COVID‐19 pandemic experiences of older adults with dementia in community and residential care settings: Results from a US national survey

INTRODUCTION: Investigations into consequences of the US COVID‐19 pandemic for older adults with dementia have been limited. METHODS: We used the National Health and Aging Trends Study to examine self‐reported COVID‐19 infection; measures taken to limit its spread; social, behavioral, and emotional responses to the pandemic; and changes in health‐care use and provider communication. We compared adults aged ≥70 with and without dementia in community and residential care settings. RESULTS: In residential care settings, infection was substantially higher and social contact less common for those with dementia. In community and residential care settings, those with dementia had 2 to 3 times the odds of reporting sleeping more often. In residential care settings, those with dementia were less likely to put off care and more likely to start telehealth. DISCUSSION: Findings highlight the disproportionate social and behavioral consequences of the COVID‐19 pandemic for those living with dementia, particularly in residential care settings. HIGHLIGHTS: Data are from the nationally representative National Health and Aging Trends Study. COVID‐19 infection was higher in residential care settings for those with dementia. Social contact was less common for those with dementia in residential care. Pandemic‐related coping behaviors differed by dementia and residential status. In residential care, those with dementia were less likely to delay health care.