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Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms
Cancer patients often want information from “peers” with the same diagnosis or treatment. To increase access to this valuable resource, we developed a website to deliver written peer support to cancer patients undergoing stem cell transplant. Because little evidence describes how to optimize benefit...
Autores principales: | , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9788802/ https://www.ncbi.nlm.nih.gov/pubmed/36567868 http://dx.doi.org/10.1016/j.procs.2022.09.098 |
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author | Bovbjerg, Katrin Graves, Kristi Waltz, Margaret Farrell, David Yanez, Betina Chicaiza, Anthony Omar, Rahma Thompson, Rebecca Kop, Mariska Van Denburg, Alyssa N. Lorch, Danielle Rowley, Scott D. Rini, Christine |
author_facet | Bovbjerg, Katrin Graves, Kristi Waltz, Margaret Farrell, David Yanez, Betina Chicaiza, Anthony Omar, Rahma Thompson, Rebecca Kop, Mariska Van Denburg, Alyssa N. Lorch, Danielle Rowley, Scott D. Rini, Christine |
author_sort | Bovbjerg, Katrin |
collection | PubMed |
description | Cancer patients often want information from “peers” with the same diagnosis or treatment. To increase access to this valuable resource, we developed a website to deliver written peer support to cancer patients undergoing stem cell transplant. Because little evidence describes how to optimize benefits or reduce potential harms of written peer support, we gathered multiple forms of stakeholder feedback to inform the website’s ethical approach, personalization, design, function, and content: a Community Advisory Board; a longitudinal study of patients’ written peer support needs and motivations; focus groups; semi-structured interviews; and usability testing. Findings provide a rich foundation for website development. |
format | Online Article Text |
id | pubmed-9788802 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
record_format | MEDLINE/PubMed |
spelling | pubmed-97888022022-12-23 Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms Bovbjerg, Katrin Graves, Kristi Waltz, Margaret Farrell, David Yanez, Betina Chicaiza, Anthony Omar, Rahma Thompson, Rebecca Kop, Mariska Van Denburg, Alyssa N. Lorch, Danielle Rowley, Scott D. Rini, Christine Procedia Comput Sci Article Cancer patients often want information from “peers” with the same diagnosis or treatment. To increase access to this valuable resource, we developed a website to deliver written peer support to cancer patients undergoing stem cell transplant. Because little evidence describes how to optimize benefits or reduce potential harms of written peer support, we gathered multiple forms of stakeholder feedback to inform the website’s ethical approach, personalization, design, function, and content: a Community Advisory Board; a longitudinal study of patients’ written peer support needs and motivations; focus groups; semi-structured interviews; and usability testing. Findings provide a rich foundation for website development. 2022 2022-09-21 /pmc/articles/PMC9788802/ /pubmed/36567868 http://dx.doi.org/10.1016/j.procs.2022.09.098 Text en https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (https://creativecommons.org/licenses/by-nc-nd/4.0 (https://creativecommons.org/licenses/by-nc-nd/4.0/) ) |
spellingShingle | Article Bovbjerg, Katrin Graves, Kristi Waltz, Margaret Farrell, David Yanez, Betina Chicaiza, Anthony Omar, Rahma Thompson, Rebecca Kop, Mariska Van Denburg, Alyssa N. Lorch, Danielle Rowley, Scott D. Rini, Christine Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms |
title | Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms |
title_full | Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms |
title_fullStr | Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms |
title_full_unstemmed | Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms |
title_short | Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms |
title_sort | expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9788802/ https://www.ncbi.nlm.nih.gov/pubmed/36567868 http://dx.doi.org/10.1016/j.procs.2022.09.098 |
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