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A Qualitative Study of the Pain Experiences of Children and Their Parents at a Canadian Children’s Hospital

Current literature is lacking in describing families’ experiences in being involved in children’s pain management. This study sought to understand children and their parents’ experiences with pain management at a tertiary care children’s hospital. Twelve child–parent dyads were recruited to particip...

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Detalles Bibliográficos
Autores principales: Kammerer, Elise, Eszczuk, Joshua, Caldwell, Katie, Dunn, Jacob, Appelman-Eszczuk, Sharon, Dunn, Jennifer, MacNeil, Megan, Ali, Samina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9777277/
https://www.ncbi.nlm.nih.gov/pubmed/36553240
http://dx.doi.org/10.3390/children9121796
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author Kammerer, Elise
Eszczuk, Joshua
Caldwell, Katie
Dunn, Jacob
Appelman-Eszczuk, Sharon
Dunn, Jennifer
MacNeil, Megan
Ali, Samina
author_facet Kammerer, Elise
Eszczuk, Joshua
Caldwell, Katie
Dunn, Jacob
Appelman-Eszczuk, Sharon
Dunn, Jennifer
MacNeil, Megan
Ali, Samina
author_sort Kammerer, Elise
collection PubMed
description Current literature is lacking in describing families’ experiences in being involved in children’s pain management. This study sought to understand children and their parents’ experiences with pain management at a tertiary care children’s hospital. Twelve child–parent dyads were recruited to participate in the study from January to August 2022. Children and their parents chose whether to be interviewed together or separately. Transcripts were analyzed using inductive, data-driven codes. Codes and themes were developed using a codebook and member-checking. Three main themes were identified: a. Painful experiences can have a significant positive or negative effect on families’ lives and healthcare trajectories; b. There can be a mismatch between families’ expectations of pain management and how they perceive the pain was managed; c. Families feel that they must advocate for better pain care, but often feel too intimidated to do so, or worry that their concerns will be dismissed by healthcare professionals. Families want healthcare professionals to proactively manage their children’s pain, supporting the shaping of early positive memories of the child’s healthcare interactions. Healthcare providers must further recognize that poorly treated pain can significantly impact families’ lives and should both seek and be receptive to child and parent input for better pain care.
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spelling pubmed-97772772022-12-23 A Qualitative Study of the Pain Experiences of Children and Their Parents at a Canadian Children’s Hospital Kammerer, Elise Eszczuk, Joshua Caldwell, Katie Dunn, Jacob Appelman-Eszczuk, Sharon Dunn, Jennifer MacNeil, Megan Ali, Samina Children (Basel) Article Current literature is lacking in describing families’ experiences in being involved in children’s pain management. This study sought to understand children and their parents’ experiences with pain management at a tertiary care children’s hospital. Twelve child–parent dyads were recruited to participate in the study from January to August 2022. Children and their parents chose whether to be interviewed together or separately. Transcripts were analyzed using inductive, data-driven codes. Codes and themes were developed using a codebook and member-checking. Three main themes were identified: a. Painful experiences can have a significant positive or negative effect on families’ lives and healthcare trajectories; b. There can be a mismatch between families’ expectations of pain management and how they perceive the pain was managed; c. Families feel that they must advocate for better pain care, but often feel too intimidated to do so, or worry that their concerns will be dismissed by healthcare professionals. Families want healthcare professionals to proactively manage their children’s pain, supporting the shaping of early positive memories of the child’s healthcare interactions. Healthcare providers must further recognize that poorly treated pain can significantly impact families’ lives and should both seek and be receptive to child and parent input for better pain care. MDPI 2022-11-23 /pmc/articles/PMC9777277/ /pubmed/36553240 http://dx.doi.org/10.3390/children9121796 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Kammerer, Elise
Eszczuk, Joshua
Caldwell, Katie
Dunn, Jacob
Appelman-Eszczuk, Sharon
Dunn, Jennifer
MacNeil, Megan
Ali, Samina
A Qualitative Study of the Pain Experiences of Children and Their Parents at a Canadian Children’s Hospital
title A Qualitative Study of the Pain Experiences of Children and Their Parents at a Canadian Children’s Hospital
title_full A Qualitative Study of the Pain Experiences of Children and Their Parents at a Canadian Children’s Hospital
title_fullStr A Qualitative Study of the Pain Experiences of Children and Their Parents at a Canadian Children’s Hospital
title_full_unstemmed A Qualitative Study of the Pain Experiences of Children and Their Parents at a Canadian Children’s Hospital
title_short A Qualitative Study of the Pain Experiences of Children and Their Parents at a Canadian Children’s Hospital
title_sort qualitative study of the pain experiences of children and their parents at a canadian children’s hospital
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9777277/
https://www.ncbi.nlm.nih.gov/pubmed/36553240
http://dx.doi.org/10.3390/children9121796
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