Cargando…
What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults
The new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), published in October 2021, makes significant changes in treatment recommendations. It acknowledges the complexity of this chronic medical condition, which always impacts quality of life and can be profoundly disa...
Autores principales: | , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9778354/ https://www.ncbi.nlm.nih.gov/pubmed/36553962 http://dx.doi.org/10.3390/healthcare10122438 |
_version_ | 1784856338027773952 |
---|---|
author | Kingdon, Caroline Lowe, Adam Shepherd, Charles Nacul, Luis |
author_facet | Kingdon, Caroline Lowe, Adam Shepherd, Charles Nacul, Luis |
author_sort | Kingdon, Caroline |
collection | PubMed |
description | The new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), published in October 2021, makes significant changes in treatment recommendations. It acknowledges the complexity of this chronic medical condition, which always impacts quality of life and can be profoundly disabling, recognising the prejudice and stigma that people with ME/CFS often experience in the absence of any specific diagnostic test. The guideline outlines steps for accurate diagnosis, recognising post-exertional malaise as a core symptom; importantly, ME/CFS can now be diagnosed after just 3 months in a bid to improve long-term health outcomes. It recommends the need for individual, tailored management by a multi-disciplinary team, ensuring that the wellbeing of the individual is paramount. The guideline makes clear that any programme based on fixed incremental increases in physical activity or exercise, for example, graded exercise therapy (GET), should not be offered as a treatment for ME/CFS and emphasises that cognitive behavioural therapy (CBT) should only be offered as a supportive intervention. Because of the rigorous methodology required by NICE Committee review and the inclusion of the testimony of people with lived experience as committee members, this guideline will influence the future diagnosis and management of ME/CFS in the UK and beyond. |
format | Online Article Text |
id | pubmed-9778354 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-97783542022-12-23 What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults Kingdon, Caroline Lowe, Adam Shepherd, Charles Nacul, Luis Healthcare (Basel) Communication The new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), published in October 2021, makes significant changes in treatment recommendations. It acknowledges the complexity of this chronic medical condition, which always impacts quality of life and can be profoundly disabling, recognising the prejudice and stigma that people with ME/CFS often experience in the absence of any specific diagnostic test. The guideline outlines steps for accurate diagnosis, recognising post-exertional malaise as a core symptom; importantly, ME/CFS can now be diagnosed after just 3 months in a bid to improve long-term health outcomes. It recommends the need for individual, tailored management by a multi-disciplinary team, ensuring that the wellbeing of the individual is paramount. The guideline makes clear that any programme based on fixed incremental increases in physical activity or exercise, for example, graded exercise therapy (GET), should not be offered as a treatment for ME/CFS and emphasises that cognitive behavioural therapy (CBT) should only be offered as a supportive intervention. Because of the rigorous methodology required by NICE Committee review and the inclusion of the testimony of people with lived experience as committee members, this guideline will influence the future diagnosis and management of ME/CFS in the UK and beyond. MDPI 2022-12-02 /pmc/articles/PMC9778354/ /pubmed/36553962 http://dx.doi.org/10.3390/healthcare10122438 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Communication Kingdon, Caroline Lowe, Adam Shepherd, Charles Nacul, Luis What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults |
title | What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults |
title_full | What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults |
title_fullStr | What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults |
title_full_unstemmed | What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults |
title_short | What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults |
title_sort | what primary care practitioners need to know about the new nice guideline for myalgic encephalomyelitis/chronic fatigue syndrome in adults |
topic | Communication |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9778354/ https://www.ncbi.nlm.nih.gov/pubmed/36553962 http://dx.doi.org/10.3390/healthcare10122438 |
work_keys_str_mv | AT kingdoncaroline whatprimarycarepractitionersneedtoknowaboutthenewniceguidelineformyalgicencephalomyelitischronicfatiguesyndromeinadults AT loweadam whatprimarycarepractitionersneedtoknowaboutthenewniceguidelineformyalgicencephalomyelitischronicfatiguesyndromeinadults AT shepherdcharles whatprimarycarepractitionersneedtoknowaboutthenewniceguidelineformyalgicencephalomyelitischronicfatiguesyndromeinadults AT naculluis whatprimarycarepractitionersneedtoknowaboutthenewniceguidelineformyalgicencephalomyelitischronicfatiguesyndromeinadults |