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Factor influencing women with learning disabilities deciding to, and accessing, cervical and breast cancer screening: Findings from a Q methodology study of women with learning disabilities, family and paid carers

OBJECTIVES: To understand knowledge of, attitudes towards and decision‐making around cervical and breast cancer screening in women with learning disabilities, family carers and paid carers. METHODS: A Q methodology study involving 13 women with learning disabilities, three family carers and five pai...

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Autores principales: Sykes, Kate, McGeechan, Grant J., Crawford, Hannah, Giles, Emma L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9786864/
https://www.ncbi.nlm.nih.gov/pubmed/36094022
http://dx.doi.org/10.1111/ecc.13702
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author Sykes, Kate
McGeechan, Grant J.
Crawford, Hannah
Giles, Emma L.
author_facet Sykes, Kate
McGeechan, Grant J.
Crawford, Hannah
Giles, Emma L.
author_sort Sykes, Kate
collection PubMed
description OBJECTIVES: To understand knowledge of, attitudes towards and decision‐making around cervical and breast cancer screening in women with learning disabilities, family carers and paid carers. METHODS: A Q methodology study involving 13 women with learning disabilities, three family carers and five paid care workers, from the North‐East of England. A Q‐sort of 28 statements was completed with all participants completing a post‐Q‐sort interview to understand the reason behind the card placements. Factor analysis was completed using PQMethod and interpreted using framework analysis. RESULTS: Factor 1, named ‘Personal choice and ownership’, explores how women with learning disabilities want to be supported to make their own decision to attend cancer screening and explored their preferred support needs. Factor 2, named ‘Protecting vs. enablement’, portrayed the battle family carers and paid care workers felt to protect women with learning disabilities from harm, whilst feeling that they were supporting women with learning disabilities to decide to attend cancer screening. Eight consensus statements were identified indicating a shared perspective. CONCLUSIONS: Cancer screening services should ensure that women with learning disabilities are supported to make informed decisions to attend cancer screening and then be further supported throughout the cancer pathway.
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spelling pubmed-97868642022-12-27 Factor influencing women with learning disabilities deciding to, and accessing, cervical and breast cancer screening: Findings from a Q methodology study of women with learning disabilities, family and paid carers Sykes, Kate McGeechan, Grant J. Crawford, Hannah Giles, Emma L. Eur J Cancer Care (Engl) Original Articles OBJECTIVES: To understand knowledge of, attitudes towards and decision‐making around cervical and breast cancer screening in women with learning disabilities, family carers and paid carers. METHODS: A Q methodology study involving 13 women with learning disabilities, three family carers and five paid care workers, from the North‐East of England. A Q‐sort of 28 statements was completed with all participants completing a post‐Q‐sort interview to understand the reason behind the card placements. Factor analysis was completed using PQMethod and interpreted using framework analysis. RESULTS: Factor 1, named ‘Personal choice and ownership’, explores how women with learning disabilities want to be supported to make their own decision to attend cancer screening and explored their preferred support needs. Factor 2, named ‘Protecting vs. enablement’, portrayed the battle family carers and paid care workers felt to protect women with learning disabilities from harm, whilst feeling that they were supporting women with learning disabilities to decide to attend cancer screening. Eight consensus statements were identified indicating a shared perspective. CONCLUSIONS: Cancer screening services should ensure that women with learning disabilities are supported to make informed decisions to attend cancer screening and then be further supported throughout the cancer pathway. John Wiley and Sons Inc. 2022-09-12 2022-11 /pmc/articles/PMC9786864/ /pubmed/36094022 http://dx.doi.org/10.1111/ecc.13702 Text en © 2022 The Authors. European Journal of Cancer Care published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Sykes, Kate
McGeechan, Grant J.
Crawford, Hannah
Giles, Emma L.
Factor influencing women with learning disabilities deciding to, and accessing, cervical and breast cancer screening: Findings from a Q methodology study of women with learning disabilities, family and paid carers
title Factor influencing women with learning disabilities deciding to, and accessing, cervical and breast cancer screening: Findings from a Q methodology study of women with learning disabilities, family and paid carers
title_full Factor influencing women with learning disabilities deciding to, and accessing, cervical and breast cancer screening: Findings from a Q methodology study of women with learning disabilities, family and paid carers
title_fullStr Factor influencing women with learning disabilities deciding to, and accessing, cervical and breast cancer screening: Findings from a Q methodology study of women with learning disabilities, family and paid carers
title_full_unstemmed Factor influencing women with learning disabilities deciding to, and accessing, cervical and breast cancer screening: Findings from a Q methodology study of women with learning disabilities, family and paid carers
title_short Factor influencing women with learning disabilities deciding to, and accessing, cervical and breast cancer screening: Findings from a Q methodology study of women with learning disabilities, family and paid carers
title_sort factor influencing women with learning disabilities deciding to, and accessing, cervical and breast cancer screening: findings from a q methodology study of women with learning disabilities, family and paid carers
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9786864/
https://www.ncbi.nlm.nih.gov/pubmed/36094022
http://dx.doi.org/10.1111/ecc.13702
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