Communication of the Diagnosis of Spinal Muscular Atrophy in the Views of Patients and Family Members, a Qualitative Analysis

Introduction: Communicating the diagnosis of a genetic and neurodegenerative disease, such as spinal muscular atrophy (SMA), requires a transmission centered on the patient and/or the family caregiver, ensuring autonomy to those involved and strengthening the doctor–patient relationship. Objective:...

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Detalles Bibliográficos
Autores principales: Fernandes, Isabella Araujo Mota, Menezes, Renata Oliveira Almeida, Rego, Guilhermina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9779701/
https://www.ncbi.nlm.nih.gov/pubmed/36554814
http://dx.doi.org/10.3390/ijerph192416935

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