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Users' perspective on rehabilitation interventions for young adult cancer survivors: A group concept mapping study

OBJECTIVE: We aim to identify and prioritise rehabilitation interventions to strengthen participation in everyday life for young adult cancer survivors (YACS) between 18 and 39 years, involving the perspectives of YACS and relevant stakeholders. METHODS: A group concept mapping study was conducted i...

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Autores principales: Aagesen, Maria, Pilegaard, Marc Sampedro, Hauken, May Aasebø, Wæhrens, Eva Elisabet Ejlersen, la Cour, Karen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9786878/
https://www.ncbi.nlm.nih.gov/pubmed/36218020
http://dx.doi.org/10.1111/ecc.13734
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author Aagesen, Maria
Pilegaard, Marc Sampedro
Hauken, May Aasebø
Wæhrens, Eva Elisabet Ejlersen
la Cour, Karen
author_facet Aagesen, Maria
Pilegaard, Marc Sampedro
Hauken, May Aasebø
Wæhrens, Eva Elisabet Ejlersen
la Cour, Karen
author_sort Aagesen, Maria
collection PubMed
description OBJECTIVE: We aim to identify and prioritise rehabilitation interventions to strengthen participation in everyday life for young adult cancer survivors (YACS) between 18 and 39 years, involving the perspectives of YACS and relevant stakeholders. METHODS: A group concept mapping study was conducted in Denmark from 2019 to 2020. Online, participants generated and sorted ideas followed by rating their importance. Multidimensional scaling followed by hierarchical cluster analyses were applied to generate a cluster rating map of the prioritised interventions, which participants validated at a face‐to‐face meeting. Finally, a concluding conceptual model of prioritised rehabilitation intervention for YACS was developed. RESULTS: The study involved 25 YACS, three family members and 31 professionals working with YACS. The conceptual model included 149 ideas classified into eight intervention components created by the participants: (1) Treatment and possibilities within the social and healthcare system, (2) Rights and Finance, (3) Education and Work, (4) Psychological problems, (5) Body and Everyday Life, (6) Peer‐to‐peer, (7) Sexuality and Relationships and (8) Family and Friends. All components were rated equally important, whereby 17 ideas across the eight components were rated very important. CONCLUSION: This study indicates that rehabilitation of YACS should be composed of eight equally important intervention components requiring an interdisciplinary approach.
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spelling pubmed-97868782022-12-27 Users' perspective on rehabilitation interventions for young adult cancer survivors: A group concept mapping study Aagesen, Maria Pilegaard, Marc Sampedro Hauken, May Aasebø Wæhrens, Eva Elisabet Ejlersen la Cour, Karen Eur J Cancer Care (Engl) Original Articles OBJECTIVE: We aim to identify and prioritise rehabilitation interventions to strengthen participation in everyday life for young adult cancer survivors (YACS) between 18 and 39 years, involving the perspectives of YACS and relevant stakeholders. METHODS: A group concept mapping study was conducted in Denmark from 2019 to 2020. Online, participants generated and sorted ideas followed by rating their importance. Multidimensional scaling followed by hierarchical cluster analyses were applied to generate a cluster rating map of the prioritised interventions, which participants validated at a face‐to‐face meeting. Finally, a concluding conceptual model of prioritised rehabilitation intervention for YACS was developed. RESULTS: The study involved 25 YACS, three family members and 31 professionals working with YACS. The conceptual model included 149 ideas classified into eight intervention components created by the participants: (1) Treatment and possibilities within the social and healthcare system, (2) Rights and Finance, (3) Education and Work, (4) Psychological problems, (5) Body and Everyday Life, (6) Peer‐to‐peer, (7) Sexuality and Relationships and (8) Family and Friends. All components were rated equally important, whereby 17 ideas across the eight components were rated very important. CONCLUSION: This study indicates that rehabilitation of YACS should be composed of eight equally important intervention components requiring an interdisciplinary approach. John Wiley and Sons Inc. 2022-10-11 2022-11 /pmc/articles/PMC9786878/ /pubmed/36218020 http://dx.doi.org/10.1111/ecc.13734 Text en © 2022 The Authors. European Journal of Cancer Care published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Original Articles
Aagesen, Maria
Pilegaard, Marc Sampedro
Hauken, May Aasebø
Wæhrens, Eva Elisabet Ejlersen
la Cour, Karen
Users' perspective on rehabilitation interventions for young adult cancer survivors: A group concept mapping study
title Users' perspective on rehabilitation interventions for young adult cancer survivors: A group concept mapping study
title_full Users' perspective on rehabilitation interventions for young adult cancer survivors: A group concept mapping study
title_fullStr Users' perspective on rehabilitation interventions for young adult cancer survivors: A group concept mapping study
title_full_unstemmed Users' perspective on rehabilitation interventions for young adult cancer survivors: A group concept mapping study
title_short Users' perspective on rehabilitation interventions for young adult cancer survivors: A group concept mapping study
title_sort users' perspective on rehabilitation interventions for young adult cancer survivors: a group concept mapping study
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9786878/
https://www.ncbi.nlm.nih.gov/pubmed/36218020
http://dx.doi.org/10.1111/ecc.13734
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