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Reported clinical incidents of children with intellectual disability: A qualitative analysis

AIM: To qualitatively explore reported clinical incidents of children with intellectual disability aged 0 to 18 years. METHOD: A secondary qualitative evaluation using latent content analysis was used on retrospective hospital incident management reporting data (1st January–31st December 2017) on 13...

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Autores principales: Ong, Natalie, Mimmo, Laurel, Barnett, Diana, Long, Janet, Weise, Janelle, Walton, Merrilyn
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9790611/
https://www.ncbi.nlm.nih.gov/pubmed/35578400
http://dx.doi.org/10.1111/dmcn.15262
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author Ong, Natalie
Mimmo, Laurel
Barnett, Diana
Long, Janet
Weise, Janelle
Walton, Merrilyn
author_facet Ong, Natalie
Mimmo, Laurel
Barnett, Diana
Long, Janet
Weise, Janelle
Walton, Merrilyn
author_sort Ong, Natalie
collection PubMed
description AIM: To qualitatively explore reported clinical incidents of children with intellectual disability aged 0 to 18 years. METHOD: A secondary qualitative evaluation using latent content analysis was used on retrospective hospital incident management reporting data (1st January–31st December 2017) on 1367 admissions for 1018 randomly selected patients admitted to two tertiary children's hospitals in New South Wales, Australia. Sex and age at admission in children with and without intellectual disability: 83 (43.7%) versus 507 (43.1%) females and 107 (56.3%) versus 670 (56.9%) males, p=0.875; median age 3 years (0–18y) versus 4 years (0–18y), p=0.122. Of these, 44 patient safety incident reports for children with intellectual disability (sex, SD, and range) and 167 incident reports for children without intellectual disability (sex, SD, and range) were found and analysed. RESULTS: Ten themes were synthesized from the data and represented the groups with and without intellectual disability. Children with intellectual disability had a significantly higher proportion of care issues identified by their parents. They also had higher rates of multiple reported clinical incidents per admission compared to children without intellectual disability. INTERPRETATION: Mechanisms to advocate and raise patient safety issues for children with intellectual disability are needed. Partnerships with parents and training of staff in reporting clinical incidents for this population would enhance the embedding of reasonable adaptations into incident management systems for ongoing monitoring and improvement. WHAT THIS PAPER ADDS: Children with intellectual disability experienced multiple patient safety incidents per admission compared to children without intellectual disability. Children with intellectual disability had significantly increased rates of parent‐identified incidents. Issues with medication, communication, delays in diagnosis and treatment, and identification of deterioration were noted.
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spelling pubmed-97906112022-12-28 Reported clinical incidents of children with intellectual disability: A qualitative analysis Ong, Natalie Mimmo, Laurel Barnett, Diana Long, Janet Weise, Janelle Walton, Merrilyn Dev Med Child Neurol Original Articles AIM: To qualitatively explore reported clinical incidents of children with intellectual disability aged 0 to 18 years. METHOD: A secondary qualitative evaluation using latent content analysis was used on retrospective hospital incident management reporting data (1st January–31st December 2017) on 1367 admissions for 1018 randomly selected patients admitted to two tertiary children's hospitals in New South Wales, Australia. Sex and age at admission in children with and without intellectual disability: 83 (43.7%) versus 507 (43.1%) females and 107 (56.3%) versus 670 (56.9%) males, p=0.875; median age 3 years (0–18y) versus 4 years (0–18y), p=0.122. Of these, 44 patient safety incident reports for children with intellectual disability (sex, SD, and range) and 167 incident reports for children without intellectual disability (sex, SD, and range) were found and analysed. RESULTS: Ten themes were synthesized from the data and represented the groups with and without intellectual disability. Children with intellectual disability had a significantly higher proportion of care issues identified by their parents. They also had higher rates of multiple reported clinical incidents per admission compared to children without intellectual disability. INTERPRETATION: Mechanisms to advocate and raise patient safety issues for children with intellectual disability are needed. Partnerships with parents and training of staff in reporting clinical incidents for this population would enhance the embedding of reasonable adaptations into incident management systems for ongoing monitoring and improvement. WHAT THIS PAPER ADDS: Children with intellectual disability experienced multiple patient safety incidents per admission compared to children without intellectual disability. Children with intellectual disability had significantly increased rates of parent‐identified incidents. Issues with medication, communication, delays in diagnosis and treatment, and identification of deterioration were noted. John Wiley and Sons Inc. 2022-05-16 2022-11 /pmc/articles/PMC9790611/ /pubmed/35578400 http://dx.doi.org/10.1111/dmcn.15262 Text en © 2022 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Original Articles
Ong, Natalie
Mimmo, Laurel
Barnett, Diana
Long, Janet
Weise, Janelle
Walton, Merrilyn
Reported clinical incidents of children with intellectual disability: A qualitative analysis
title Reported clinical incidents of children with intellectual disability: A qualitative analysis
title_full Reported clinical incidents of children with intellectual disability: A qualitative analysis
title_fullStr Reported clinical incidents of children with intellectual disability: A qualitative analysis
title_full_unstemmed Reported clinical incidents of children with intellectual disability: A qualitative analysis
title_short Reported clinical incidents of children with intellectual disability: A qualitative analysis
title_sort reported clinical incidents of children with intellectual disability: a qualitative analysis
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9790611/
https://www.ncbi.nlm.nih.gov/pubmed/35578400
http://dx.doi.org/10.1111/dmcn.15262
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