22 EXPLORING EXPERIENCES OF PAIN MANAGEMENT AMONG FAMILY CAREGIVERS OF COMMUNITY-DWELLING OLDER ADULTS WITH DEMENTIA Zhao, Hui Kulbok, Pamela Williams, Ishan Manning, Carol Romo, Rafael Innov Aging Abstracts Pain is often under reported and under-treated in older adults with dementia. Formal caregivers receive training and resources to develop their pain management skills; yet family caregivers (FCGs), who bear the brunt of responsibility for pain management among community-dwelling older adults with dementia have largely been omitted from research. We conducted a qualitative descriptive study to gain a deep understanding of FCGs’ experience in pain management. 25 adult FCGs of community-based older adults with dementia were living in central Virginia were interviewed. Participants were 29 to 95 years old, predominantly white, married, female, and high school graduates. Four themes emerged around exploring FCGs’ pain management experience and each theme included sub themes: 1) Values: family caregivers make values-based decisions that rely on a diverse range of beliefs towards opioids and non-pharmacological approaches. 2) Barriers: pain management was hampered by patient-related factors (comorbidity, complexity of care) and FCG-related factors (lack of training and resources). 3) Support: FCGs perceived greater competence when well supported by professional caregivers (doctors, social workers) and family members. 4) Adaptation: FCGs employed many strategies to support themselves and build a sense of self-efficacy that can either inhibit or facilitate effective pain management for their loved-ones. Adaptation and support from professional or formal caregivers greatly improved FCGs’ perception of competence in pain management, suggesting research and development of interventions targeting FCGs is warranted. Oxford University Press 2022-12-20 /pmc/articles/PMC9770719/ http://dx.doi.org/10.1093/geroni/igac059.016 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Zhao, Hui
Kulbok, Pamela
Williams, Ishan
Manning, Carol
Romo, Rafael
EXPLORING EXPERIENCES OF PAIN MANAGEMENT AMONG FAMILY CAREGIVERS OF COMMUNITY-DWELLING OLDER ADULTS WITH DEMENTIA
title EXPLORING EXPERIENCES OF PAIN MANAGEMENT AMONG FAMILY CAREGIVERS OF COMMUNITY-DWELLING OLDER ADULTS WITH DEMENTIA
title_full EXPLORING EXPERIENCES OF PAIN MANAGEMENT AMONG FAMILY CAREGIVERS OF COMMUNITY-DWELLING OLDER ADULTS WITH DEMENTIA
title_fullStr EXPLORING EXPERIENCES OF PAIN MANAGEMENT AMONG FAMILY CAREGIVERS OF COMMUNITY-DWELLING OLDER ADULTS WITH DEMENTIA
title_full_unstemmed EXPLORING EXPERIENCES OF PAIN MANAGEMENT AMONG FAMILY CAREGIVERS OF COMMUNITY-DWELLING OLDER ADULTS WITH DEMENTIA
title_short EXPLORING EXPERIENCES OF PAIN MANAGEMENT AMONG FAMILY CAREGIVERS OF COMMUNITY-DWELLING OLDER ADULTS WITH DEMENTIA
title_sort exploring experiences of pain management among family caregivers of community-dwelling older adults with dementia
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9770719/
http://dx.doi.org/10.1093/geroni/igac059.016
work_keys_str_mv AT zhaohui exploringexperiencesofpainmanagementamongfamilycaregiversofcommunitydwellingolderadultswithdementia
AT kulbokpamela exploringexperiencesofpainmanagementamongfamilycaregiversofcommunitydwellingolderadultswithdementia
AT williamsishan exploringexperiencesofpainmanagementamongfamilycaregiversofcommunitydwellingolderadultswithdementia
AT manningcarol exploringexperiencesofpainmanagementamongfamilycaregiversofcommunitydwellingolderadultswithdementia
AT romorafael exploringexperiencesofpainmanagementamongfamilycaregiversofcommunitydwellingolderadultswithdementia