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Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms

Cancer patients often want information from “peers” with the same diagnosis or treatment. To increase access to this valuable resource, we developed a website to deliver written peer support to cancer patients undergoing stem cell transplant. Because little evidence describes how to optimize benefit...

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Autores principales: Bovbjerg, Katrin, Graves, Kristi, Waltz, Margaret, Farrell, David, Yanez, Betina, Chicaiza, Anthony, Omar, Rahma, Thompson, Rebecca, Kop, Mariska, Van Denburg, Alyssa N., Lorch, Danielle, Rowley, Scott D., Rini, Christine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9788802/
https://www.ncbi.nlm.nih.gov/pubmed/36567868
http://dx.doi.org/10.1016/j.procs.2022.09.098
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author Bovbjerg, Katrin
Graves, Kristi
Waltz, Margaret
Farrell, David
Yanez, Betina
Chicaiza, Anthony
Omar, Rahma
Thompson, Rebecca
Kop, Mariska
Van Denburg, Alyssa N.
Lorch, Danielle
Rowley, Scott D.
Rini, Christine
author_facet Bovbjerg, Katrin
Graves, Kristi
Waltz, Margaret
Farrell, David
Yanez, Betina
Chicaiza, Anthony
Omar, Rahma
Thompson, Rebecca
Kop, Mariska
Van Denburg, Alyssa N.
Lorch, Danielle
Rowley, Scott D.
Rini, Christine
author_sort Bovbjerg, Katrin
collection PubMed
description Cancer patients often want information from “peers” with the same diagnosis or treatment. To increase access to this valuable resource, we developed a website to deliver written peer support to cancer patients undergoing stem cell transplant. Because little evidence describes how to optimize benefits or reduce potential harms of written peer support, we gathered multiple forms of stakeholder feedback to inform the website’s ethical approach, personalization, design, function, and content: a Community Advisory Board; a longitudinal study of patients’ written peer support needs and motivations; focus groups; semi-structured interviews; and usability testing. Findings provide a rich foundation for website development.
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spelling pubmed-97888022022-12-23 Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms Bovbjerg, Katrin Graves, Kristi Waltz, Margaret Farrell, David Yanez, Betina Chicaiza, Anthony Omar, Rahma Thompson, Rebecca Kop, Mariska Van Denburg, Alyssa N. Lorch, Danielle Rowley, Scott D. Rini, Christine Procedia Comput Sci Article Cancer patients often want information from “peers” with the same diagnosis or treatment. To increase access to this valuable resource, we developed a website to deliver written peer support to cancer patients undergoing stem cell transplant. Because little evidence describes how to optimize benefits or reduce potential harms of written peer support, we gathered multiple forms of stakeholder feedback to inform the website’s ethical approach, personalization, design, function, and content: a Community Advisory Board; a longitudinal study of patients’ written peer support needs and motivations; focus groups; semi-structured interviews; and usability testing. Findings provide a rich foundation for website development. 2022 2022-09-21 /pmc/articles/PMC9788802/ /pubmed/36567868 http://dx.doi.org/10.1016/j.procs.2022.09.098 Text en https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the CC BY-NC-ND license (https://creativecommons.org/licenses/by-nc-nd/4.0 (https://creativecommons.org/licenses/by-nc-nd/4.0/) )
spellingShingle Article
Bovbjerg, Katrin
Graves, Kristi
Waltz, Margaret
Farrell, David
Yanez, Betina
Chicaiza, Anthony
Omar, Rahma
Thompson, Rebecca
Kop, Mariska
Van Denburg, Alyssa N.
Lorch, Danielle
Rowley, Scott D.
Rini, Christine
Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms
title Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms
title_full Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms
title_fullStr Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms
title_full_unstemmed Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms
title_short Expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms
title_sort expanding access to cancer peer support: development of a website to deliver written peer support that meets patients’ individual emotional and informational needs while reducing potential harms
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9788802/
https://www.ncbi.nlm.nih.gov/pubmed/36567868
http://dx.doi.org/10.1016/j.procs.2022.09.098
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